Naltrexone for Fibromyalgia User Reviews (Page 2)

• Rara
• Taken for 2 to 5 years
• December 24, 2019

"I've been taking LDN (low dose naltrexone) 25mg twice daily, since 2016. for my fibro. It's made a big difference with taking meloxicam too 7.5 MG twice daily. However it's more effective in the mornings. My second daily dose sometimes doesn't work at all, or not as well. Stress, activity, sleep, weather, also are factors. However I'm not on nsaids or opioid. I take Tylenol for arthritis as well in between on bad flare days. I'm very very grateful for naltrexone."

• Memphis
• November 29, 2019

"I was diagnosed with fibromyalgia in 2013. I tried the traditional medications, and none helped, and I suffered from horrible side effects. I stopped medical treatment in 2016 because I was so frustrated with spending money and getting no improvement. In November of this year, at the advice of my primary care doctor, I saw a rheumatologist. He listened and recommended LDN. My pain level dropped tremendously. I suffered from burning, aching pain in my back and legs. I have been on the medication for about 3 weeks. I have not experienced any side effects."

• Sputn...
• November 23, 2019

"Had Fibro since birth. Took over my entire body and mind at the age of 32. Started with 1.5 mg and with a week was up to 4.5. The naltrexone was working like a charm for my fibromyalgia, NO more brain fog, pain diminished by about 60 percent. Started to be able to take care if myself again after being bed ridden for nearly 3 years. The past 5 months I have been experiencing waking after 5 hours of sleep with a burning sensation in the back of my neck and headaches in the sinus areas of my forehead along with a tight rubber band feeling in my head. My spine burns along with upper muscle spasms. Depression has worsened. The pharmacy sent me a different brand of LDN this past month. I question the quality?? Or am I just having a bad relapse from extreme stress and over doing? I've also experienced tingling down the back of my legs along with my rd.3,4and 5th fingers. I'm stumped!?? I'm seeing a Chiropractor Monday to see if this could be coming from my neck and spine.I also have several herniated discs. I should also try another brand of naltrexone and see if that helps."

• Sara
• Taken for 6 months to 1 year
• November 5, 2019

"I started low dose naltrexone (LDN) for fibromyalgia after years of feeling like a lab rat! It is amazing. I no longer feel like I am in a fog; everything is so much clearer. Pain is minimal. I still have an occasional flare but few and far between, mainly when I overdo it. I feel like I have gotten my life back. I do take it in the morning, 4.5mg, because it had been causing insomnia."

• Anonymous
• November 5, 2019

"Hello friends of low dose naltrexone (LDN), I kinda happened upon the research of LDN by truly mere boredom & random web searching. I feel as though my doctor is not familiar with this choice of treatment for fibro and so I was surprised when she actually prescribed it. I did seek the advice of the compilation of research out there for LDN to see it there are better titration schedules. I started 1.5mg for 7 days and honestly only took the first 3 doses over 6 days, so every other day. Then I took dose 4,5,6,& 7 in consecutive nights. Tonight is my first time using to the 3mg dose. I feel it's too soon to truly asses the effectiveness of the drug but I am already noticing a harder time falling asleep on 3mg. It kinda gave me energy so I might try a morning dose. Question though, has anyone got this as an approved method of treatment under their primary health insurance for fibro? I had to pay out of pocket for mine, I'm on MAWD so I have primary ins through my employer & Medicaid as a backup but neither is covering it."

• trouble
• Taken for 1 to 6 months
• October 3, 2019

"up date: today is day 27 on low dose naltrexone and day 14 of the 4.5mg dose, so far things have not improved, getting more aggravated as the days go on, my doctor will not give me anything else for pain or muscle stiffness 30mg a day of flexeril for 10 days did nothing to relieve the muscle tightness and stiffness. His option is aquatics therapy and trigger point injections in the trapezius muscles, I don't want to do the injections, why do something invasive when they could try a different muscle relaxer.. anyway was ordered to stay on the naltrexone for 30 more days and have to talk with the doctor the end of the month. He also said it can take 3 to 8 weeks for it to work we shall see, not keeping my hopes up"

• Peony
• Taken for 1 to 6 months
• October 2, 2019

"Diagnosed 30 years ago with fibro. Pretty miserable. I tried antidepressants, opiates, muscle relaxers, as well as non-medical therapies. For me, the LDN (low-dose naltrexone) gave more energy and less burning pain. It's also much less expensive than Lyrica with fewer side effects."

• Cassa...
• Taken for 1 to 6 months
• September 27, 2019

"I tried LDN was (low dose Naltrexone) in 2018 and 2019 - worked up from .50 to 3.00 mg over 4 months (never got to 4.5) - still got the worsened sleep (bad as it is) and then worse depression, agitation, drier eyes (burning) and mouth, pain still the same and worse in other areas of the body. When I got spontaneous bruising this last week on arms, then thighs, I finally quit yesterday. Improved sleep in one night after quitting. Useless for my situation but enjoyed the weight loss (not worth it this way!)."

• NicaG...
• Taken for less than 1 month
• September 13, 2019

"I was using 1.5mg naltrexone daily for Fibromyalgia and Neuropathy pain. It worked very well for the pain and also improved my mood and feelings of well-being. Side effects I experienced were foot cramps 1-4 hours after taking the pill then it subsided, as well as light insomnia. Unfortunately, I experienced a rare side effect that's not listed here but is listed in medical literature. About a week after taking Low-dose naltrexone (LDN) regularly, little blood spots showed up on my upper arms and a blood vessel in my ear lobe popped. This went away when I stopped taking LDN."

• Ann
• Taken for 1 to 2 years
• August 18, 2019

"Hi. It is very important to titrate VERY SLOWLY to your naltrexone dose for fibromyalgia. I had pills that were 3 milligrams. I divided it up by thirds the first two weeks, then by half the second two weeks. Then divided up by thirds again, taking 2/3 at a time for two weeks until I was on the whole 3 mg dose. I’ve never gone up from there. I had debilitating hip pain due to Hashimoto’s and it is gone or down to a one or two on the pain scale. It was a rough transition. It really messed up my sleep and I’m already an insomniac. I will never go without this medicine. I’m not somebody who likes to take meds. If you had a bad reaction, maybe try a very low dose for a long time and slowly build up. By the way, when I first got it, I tried the whole dose and I was a mess. That’s why I went slow."

• Mamared
• Taken for 1 to 2 years
• July 27, 2019

"I take this for my fibromyalgia at a 4.5mg dose. I had weird night time dreams/sweats, etc., at first, so I switched to taking it in the morning for the rest of the first month. After that, I switched back to taking it at night because I take other medications at that time and struggled to remember my low-dose naltrexone (LDN) in the morning. It doesn’t disturb my sleep anymore, and I wake up refreshed most days. If I know I’m going to have a physically taxing day, I will skip my evening dose and take it first thing in the morning. I’ve found this enables me to go all day without pain or feeling overly tired. I highly suggest people research how the drug works when deciding what time of day to take it, and before giving up on taking it. It took me 3 months to notice improvement, and I’m glad I stuck with taking it. I’ll never go off."

• Pdlgrl
• Taken for less than 1 month
• June 15, 2019

"I was so looking forward to starting Naltrexone for my fibromyalgia and hoping to eventually get off of my steroid, Aleve, azathioprine & gabapentin. But I began to gradually feel worse with joint and muscle pain on the 1.5mg dose. When after 2 weeks increased to 3mg and widespread pain was off the chart, laid in bed at night moaning & crying in pain. I stopped it the next day and have been feeling better. Thinking about restarting at 1mg and taking in daytime instead of pm. So very disappointed...."

• Crcl
• Taken for less than 1 month
• June 8, 2019

"I’ve stop tramadol after 10yrs for my fibromyalgia to start naltrexone this past Monday 6/3/19 and OMG "

• Qlder
• Taken for 2 to 5 years
• June 6, 2019

"I was on the verge of leaving my job and applying for a disability pension when I started LDN (low dose naltrexone) for fibromyalgia. It took a while to get the right dosage that works (I'm now on 6mg) but it has saved my life. It stops the pain, most days the tender points aren't tender at all. I also use 5-HTP at night for sleep and in the morning for mood, D-ribose for energy, and am currently testing acetyl-L-carnitine for energy. Feeling extremely grateful for being virtually cured."

• Anonymous
• Taken for less than 1 month
• April 19, 2019

"After 4 weeks of low dose naltrexone (LDN), it has reduced my fibromyalgia pain from an 8 to about a 2-3. I have fatigue I still struggle with, but it has also given me a boost in energy as well. I am able to keep my full-time job that I almost had to quit and have been able to do more and more outside of work than I was for years. I’ve had fibromyalgia for 4 years and tried many medications, and this is the only one that has helped. I had to go online to finally find a doctor to prescribe it. I currently take 3.0mg and it is absolutely worth a try."

• purpl...
• Taken for 1 to 2 years
• March 16, 2019

"I have suffered with mild/moderate-level neuro-inflammation for over 30 years. This includes severe fatigue, brain fog, heart arrhythmia, visual disturbances, and more. Never in these years has anything helped my ME/CFS as well as low-dose naltrexone. I started at 0.5mg and raised it by 0.5mg every two weeks until I got to 4.5mg/day. 30 minutes after my first dose, my brain fog/headache completely disappeared! Nothing has done that for me before. I share my whole story online, and I recommend LDN (Low-dose naltrexone) - more info for your doctors who would prescribe it on the site LDN researchtrust if you need help figuring it out. I don't tolerate other medicines well, but this has been a lifesaver! Good luck all!"

• Dan
• March 8, 2019

"I got this medication from my doctor after I was telling her the amount of alcohol I was drinking. I always had, when I was drinking or not, extreme restlessness and exhaustion at once. My muscles were hurting, I could sleep 10 hours and was not feeling rested. Could not concentrate very well, had social anxiety, etc. I took 25 mg at night, went to bed and... Wow, I felt like I was high. The pain gone, exhaustion gone, depression gone; everything I described above was nonexistent anymore. I felt like I had helium balloons on my arms and head. Feeling rested after 6 hours of sleep, being awake the whole day... The day feels so long now because I can use every minute. Also, I felt no desire for any drug anymore. I went out with people drinking, drank just mineral water. Impossible for me before the pill. I'm not lying. I also can't believe what happened. I am pure bliss. I was about 10 years like that. Now I'm free. Try this miracle drug! Highly recommended!"

• Beanie
• Taken for 1 to 2 years
• August 15, 2018

"Low-dose naltrexone (LDN) has reduced both my pain and fatigue. It’s made a huge difference to me. I was at the point of giving up work but on LDN I’m able to keep working. Initially I had a few nights of disturbed sleep but now no side effects except the good ones!"

• Lori
• Taken for 5 to 10 years
• May 15, 2018

"This has absolutely been a life changer! I could not live without it."

• goodf...
• Taken for 2 to 5 years
• February 22, 2018

"put my autoimmune condition into remission When from c-react over 200 to 17...life is finally good"

• Tlorene
• Taken for less than 1 month
• February 13, 2018

"So I took my first dose last night, was very excited to start this new med after reading so much good stuff about it. Took my tablet at 9 and went to bed. At 10 I was so ill I wanted to die, vomiting, heart pounding and sweats. Did not go to sleep until 5am. Very disappointed and afraid to try it again."

• sheil...
• Taken for 1 to 6 months
• January 1, 2018

"I'm NORMAL AGAIN!! I feel AMAZING! This medicine is truly a dream come true. I feel so thankful to be offered this THANKS to my pain clinic I went too because the NORMAL doctors would not prescribe it. It's Safe it's changed my life! I'm free of pain!"

• Austin...
• December 14, 2017

"This drug is a miracle drug for me. I'm currently 24. I've been living with fibromyalgia symptoms since I was 20. The very first time I took a single 4.5 mg dose of Naltrexone, I awoke 4 hours later with no pain. It did, and still does, feel like I have a whole new body now. If you have a condition that causes chronic pain, I highly suggest you give low dose Naltrexone a try. Talk to your doctor about it. I can't promise it will help everybody, but for me it has made an incredible difference."

• Steve...
• September 1, 2017

"I was diagnosed with MS in Dec 16. Had the most severe fatigue and leg numbness, didn't sleep for more than a few hours for years. Had extreme heat intolerance too. After just 5-10 min of doing exercise or work, felt like I was going to pass out. All of this combined made me so miserable, I couldn't grasp why I would need to go on. Copaxone seemed to help a little but the injection sites were all like a swarm of bees stung me. Researched Low Dose Naltrexone (LDN) and couldn't believe the reviews. Emailed doc and he wrote a script without a second guess. Take about 3mg every night around 9 pm. Life-changing decision. No bull. Feel better than I have in 10 years. Heat tolerance is about 90% corrected except for a few off days. Energy is much better, and tingling is mostly gone."

• Sangoma
• Taken for 6 months to 1 year
• May 19, 2017

"I have fibromyalgia, Sjögren's syndrome and central pain sensitisation. I started taking Low Dose Naltrexone slowly building up to 4mg but felt it too much as it made me feel agitated. Reduced to 3.5mg which is good for me. Initially straight away I felt more energy and my mood lifted. Helped sjogrens considerably - mouth not so dry. Somewhat reduced pain. Sleep better. I've been on it for 8 month and I get the feeling it's not working as well now. Maybe my body has got use to it and it's not as effective. And I have noticed hoarse voice, memory problems, cramping, waking more often in night, and irritability which I read can be side effects. Thinking I may either reduce or go off all together to see what happens. NZ dollars $59 a month."