Tysabri User Reviews & Ratings (Page 3)

• Bar...
• January 29, 2020

For Multiple Sclerosis "2 days ago I had my 16th Tysabri. Tell you what, my walking has turned to baby steps with a cane, tired, exhausted, especially during hot weather. But I got diagnosed in 2017, and I had no walking issues apart from my right eye that had a patchy feeling. Now I have shoulder pain, left leg experiences momentary seizures, which I am controlling with Tegretol. Doctors are saying that I need to exercise, but I can't as my feet are shivering and are too weak to pedal. Thinking to move to Ocrevus, any idea?"

• Mom...
• February 16, 2010

For Multiple Sclerosis "I've only had 2 infusions of Tysabri so far. My Dr. is planning on keeping me on the drug for 12 months. So far, the side effects are minimal: a migraine headache and extremely tired. BUT those I can certainly live with. Within 1 day after infusion, they are gone. This drug so far is much better. I seem to be feeling better both mentally and physically. I wish this drug was the first drug that I would have been given 13 years ago -- maybe then I would not have been classified disabled and still be able to work."

• Kat...
• Taken for 2 to 5 years
• May 30, 2017

For Multiple Sclerosis "I've used Tysabri for the past couple of years. Prior to Tysabri, I used a couple of other drugs, but nothing worked as well as Tysabri. My wish would be to take it every 21 days instead of 28 days. The 4-5 days before infusion time can be very painful, with head and body aches accompanied by brain fog. I don't understand the risks for a 21-day infusion, but I'm willing to learn."

• KEE...
• June 11, 2010

For Multiple Sclerosis "I failed Copaxone and then Avonex therapy. I started Tysabri in March of 2010. Some improvement in my disability. The only side effect that I get is a two-day migraine post-infusion. Otherwise, I do NOT miss the shots and flu symptoms. I actually look forward to the 2-hour nap during and after infusion! I recommend this medicine to those that fail on the other ABCs!"

• man...
• April 12, 2011

For Multiple Sclerosis "Have been on Tysabri for 39 months. For me, it has been life-changing. I have been on it all in the last 11 years, and nothing has worked for me like Tysabri. I also experience post-treatment headaches, and prescription MIDRIN works great for the headache pain."

• Bst...
• November 30, 2016

For Multiple Sclerosis "I was diagnosed with MS on May 31, 2016. First we wanted to do Tecfidera, but insurance wanted me to do something cheaper. At that time, I had a horrible relapse. So we chose Tysabri, my doctor said it was the only other drug strong enough to deal with my MS. After my 4th infusion, I tested JC positive and had to be hospitalized. I am no longer on it, and I am not a fan of it."

• Key...
• December 6, 2019

For Multiple Sclerosis "I was diagnosed with M.S. almost 4 years ago and have been on Tysabri, and up until April of this year, no problems. In April, I was in the hospital 2 times. In July, I contracted meningitis and was hospitalized for 8 days, sent home with a PICC line to infuse myself for 6 days. Then again in November, I contracted meningitis again, stayed 6 days this time, and came home with a PICC again. This medication worked well at slowing down the progression of my lesions, but it killed my immune system. My doctor has taken me off the medication. We will see what is going to be her next move."

• Gui...
• Taken for 6 months to 1 year
• May 25, 2017

For Multiple Sclerosis "I have been on this medication for just about a year and think it is wonderful. The only issue is about a week before my infusion, I have a real increase in symptoms. I wish that there was a 21-day option because 28 is too far."

• myg...
• May 6, 2010

For Multiple Sclerosis "I sometimes get a headache and some fatigue the day of and after the infusion, but this has done wonders in keeping my MS symptoms at bay. My lesions haven't been active for about a year now, which I believe is because of the Tysabri."

• Kir...
• Taken for 1 to 2 years
• February 1, 2018

For Multiple Sclerosis "Before my treatment is due, I get so much pain in my shoulders, shoulder blades, arms, and hips/leg. I also become really irritable and have erratic moods. This happens about 1 to 1.5 weeks before it's due. I have been wondering if Tysabri is addictive because it's like my body is screaming for it. According to my MRIs, my lesions are shrinking, so it's doing something in the background. However, I've either gotten worse since being on Tysabri or it's progression. MRIs say stable, go figure."

• MS ...
• May 31, 2019

For Multiple Sclerosis "We found out my husband has MS a year after I had brain surgery for removing 80% of an acoustic neuroma tumor. So, naturally, we were devastated again... since both our brains suck. He was on Copaxone for two years until he had a terrible relapse where he was totally paralyzed except for his right hand, and he had to be admitted into the hospital, go into rehab, and come home in a hospital bed. This was when he started Tysabri, July 2011. Since then, he slowly came back from being bedridden to being in a wheelchair for months, to using a walker for months, then using a cane. I believe Tysabri helped him come back to himself and his family, physically and mentally. He had another relapse two years ago, only because he stopped taking Tysabri for a month to get tested for his JC virus. He has been on Tysabri for almost 8 years, and his doctor plans to keep him on it unless his JC virus turns positive. We love it."

• Anonymous
• October 7, 2009

For Multiple Sclerosis "I have used this medicine for two years and, by far, the best treatment for my multiple sclerosis. No side effects, and I don't have to take daily shots. I would recommend this to anyone who has multiple sclerosis."

• Red...
• November 19, 2009

For Multiple Sclerosis "I love Tysabri! Having been on it a year and a half, it's a lot better than Avonex. No more flu-like symptoms! I just hate having to sit for an extra hour or so to be monitored. I recommend this when all else fails."

• MSw...
• Taken for 5 to 10 years
• October 3, 2018

For Multiple Sclerosis "I've had monthly Tysabri infusions and have been in remission for 9 years. I've had MS for 34 years. I became JCV positive and then converted back to negative. The only side effect has been some migraines and UTIs. It has been a miracle for me. I walk with a walker and use a power scooter for long distances."

• Jo...
• December 31, 2009

For Multiple Sclerosis "I have had 8 infusions. They help. I have mild headaches after each one, but a nap fixes that. No issues. I do know that you have to stay in close contact with your doctor, monitor liver function, and take care of yourself."

• Anonymous
• April 7, 2010

For Multiple Sclerosis "I was on Tysabri for about 18 months, and after that, I was on a drug holiday for about one year. I restarted my infusion in March 2010 before the drug holiday. I never experienced any side effects with Tysabri, however, this time around, I had muscle ache, fever, and daily migraine headaches for 10 days so far because I still have the headache. I hope I can tolerate this drug again because during my first trial, I experienced all the positives, i.e., balance, walking, thinking, fatigue improvement. I will give it another two infusions and wait to see if the side effects stop. Otherwise, I may stop the treatment."

• eva...
• January 31, 2018

For Multiple Sclerosis "Changing to Ocrevus in 2 weeks after 12 Tysabri's. I had a relapse around the 9th infusion. My blood came back JC positive (was told negative initially), MRI had increased lesion load. Also found it never lasted the 4 weeks. The pain and fatigue came back about 10 days prior to the next dose initially, but that became longer to the extent I was lucky to have a few good days after the dose."

• Kat...
• April 15, 2009

For Multiple Sclerosis "Have had 12 treatments so far for MS. Have experienced sometimes extreme tiredness following treatments. Have gained about 40 lbs in the past year since starting the treatment with no significant changes in diet or exercise. On the good side, am glad to not be taking daily injections anymore."

• Que...
• Taken for 5 to 10 years
• January 5, 2022

For Multiple Sclerosis "I was diagnosed when I was 29, but I know I've had it since I was 23. After using different therapies for years, I was going downhill fast. I decided to start Tysabri. I just had my 103rd infusion. Not positive for the JC virus yet, which is tested monthly. My liver function is good. And, not only have I not had any relapses, I've also had lesions disappear! I just wanted to share my miracle drug testimony of 8.5 years. I cannot tell you how much it's changed my life! I'm walking again and haven't had any occipital neuralgia. I'm done adding symptoms of MS to my life. I look forward to my cocktails once a month!"

• Bli...
• Taken for 5 to 10 years
• December 4, 2020

For Multiple Sclerosis "Abdominal discomfort, gaseous and irritable stomach, eye allergy, headache, drowsiness, urinary frequency, mental issues. I have been on Tysabri for 7 years, 16 with MS. It keeps me stable for a long, long time. Best treatment in my case. Hope you all are fine."

• Thu...
• Taken for 2 to 5 years
• February 8, 2021

For Multiple Sclerosis "I have been on Tysabri for a couple of years. I see improvement with no new lesions. As for many, the week before the infusion, it is like I crash. I hurt with low energy. I will take this compared to more disability. The brain infection chances are scary, but living life to its full potential is worth the risk."

• Flo...
• November 28, 2019

For Multiple Sclerosis "Copaxone was the first medication for two years, after the 2015 definitive diagnosis of MS, but had horrible injection site side effects and more lesions. The first two infusions I felt good and some of my symptoms had eased since I had a relapse while off meds. The fifth infusion I had chills and fever for a few days, and that hasn’t happened again. The worst side effect experienced is tiredness for several days and sometimes chills. I use a cane from time to time for balance and weakness. I won’t know if Tysabri is working until the February MRI and am hopeful for no new lesions. This medication is better than all the horrible injections. I do get depression after as well, but take a low-dose antidepressant, which has helped very much. I am JC negative. It is good to know after reading reviews that I am not the only one who experiences tiredness after infusions. My neurologist’s PA said she hasn’t heard of anyone with side effects."

• Kat...
• Taken for 2 to 5 years
• May 8, 2024

For Multiple Sclerosis "I’ve been on Tysabri for 3+ years now and it has been a great drug. It has helped me live a more normal life. I’ve had no relapses. I do struggle with spasticity, but it has stayed fairly consistent. Side effects are minor, sometimes a little joint pain and severe fatigue on the day of infusion."

• hen...
• June 1, 2021

For Crohn's Disease, Maintenance "I accepted using Tysabri, then 5 days after infusion, I woke up with my right index finger swollen, tender, and weak. In my eighty years, I've never had any joint issue. X-ray negative. Side effects show 19% of arthralgia with Tysabri, what I have feels more than arthralgia. Sam, board certified in pediatrics and anesthesia, did two different training. I wish I said NO."

• L E...
• Taken for 1 to 2 years
• August 31, 2022

For Multiple Sclerosis "Tysabri has not improved my condition, nor does it claim to, but it has stopped the progression of lesions, and that is something Biogen's scientists should be proud of. I am a person who had a lot of scarring as well as moderate active disease activity when I started. My MRIs have been stable a year on. It appears it does exactly what it is supposed to. I deducted one point only because, in my country, it must be administered from within a hospital, and that can be difficult to navigate."