Minocycline for Rheumatoid Arthritis User Reviews

• Anonymous
• June 28, 2009

Minocycline "Having suffered from rheumatoid arthritis for more than 20 years, I suffered a whole-body flare 5 years ago severe enough to almost prevent me from walking. Twenty-six days after being put on Minocin by my doctor at Harvard Medical School, I was riding my bicycle 10 miles a day. Minocin is not a 'cure' for rheumatoid arthritis. Whenever I have attempted to get off this drug, the rheumatoid arthritis has come back within 2 months. But as long as I take it, you would never know I have rheumatoid arthritis. Only side effect I've experienced is a grayish-blue tint to my skin on my neck and cheeks."

• Car...
• Taken for 2 to 5 years
• May 28, 2018

"Originally diagnosed as having severe, aggressive RA, I was put on Methotrexate for a year. I hated the way it made me feel, and I freaked when she wanted to put me on either biologics or Plaquenil. I found the Antibiotic Protocol Therapy for Minocycline on the Road Back Foundation and convinced my GP to allow me to go onto it. In 10 months, I was RA-related pain and deformity-free, and in 2 1/2 years, I found a new rheumatologist that did not believe that I really did have severe, aggressive RA - it is that good. You have to start slowly, or you may suffer from a Herxheimer reaction, but I have enjoyed this time without the worst of the RA symptoms. YAY!"

• Roa...
• Taken for 5 to 10 years
• April 13, 2021

"I was diagnosed with RA seven years ago. I have never taken Methotrexate or any other drug, other than minocycline. When I started on minocycline five years ago, my flares stopped after a month or two. While I occasionally feel stiffness, it goes away with walking, yoga, and meditation. I started with 100 mg/day of minocycline, increased it gradually to 200 mg, and for the last three years, I have stayed at 100 mg daily. Many thanks to the foundation for referring me to a rheumatologist open to prescribing oral minocycline to treat RA and experienced in using this drug to modulate the immune system response."

• Che...
• February 7, 2020

"I have RA, OS, and gouty arthritis, and so far, this drug, minocycline, is wonderful! It's helping so much with pain and inflammation—check it out, my RA warrior brothers and sisters, talk to your doctor—at least give it a try. Blessings."

• Som...
• Taken for 2 to 5 years
• May 24, 2020

"I've been using minocycline for two years, and it has diminished the frequency of my RA flare-ups. The flares were pretty intense in my hands, wrists, and big toes, twice a month, lasting a week or so. I still get a flare-up about twice yearly, and my spider veins in my ankle have turned dark, and the arthritis is still there, but I can deal with those issues. So far, it's working for me."

• Nik...
• Taken for 1 to 6 months
• February 10, 2018

"RA diagnosed a year, and I experienced pain in my fingers (some have hard knots), toes, shoulder, hip, & right side of abdomen. My rheumatologist started me out on Celebrex first & then methotrexate. Had to stop both. So what happened next was I stumbled upon Minocin as a relief from RA. I had what I thought to be a small whitehead on my eyelid that was hard & wouldn’t go away. I went to the dermatologist & was prescribed the Minocin 100 mg one every 12 hours. It healed. Around 2 weeks, I noticed, “I’m not hurting.” A few more days & still feeling good. Finally, I decided that the only change I had made was taking the Minocin. No nausea and no widespread pain. I do have pain in my fingers, but it is manageable. I googled it and read there has been success with tetracyclines, but a relatively small amount of sufferers. I must be one and couldn’t be happier. Meanwhile, I’m enjoying all the “todays.”"

• GR2...
• Taken for 6 months to 1 year
• February 13, 2020

"I have been taking minocycline for my RA since mid-July after I met with a rheumatologist who wanted me to take Plaquenil and methotrexate, I freaked out. I was not able to lift my arms up and had feet inflammation. 90% is gone now. I just have knee inflammation under the patella. I hope it all heals 100%-the sooner the better. I started taking 100 mg pulse M W F. Now I can take it M-Thursday. I want to walk and run again. I wish it were faster. Anyone with minocycline RA success, please post your dosage and any guidance so I can beat the rest of this RA."

• Lau...
• Taken for 6 months to 1 year
• June 18, 2022

"I was diagnosed with RA in February 2016 and psoriatic arthritis in September 2021. I tried to naturally manage my RA with diet and eliminating inflammatory foods. It worked for about 4 years, but during the pandemic, I experienced a lot of personal stressors, and my RA gradually got worse to the point of not being able to sleep, get myself dressed, or do the lightest of daily tasks. I refused to take any biologics or DMARDs. They were never a consideration. I researched books on Amazon and purchased The New Arthritis Breakthrough and checked out The Road Back from my local library. Both books talked about using minocycline to treat and potentially cure RA. Many testimonials claimed that minocycline cured them. I can honestly say, the first day I tried minocycline, I got immediate relief. I have been on minocycline for 6 months and feel like I never had RA. I praise God for such a miraculous transformation! I have taken 100 mg twice a day, every day with only initial, minor symptoms."

• Nzn...
• Taken for 2 to 5 years
• November 29, 2020

"GR2020, in reply to your question regarding dosage. My husband was diagnosed with RA in Feb 2016. His RA factor was over 600. Seropositive. He went on Minocycline in October 2016 after he had had bacteremia from Methotrexate. The IV antibiotics he had at that time took away all his RA symptoms for about six weeks, and then they came back. Because he had the bacteremia, the RA doctor sent him to an infectious disease doctor who has been prescribing Minocycline for him ever since. We have mixed up the dosage according to his symptoms. He was also on sulfasalazine for 3 years along with the Mino. He stopped that after he got kidney stones. So he went up to 200 mg every day after he went off the sulfasalazine in August 2019. And then back to alternate days. Pulsing the Minocycline is recommended by the Roadback. He is just now on 100 mg alternate days. Also giving him Rainforest Myco formula alternate days."

• Aus...
• Taken for 6 months to 1 year
• February 5, 2017

"Trialed minocycline for psoriatic arthritis for 10 months, 100 mg twice a day for 3 days a week. It did help my joint pain a little after 2 months but did not go far enough for proper symptom relief, and I decided to discontinue the medicine."

• JSR...
• March 20, 2017

"A week into taking this medication, I was vomiting, couldn't sleep, dizzy, water blisters, falling, sense of daydreaming."