Venofer for Iron Deficiency Anemia User Reviews (Page 2)

• Nancy
• December 4, 2020

"Had 1 and only 1 treatment I could only walk about 25 steps felt faint collapsed middle of the lobby of clinic ambulance came then I really got scared the men could not pick me up! I had lost all muscle control my body was like a water balloon. I had no control I couldn't hold my head up they couldn't keep my head up it just flopped on my shoulder I was so scared I'd stay that way it took 4 big men to put me in a wheel chair my body flopping like a water balloon once in the Gurnee my legs arms are falling out of the restraints but the worst omg was that I was thinking ok pretty normal but my mouth I was swearing like a drunk sailor, a really bad sailor everybody was laughing but I couldn't stop and I normally only swear when mad I was so scared so scared once at hospital they thought I did drugs. I don't so they put me in the GLASS ROOM I couldn't stop the vulgar language this lasted about 7 hours never ever again."

• Anonymous
• Taken for 1 to 6 months
• March 20, 2023

"I was injected with Venofer in January this year, a day after I delivered my baby. I was told nothing of this drug, so I didn’t want it. They insisted that I get it and since then even now still I have been experiencing terrible headaches, dizziness, muscle aches and joint pain, hives, edema, blurry vision, shortness of breath, excruciating pain around injection sight, and then some. I never experienced any of these symptoms before in my life and now my body is screwed up, I don’t know for how long. Hope it goes away soon."

• Pljd
• Taken for less than 1 month
• April 27, 2022

"I had a 90 min infusion of venofer. I was sent home right after. Within 30 min my legs were on fire, hives, swelling, and I couldn’t walk. Had to go by ambulance to the ER. Got steroid, antihistamine, and fluid. Terrifying. On a side note, my hgb increased by 1"

• Daisy...
• March 21, 2023

"I just finished my last dose of Venofer. I had a total of 5 infusions at the hospital. I was fine after the first one, second and then after the third I felt dizzy and have been dizzy ever since. Almost like my equilibrium is off. Also have had horrible headaches too. My vision is a bit blurry at times too. I feel like it’s hard for me to have a drink of alcohol or wine too. I do believe it’s helped my energy level but also at times I feel my heart racing since starting the drug. I also have had trouble falling asleep. I hope these will all pass soon as I’m now finished with the drug. Nothing happened during the infusions it’s all been a long delayed side affects."

• Mary
• Taken for 1 to 6 months
• January 28, 2023

"I have a disorder which causes me to lose lots of blood. I was given VENOFER and I still have several side effects so why can’t someone be accountable for this. I was not told about any side effects. I have severe headache, I can’t eat without running to bathroom with diarrhea, I had hair loss, I have an awful cough, heart pains, blurred vision, worse bloody nose bleeds, so why can’t something be done."

• Miche...
• Taken for less than 1 month
• February 28, 2021

"My daughter just finished her 5th 200mg dose of Venofer. She completed the 5 doses in 21 days. After the first two doses a slight headache. She drank water and laid down for an hour. The last 3 said she felt fine. We are just waiting now for the 4 weeks for new labs to be taken."

• Badmed
• Taken for less than 1 month
• May 19, 2023

"This medication is terrible! An hour into the infusion I felt like I was going to pass out. Felt nauseous, flushed face, dizzy, and felt like I had a minute to tell the nurse I was about to pass out. They stopped the infusion. The infusion was 2 weeks ago, and my blood pressure has been around 85/65 ever since. I feel so exhausted and tired. The doctor's clinic is aware and clueless. I refused this med and because of the clinic's reaction, I lost trust in the practice. Please if you’re reading ask for a different infusion."

• Flori...
• Taken for 1 to 6 months
• March 21, 2023

"9 am today was my first Venofer IV infusion. I was nervous but the staff was amazing. Almost immediately, I started getting itchy. My arm was covered in red blotches. The infusion stopped, and IV Benedryl was given. Almost immediately a sense of relief. Re-hooked up Venofer and had no reaction. I was continuing to drink fluids throughout treatment. Once in the car, I wasn't driving, I grabbed a granola bar and was asleep before I finished it. Got home, and slept on the couch. Woke up overheating and sweaty. I feel nauseous, restless, and hungry. This was 1 of 6 doses. will be one week apart."

• RL68
• Taken for less than 1 month
• January 7, 2023

"I underwent my first infusion this morning, which took 4.5 hours to complete. Upon leaving the infusion center, I noticed that my urine was very dark. After returning home, I started to feel cold, with chills and body aches. I took a nap and, after getting up, my temperature was 100.2°F. My second infusion is scheduled for two weeks from now, and I will evaluate the situation to determine if I should proceed with another infusion, depending on how quickly these symptoms pass."

• jeniw...
• Taken for less than 1 month
• March 5, 2024

"I’ve had 3 iron infusions of Venofer. First round I had it alongside a steroid. I had no reactions and no side effects. Infusion took a few hours with 30 mins of observation at the end. Not sure what rate it was infused at, but I know the speed really can make a lot of difference. Mine were definitely on the slow side. First one took close to 5 hrs in total. The second and third I didn’t need the steroid and I was out in under 3 hrs. I’m a couple weeks out of number 3, so 5 weeks from the first infusion, and my VO2max is steadily climbing. I feel pretty good overall. Not out of breath as I have been in the past. I can’t tell if my endurance / stamina is greatly improved as I’m on other meds that cause fatigue. But all in all the iron infusions were easy peasy. Only side effect I noted, and not sure if this is normal, but my urine went from clear (well hydrated) to a brown hue by mid infusion. This went away shortly, but thought it was interesting anyway."

• Anemia...
• Taken for 1 to 6 months
• December 15, 2021

"I’m a dialysis patient who is receiving venofer through injection in treatments. I experience a nausea, vomiting sensation as soon as one drop hits my system. It sends a signal to my smell sensors which makes me smell old pancake syrup and then begins to turn my stomach into a violent expulsion machine. If this is a side effect that could be harmful?I would like to know what to do."

• anony...
• Taken for less than 1 month
• March 24, 2023

"In January 2023 I had this iron injector and was told it was what I had in past, but it was not. Within three weeks I had constipation then chest pain, feeling a lump in my throat, shortness of breath, headache, and back pain that won't go away. Is anyone else having these issues?"

• Sheila
• Taken for less than 1 month
• May 15, 2023

"Have had iron infusions in the past every 4 years since having a gastric bypass. I suspected Venofer was not what I was given in the past but was assured it was what I needed and did so reluctantly. Wish I had not! Was given Venofer for an hour and a half. I was not observed for any length of time. Hours later at home chills, sweating, pain in every joint. Back pain and throbbing in my kidneys that lasted a day and a half. A week later I'm still dizzy and have fallen 3 times! Still feel tired and weak. Labs next week to see if I need another infusion. It won't be this!"

• MNic
• Taken for less than 1 month
• November 5, 2021

"Worst experience every. I was fine during infusion. I had the reaction during the observation time. Hands swelled up, vomiting, pains in leg that I couldn't walk. I will never get that again."