Opsumit for Pulmonary Arterial Hypertension User Reviews
Opsumit has an average rating of 8.2 out of 10 from a total of 10 reviews for the treatment of Pulmonary Arterial Hypertension. 80% of reviewers reported a positive experience, while 20% reported a negative experience.
Reviews for Opsumit
- dont...
- April 25, 2021
"I tried this med for a week and it dam nearly finished me off. My O2 is usually 90-95% with out use of home concentrator or the POC, this stuff knocked me on my butt, knocking it way down to just under 60%. I'm back on on 02 again 24/7. I'm not kidding. You all can have it, more power to you. My life of living for the now is far more important than grasping everything that might possibly give hope. I love my life but I'm not gonna sit around and waiting for someone to die so that I can have a lung or heart transplant or just be downright miserable from the meds."
- Carrie
- Taken for 5 to 10 years
- January 17, 2020
"Have been on Opsumit and Adcirca for 5 years. Best combo ever! My PH was and still is mild! Opsumit has kept me stable and praying it will stay this way for many years. Fantastic med and no side effects from it. I’m so grateful to be on this amazing med."
- Texas
- Taken for less than 1 month
- January 20, 2023
"I took this medication for about a week and started to experience fever-like symptoms. I had bad headaches, my nose was running constantly or I was congested, and I was shivering despite not feeling cold. The medication is also expensive and costs me $11,000 a month."
- Anna...
- Taken for 1 to 2 years
- September 9, 2023
"Opsumit and tadalafil saved my life. However, Opsumit is extremely hard to get, even with a prescription. Insurance keeps delaying, denying or requiring prior authorizations (monthly). I'm assuming the constant battle is because of its cost. I still highly recommend this drug if your Pulmonary Hypertension doctor recommends it."
Are you taking this medicine?
- Nicky
- Taken for 2 to 5 years
- September 11, 2023
"Opsumit has been a staple in my PAH meds since the start. No side effects that I could separate from the disease as a whole to relate to this medication. Heart failure no more and everything is working well. When I first got to the hospital, I could not walk 2 feet."
- jazz
- Taken for 1 to 6 months
- November 3, 2015
"Was able to get around without shortness of breath and start exercising again. Waiting for insurance company to approve it. Very good med"
- Daniela...
- December 9, 2016
"My PAH was 130mmHg, and after 5 months of using Macitentan, my PAH is 70mmHg. I'm feeling much better."
- EEEEE
- Taken for 2 to 5 years
- January 2, 2021
"WOW I can walk from driveway to front door again without being out of breath . I TOTALLY recommend this medicine !"
- Lisa
- Taken for 2 to 5 years
- October 28, 2019
"I'm very satisfied with opsumit, I'm able to walk more than before taking opsumit 2 years ago."
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
Learn more about Pulmonary Arterial Hypertension
Care guides
Medicine.com guides (external)
More about Opsumit (macitentan)
- Check interactions
- Compare alternatives
- Pricing & coupons
- Drug images
- Side effects
- Dosage information
- During pregnancy
- Generic availability
- FDA approval history
- Drug class: agents for pulmonary hypertension
- En español
"I have had so much success with using Opsumit/Tadalafil combo for pulmonary hypertension, I cannot imagine my life without them. I am so scared of being laid off my job and no longer having health insurance! I don't know what I will do if that happens, but Lord help me - the script works very well!"