Natalizumab for Multiple Sclerosis User Reviews (Page 4)
Brand names: Tysabri, Tyruko
Reviews for Natalizumab
- mur...
- Taken for 6 months to 1 year
- April 10, 2017
"I was on Tysabri for 7 months. I think, at first, I would be extremely agitated, tired, and weak. By around month 4, I started getting pain in the top of my right hip. I have never experienced pain so unbelievably intense, if it was even just slightly touched, I would drop to the ground in utter agony. I began to slur my words and became emotionally unstable. Tysabri seems to give me a much larger amount of MS, which is annoying because they told me it had the least side effects and was by far the most effective. Glad to hear it helps other sufferers, though. It's under PBS in Australia, so they would only sting me for $37.50 a treatment."
- MsS...
- March 15, 2014
Natalizumab "After the misery of interferon, Tysabri got me ambulatory again and has kept me walking for ten years."
Frequently asked questions
- Does Tysabri suppress the immune system?
- How long can you take Tysabri for?
- Is Tysabri a form of chemotherapy?
- Does Tysabri cause cancer?
- Don...
- Taken for 10 years or more
- February 26, 2016
Natalizumab "I have been on it before it was released. I was one of the 900 in a blind study that was actually on Tysabri. I couldn't think of how I would be if I didn't take it."
- bab...
- May 22, 2014
Natalizumab "I'm doing well on it. No relapse in years and hope it stays like that!"
Are you taking this medicine?
Your review helps others make informed decisions.- Mer...
- June 25, 2013
Natalizumab "Tysabri seriously changed my life. I went two years on it, I have been one year without it because I have the JC virus, and I'm now going into a flare-up, unfortunately. I really miss the infusions."
- Dal...
- Taken for 5 to 10 years
- September 5, 2014
Natalizumab "The disease-modifying medications had no effect on my Multiple Sclerosis. Tysabri stabilized the progression but saw no improvement."
More FAQ
- What biosimilars have been approved in the United States?
- How to prevent hair loss from Tysabri (natalizumab)?
- Man...
- Taken for 2 to 5 years
- October 30, 2015
Natalizumab "I felt like normal again!"
- jen...
- January 14, 2013
Natalizumab "Makes me tired. New symptoms since I started it, joint pain, depression. May not be continuing this."
- Anonymous
- October 24, 2012
Natalizumab "All good!! Been receiving Tysabri for about 4 years and NO relapse. I was relapsing every 12 months!!"
- Fre...
- Taken for 5 to 10 years
- June 13, 2019
Natalizumab "Been in it (Tysabri) for almost 10 years for MS with no relapses. Restored previous deficits. On an 8-week infusion currently due to JCV status."
- Hey...
- Taken for 1 to 6 months
- April 7, 2013
Natalizumab "Just want to say thank you to Tysabri inventors."
- Dgi...
- December 8, 2008
Natalizumab "I recently had my third infusion, and I always have more energy afterward. My walking and balance also become better. I have no side effects and am very happy."
- Rod...
- June 10, 2010
Natalizumab "I've been on this medication for 4 months, and its effectiveness is unrivaled to Copaxone and/or Rebif previously taken. I have returned mentally and physically to a state prior to diagnosis."
- hey...
- October 21, 2008
Natalizumab "I have had NO side effects from this drug. I like it much more than the others. I have been monitored very well. I would recommend this treatment for Multiple Sclerosis."
- fai...
- June 15, 2011
Natalizumab "The only side effect is extreme fatigue for about a week. It goes away, and then I am quite good the next three weeks. So far, so good."
- Anonymous
- July 27, 2010
Natalizumab "After 4 months, I started seeing improvements in my body. My tremors stopped, and so did my slurred speech."
- sis...
- August 14, 2008
Natalizumab "Still new to the drug, but at least I don't get flu symptoms after dosing."
- oli...
- December 15, 2015
Natalizumab "Unable to move or function any part of my body properly."
- dcl...
- February 16, 2012
Natalizumab "Best treatment I have been on yet."
- Und...
- February 17, 2010
Natalizumab "Tysabri has so far ended my relapses. It has become my wonder infusion!"
- Gre...
- Taken for 2 to 5 years
- December 7, 2019
Natalizumab "I have not had a relapse for 3 years since starting Tysabri."
- pau...
- June 9, 2009
Natalizumab "I have had 22 treatments, and the last one I had in March made me so sick. Going to take my next one 06.10.09, but they make me feel better."
- Kat...
- Taken for 2 to 5 years
- March 18, 2017
Natalizumab "I've been on it for a number of years, and it appears to be helpful."
- Cur...
- Taken for 5 to 10 years
- March 11, 2017
Natalizumab "Tysabri has been wonderful. So thankful."
Are you taking this medicine?
Your review helps others make informed decisions.Learn more about Multiple Sclerosis
Care guides
Symptoms and treatments
Medicine.com guides (external)
More about natalizumab
- Check interactions
- Compare alternatives
- Reviews (102)
- Side effects
- Dosage information
- During pregnancy
- Drug class: selective immunosuppressants
- Breastfeeding
- En español
"I have been taking Tysabri for a decade, and it has been a godsend!!! My MRIs have shown improvement, and the only side effect is that I become tired an hour after the infusion and stay low energy for the rest of that night. The next day, though, I'm full of energy, steady on my feet, and in a great mood! The week before the infusion, I start losing balance again, but that's the whole of it... until this month, when I tested JCV positive for the first time. I hope and pray that my doctor and I can find something that is equally effective and does not pose the same PML risk for JCV+ patients!!"