Icatibant for Hereditary Angioedema User Reviews

• Coa...
• June 23, 2013

Firazyr (icatibant) "Dealing with Hereditary Angioedema since I've been 12, now 40. This is a God send! Works great for me and my brother, pain and swelling quickly dissipates depending on attack. My sister tried it, but not her favorite due to burning she gets..we haven't experienced anything other that a little redness! This is one small step in helping us deal with this disease. "

• Sun...
• Taken for 5 to 10 years
• August 29, 2022

Firazyr (icatibant) "My first HAE attack was at 10 years old and I'm 66 now. Firazyr has made an amazing improvement in my life. I only use it when the swelling is in or around my neck/throat which is about every 3-4 weeks and it halts the advance of the swelling almost immediately. It does NOT make it go away, but it stops it from getting worse. The swelling that is already there will slowly dissipate. My fear and anxiety levels are greatly reduced knowing I have the Firazyr and I have had 0 ER visits since starting it years ago. It's easy to use and other than a burning sensation during injection I have no side effects. I only wish it had been around when my Dad was alive."

• Swe...
• Taken for 1 to 2 years
• March 30, 2015

Firazyr (icatibant) "I am an unusual case in that I started experiencing attacks before I could walk. I swell more frequently and severely than any other member of my considerably large family. Unfortunately, Firazyr has provided minimal relief. It has slowed the onset of swelling, but did not stop it all together. That being said, I am grateful for any relief I can get during an attack, so I would encourage everyone to try Firazyr to treat their own episodes."

• Anonymous
• Taken for 1 to 6 months
• August 24, 2017

Firazyr (icatibant) "This does not really work. With a throat attack it provides some relief. Even after I have taken the drug with one attack I will still get another attack within an hour of taking the drug. It doesn't stop or reduce swelling in any part of my body especially my face. If I take the shot for one eye it will continue to swell and the other eye begins to swell and that's after a second shot. I'm not sure how well it works for other but for me it is useless."

• Anonymous
• Taken for 6 months to 1 year
• October 4, 2023

"Life-saving drug. Since my doctor discovered it, I used it 3 times during severe AAE attacks instead of going to the ER. Starts working in 20-25 mins. The edema stops growing, and then within 2-3 hours it's gone. If untreated, it would take 24-36 hours for it to be resolved on its own."

• Lou...
• Taken for 2 to 5 years
• May 18, 2023

Firazyr (icatibant) "Getting firazyr for our HAE has been life changing for our family. A swelling that would usually wipe us out for 3-4 days at a time is now avoided by injecting as soon as we feel the swell starting. Other than the horrendous stinging sensation as it goes in, this treatment is amazing."

• Anonymous
• Taken for 1 to 2 years
• December 10, 2012

Firazyr (icatibant) "Firazyr stopped the swelling from HAE and also reduced the swelling within about 45 minutes. The sooner you treat with Firazyr, at the onset of symptoms, the better the result."

• Bob...
• Taken for 5 to 10 years
• April 17, 2019

Firazyr (icatibant) "I am 85 yrs old & have had HAE (Hereditary Angioedema) since I was 13, for me Firazyr is a miracle drug. I wish it was cheaper."

• K D...
• Taken for 1 to 2 years
• August 18, 2020

"Icatibant works great for breakthrough swelling and works the same as name brand."

• Anonymous
• Taken for 5 to 10 years
• October 11, 2023

"I am 89 years old and have used Firazyr for 10 years. I can feel it start to work almost immediately. My mother choked to death from hereditary angioedema. No ER visits anymore."