Nivolumab User Reviews & Ratings (Page 3)

• Lealee
• July 18, 2017

For Non Small Cell Lung Cancer "Love this stuff works miracles I was stage 4 spread to numerous lymph nodes. I was diagnosed June 2016 and started chemo which knocked the hell out off me, only on chemo for three months. Then started opdivo after only 15 treatments I am cancer free. I have never had any side affects gained more weight than I needed actually feel better than I ever have. It doesn't work for everyone I think about 20% which I think its roughly the same for chemo. It's sad we need something that works for 100%."

• Missing...
• Taken for 1 to 6 months
• November 25, 2016

For Renal Cell Carcinoma "Yesterday we celebrated my daughter's birthday and Thanksgiving without my husband who passed away in June. He was diagnosed with Neuroendocrine Carcinoid Tumors in 2010 and survived a wonderful 6 years. He did very well with Afinitor until it began to give him pneumonia. In March this year his doctor started him on Opdivo. HIs energy immediately plummeted. In early March he felt well enough to plan a vacation to Alaska for early June. By early April he wanted to cancel it. He had 3 injections of Opdivo over March and April. He went into hospice in May and passed away in June. I'm not saying Opdivo killed him since his cancer markers were starting to rise before starting it, but they skyrocketed after starting it."

• Corey
• Taken for 1 to 6 months
• July 20, 2022

Opdivo (nivolumab) for Esophageal Carcinoma "Don’t take this drug it only causes harm. After 4 treatments it fried my thyroid and my adrenal gland’s. I’ve gone through hell for months as they try to adjust my medication. I will have to deal with this for the rest of my life. Your own immune system destroys your organs quickly."

• ilove...
• January 9, 2018

Opdivo (nivolumab) for Colorectal Cancer "I have small intestines cancer/stage 4 .I have been on opdivo for 1 full year because I could not tolerate chemo any more. It took 9 months for pain relief and 4 months ago, my CT scan showed that my tumors have shrunk 30 percent. Opdivo has saved my life ! I have only diarrhea as a side effect. I am so grateful that my dr. put me on this as I would not be alive . I have gained 20 lbs and don't feel as if i have cancer. I can't wait to get my next CT scan"

• DaBear
• Taken for 6 months to 1 year
• March 18, 2024

Opdivo (nivolumab) for Melanoma, Metastatic "Received 12 months of Opdivo, 23 treatments from April 2018 to April 2019. Skin rash in splotches on hands, arms, stomach, and feet. Severe bone and muscle pain, weakness, and fatigue, stomach issues, loose bowels. All throughout treatment. I am now almost 5 years from the last treatment, but I continue to have bone and muscle pain, and from time to time I get rashes popping up randomly. My biggest complaint is that I continue to be tired and have bone/joint pain. All my treatments and blood work were in the right arm as I had lymph nodes taken from the left arm, so no blood pressure, no needle sticks, etc., in the left arm. Right arm held up well with all the treatments and blood work. Now my right shoulder and nerves down my arm bother me a lot. My final comment is, Opdivo worked. Thank God I am still here on this earth."

• daylate
• Taken for 1 to 2 years
• March 15, 2024

Opdivo (nivolumab) for Melanoma, Metastatic "Started Opdivo almost two years ago. When diagnosed with metastatic melanoma, I was suggested I had about 6 months to live. My Oncologist started me immediately after confirming I had metastatic melanoma. I have only seen low sodium levels just at the lower threshold. A little tired following infusion. I feel this therapy has extended my life for certain. I'm glad it is available at this time. 10-15 years ago I wouldn't be so lucky."

• J P
• Taken for less than 1 month
• March 24, 2022

Opdivo (nivolumab) for Melanoma "I had a spot of melanoma skin cancer on my side, and it spread to two lymph nodes. All the cancer was removed by surgery. No more cancer, but Opdivo was strongly recommended as a preventative. I was told there may be side effects with Opdivo, but had no idea of what that really meant, or how severe they could be. I was put on the once a month regimen so was given the double dose. A few days later my daughter rushed me to the hospital with a fluttering heart and a pulse way over a hundred. My body was beginning to experience massive inflammation. Opdivo attacked my heart, thyroid, liver, eyes (double vision), severe muscle pain, no control of bowels, severe rash and itching, extreme weakness. I was put on six weeks of prednisone to as they said, "put out the fire". The Opdivo had already done its damage to my heart, had to have a catheter ablation, and I will be on thyroid medication the rest of my life. Don't just jump into Opdivo, do your own your own research, or have someone help."

• Anonymous
• Taken for 1 to 6 months
• October 17, 2022

Opdivo (nivolumab) for Melanoma, Metastatic "I had melanoma in my lung, large intestine and thigh. I am also on dialysis. I took a six-month course of Opdivo and had no cancer cells at that time. Five years and PET scans later I am still cancer free. Yes, Opdivo is a tough regime of medicine, very tired, achy, depressed, anemia, and at the end some sort of acute lung problem (that's when they took me off the medicine). After I stopped taking Opdivo it still took four months to get it out of my system. Was it worth it? Damn right."

• The...
• Taken for 1 to 6 months
• October 13, 2022

Opdivo (nivolumab) for Melanoma "My husband was diagnosed with Stage III melanoma and had a softball sized tumor removed 11/11/21. His first Opdivo treatment was at the end of December. He had some reactions to the medication - second and final treatment was at the end of January. Ever since the first treatment, he has has mouth blisters/ulcers. He got 'black tongue'. Had double vision issues. Still has fluttering heart. He is suffering from severe arthritic pain. If we had realized the potential long term effects, we wouldn't have started treatment. My husband has always been a healthy, active, hard-working kind of guy. He has been on various doses of prednisone ever since. (Adrenal insufficiency at this point, as well) This drug has destroyed his quality of life. Please do your research. This drug was basically fast-tracked for approval. In addition, at $37,000 a pop for treatment....makes you wonder who has the patient's best interest at heart."

• big...
• Taken for 2 to 5 years
• March 8, 2018

Opdivo (nivolumab) for Melanoma, Metastatic "Been on Nivolumab & Opdivo for 27 months with small amount of side effects and great success in tumor reduction . Merkel cell (MCC ) is what I have and went thru several Chemos & radiation and this treatment is working Great on this cancer. Merkel cell MCC is one of the cancer that foundations do not help with so these patients are on there own. Pricey but it does make a different s in the length of your life ."

• Robert
• Taken for 1 to 6 months
• December 11, 2018

For Melanoma "I had two treatments of Nivolumab two weeks apart. When I went in for my third treatment I mentioned that my muscles were sore. They did not do the third treatment and recommended that I see a Rheumatology Doctor. Saw her one week later and she sent me for blood work. Got a call that night that my sugars were above 600 and I needed to check into my preferred Emergency room. Spent 3 days in the hospital adjusting my sugars. At home I have to test my blood 4 times a day and inject insulin according to the numbers. They do not think my pancreas is improving and that I might have to continue this for life. "Diabetes". A week later it was discovered that my Thyroid was very low. Now on Thyroid medication. Debated whether to even start Nivolumab injections, because of all the side effects, but were advised by most of my doctors to start it and then I could always stop if side effects occurred. I guess you're damned if you do and damned if you don't. Live and learn."

• Myfat...
• Taken for 1 to 6 months
• October 17, 2019

For Renal Cell Carcinoma "Be very, very careful with nivolumab. Within just 8 weeks it caused an explosion of my father’s lung metastases from renal cell carcinoma. It caused fluid around his lungs and heart. It might be a miracle cure for some but for every person that it so called ‘cures’ it seems to caused disastrous consequences for 10 other patients. I would use extreme caution in deciding to take this medication. It is very unpredictable."

• Babette
• Taken for 2 to 5 years
• December 2, 2018

For Non Small Cell Lung Cancer "Diagnosed with NSCL Stage III B in December 2003. After 6 treatments (carboplatin/taxotere) was told that I was stable but disease would come back within 2 years and then I would have 6 months and that would be it. In May of 2016 (after x number of chemo treatments) I was put on Opdivo and have felt great ever since. I use lots of body lotion after showers to keep the occasional rash in check. This is the only side effect I have to deal with. Love Opdivo and the carefree life it gives me."

• Faith
• Taken for 1 to 6 months
• April 4, 2019

Opdivo (nivolumab) for Renal Cell Carcinoma "I was on Opdivo for 4 months for stage 4 RCC. Felt good with diarrhea was the only side effect until I got blurry vision in one eye. During those 4 months I had no increase in the side of the tumors."

• Vic
• Taken for 1 to 6 months
• December 20, 2019

For Renal Cell Carcinoma "I started opdivo as my 3rd line of treatment. I had very few side effects at first and could eat like a horse. Unfortunately I got really really bad flares of rheumatoid arthritis. I had a partial response but the lung and messintary tumors grew and the RA became a problem. I would take it again but unfortunately was not my savior. Best luck to the next person to try it"

• Paddl...
• Taken for 1 to 2 years
• September 26, 2019

For Head and Neck Cancer "Nivolumab has provided hope. With no more surgeries or radiation this drug has stabilized my reoccurred tumor in neck. Aside from some itchiness , fatigue, achy muscles and joints, I tolerate the regime. 18 months later after being told not much can be done. I'm fortunate to respond. Grateful !"

• JSano
• Taken for less than 1 month
• September 26, 2019

For Non Small Cell Lung Cancer "Opdivo caused increased intracranial pressure or demyelination to my my mom 3 weeks after her first IV dose (stage IV NSCLC -- slow metastasizing type of cancer). She was having trouble speaking as her first adverse effect. Health care practitioners were unable to tell what exactly caused it because this drug is so new. She was given the only thing the books tell them to do in such situations; high doses of steroids. She faded fast and died about a month after her first treatment. This drug is not for everybody, I wish I knew of these reviews before she started treatment. By then it was too late."

• Charmed
• Taken for 1 to 2 years
• December 20, 2023

Opdivo (nivolumab) for Renal Cell Carcinoma "This is a follow-up to my February 2023 posting. I've completed my 24th Opdivo infusion with no adverse side effects. I've already scheduled number 25 and 26. Yesterday, I had my first-ever PET scan. My results were totally unexpected - NED, no evidence of disease (remission). I will be meeting with my doctor to plan my future course of treatment. I believe my Yervoy/Opdivo treatments have saved my life. Stage 4 CCRCC with NSCLC is not the end, it's a starting point. Explore all your options and go forward."

• NoCal...
• Taken for 1 to 2 years
• May 17, 2019

For Melanoma "My boyfriend was diagnosed with Stage IIIC Melanoma in February 2018. I am fairly sure he had been sick for a few years prior to diagnosis. He had a 5.5 cm tumor excised from his upper arm and 18 axillary lymph nodes removed (one node lit thus the IIIC staging diagnosis.) Opdivo 480 once per month started in March 2018. He finished his last infusion on 4/2/2019. No Evidence of Disease as of last PET scan. The side effects have been extreme fatigue, muscle aches, diarrhea and rash. He has and continues to take Prednisone daily. He also has prescription steroid creams for the rash. He expected to feel better right away after his final infusion, this has not happened yet. Still very low energy and he sleeps a lot. Hoping he feels better very soon. Considering that until the last few years only traditional chemo regimen and/or Interferon were available we consider ourselves quite fortunate that Opdivo was made available. Time will tell. I hope an actual cure is found soon."

• My...
• Taken for 1 to 6 months
• September 8, 2016

"My husband fought carcinoid cancer for 6 years. He kept getting pneumonia with the cancer drug that had kept him stable over the last couple of years and had to go off of it. His doctor had heard Opdivo recommended for his type of cancer and he was approved by BMS for full coverage since our insurance didn't pay for it. He started it in March with a dose every two weeks. His energy level plummeted. After 3 doses over 6 weeks he decided to stop, but his energy kept declining and his tumors had grown. Also his cancer markers were rising rapidly from about February till he was put on hospice in May. He passed away in June. I'm not say Opdivo killed him, the cancer did, but the start of his rapid decline coincided with the start of Opdivo."

• Footh...
• Taken for 1 to 2 years
• November 15, 2021

Opdivo (nivolumab) for Melanoma "Boyfriend diagnosed with 3C Metastatic Melanoma in 2017. Surgery (WLE) to remove tumor in upper arm and several lymph nodes removed. One year of monthly Opdivo infusions following surgery. Hasn’t been the same since. Multiple infections and syndromes (C-diff, diverticulitis, SIADH...) one thing after another. He has lost a ton of weight and is pretty much bedridden 20 hrs per day. In his case I truly question whether the benefits outweigh the risks. After watching his decline, I would have serious reservations. NO quality of life at 64 years old."

• Mandy
• Taken for 1 to 6 months
• November 13, 2022

For Melanoma "I had stage 3 melanoma. 15 years earlier I had malignant melanoma mole removed from my lower back. Then it came back in my lymph nodes in my groin. Surgery removed 13 lymph nodes. They recommended Nivolumab as adjuvant treatment. First treatment I developed a mild cough. I let them know but they were hyper focused on Covid so they said it may be that. I did two more treatments, cough got really bad. Pneumonitis was diagnosed. Took me off of Nivolumab and put me on prednisone and an antibiotic and a stomach pill to turn off immune system. I had such a bad reaction to the antibiotic I ended up in emergency. I never felt so sick and utterly exhausted. I regret all the pharmaceuticals they gave me. I wish I just stopped with the surgery."

• KimK
• Taken for less than 1 month
• April 24, 2017

For Non Small Cell Lung Cancer "My Dad was diagnosed last August 20 2016 with Stage 4 Lung cancer. He came home from the hospital and he started chemo right away. He had about 7 rounds of regular chemo. We thought he was doing so well. He had a scan in December and they said it was stable. Still continued treatment thru February. In the middle of March 2017 my Dad went in the hospital. He was there for 10 days Dr. Said the cancer was spreading he needed treatment. The new treatment Opdivo brought him home and 3/29/17 my Dad had is first treatment of Opdivo. My Dad seemed to start going down hill couldn't walk was having a hard time breathing. He never made the 2nd treatment my Dad died 4/19/2017. I am not saying it was from the Opdivo but it sure makes me wonder."

• JJano
• Taken for less than 1 month
• April 21, 2018

For Non Small Cell Lung Cancer "My beloved mother is no longer with my family or me. Such an incredible shock this is. In my honest opinion, it wasn't because of the cancer itself, but from the allergic response and adverse effects of this drug, which hastened her death unquestionably (severe motor dysfunction and hydrocephalus.) I wish I did my homework on her new "treatment" before it was too late. If I could tell anyone about my story it would be this, do your research on cancer medications (antineoplastics) because sometimes the risks outweigh the potential benefits. Immunotherapy drugs e.g. keytruda, opdivo should be used with EXTREME caution in patients with a previous or a current autoimmune disease and those who show signs of generalized weakness before starting treatment. Thanks for taking my mom sooner than she needed to go Opdivo."

• Burnt...
• Taken for 2 to 5 years
• July 26, 2022

Opdivo (nivolumab) for Melanoma "Hello to put my experience with Opdivo in perspective. I was stage 4 melanoma , had radical dissection on left neck removed 29 lymph nodes. I was then given Opdivo for 8 months . First pet scan showed no reoccurrence. Was to get 12 doses only took 8. At this time the side effects of good organs being attacked started my lungs and my heart . Prednisone is used or was used by my doctor to back the immuno down . This Steroid has its own side effects but did what it was supposed to do . This was all in first year of using Ppdivo . Its been four years since all started , I have had no reoccurrence at this time ."