Ibrutinib for Chronic Lymphocytic Leukemia User Reviews (Page 2)

Brand names: Imbruvica

Ibrutinib has an average rating of 6.8 out of 10 from a total of 52 reviews for the treatment of Chronic Lymphocytic Leukemia. 60% of reviewers reported a positive experience, while 29% reported a negative experience.

Reviews for Ibrutinib

JoeP
Taken for 2 to 5 years
November 12, 2020

"Update of my October 14,2019 comment. I still take the (2) 140 mg Ibrutinib every morning with no additional medication. I still feel great every day. As a matter of fact I feel as if I were 30 and my age is 75. The doctors in the VA see me every 3 months and my kidneys (in stage 3) have not decreased in function. I feel very sad reading some of the results some other people have had. I still have NO side effects."

10 / 10

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Anonymous
Taken for 5 to 10 years
September 25, 2023

Imbruvica (ibrutinib) "It helped my condition immediately. Previously I've had FR and BR treatments. I take it after dinner around 6:30 pm with a full glass of water. My only negative side effects are brittle nails with ridges. I've taken it for 7 years and 9 months. I'm a 71-year-old female with CLL/SLL."

10 / 10

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Tano
Taken for 1 to 6 months
April 25, 2019

"My dad was diagnosed with chronic lymphocytic leukemia (CLL) 6 years ago. 2 month ago switched from chemotherapy to target therapy (ibrutinib). His blood tests like hemoglobin and platelet got better over time and he was happy. But his heart condition got worse over time and 15 days ago he suddenly passed away of heart attack. I guess heart attacks and heart problems is a repetitive theme in patients who consume ibrutinib and CLL My beloved dad :("

1 / 10

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4 Report

Frequently asked questions

50...
Taken for 1 to 6 months
December 9, 2020

"Honestly I felt like I was close to slipping away. My white blood cell count was over 6 times the normal. I no longer had any energy to walk the treadmill. I had gone nearly deaf in one ear and was having trouble breathing at night. I had lost 30 pounds in 6 months. After just 5 days on ibrutinib I started to feel some better. After 5 months on this my white blood cell count is normal. I've gained most of the weight back I lost. My blood pressure did raise 20 points, the only side effect I had."

10 / 10

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Anonymous
Taken for 1 to 6 months
February 2, 2021

Imbruvica (ibrutinib) "After 76 days on Imbruvica (420mg) my prostate gland was swollen to the point where urination was almost impossible and my colon was blocked. Also there was swelling felt in my lungs and heart. At times after taking the tablet I could feel my heart beating against my sternum. The day after I stopped taking the drug the swelling subsided. I no apparent problems existed on the first two lots of the drug (56 days) I attribute the probable cause to a contaminated lot. After three weeks my bodily functions seemed to be back to normal. On the follow-up Pet-Scan no improvement was seen on lymph nodes."

1 / 10

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Are you taking this medicine?

Texmarc
February 1, 2018

"Started treatment at VA in Houston about 6 weeks ago....lymph nodes back to normal in 1st 2-1/2 weeks. 5th week of treatment started feeling flu like symptoms....got worse over next 2 weeks. Visited with Hematologist a few days ago.....dropped from 3 pills daily to one pill daily. I bounced back in one day.....lots of energy and no more body aches/pain. Night and day difference in a very short time span."

8 / 10

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Mike
Taken for 2 to 5 years
August 2, 2021

Imbruvica (ibrutinib) "I've been on it a little over two years after relapsing from FCR in 2014, was in remission till May of 2019. I haven't had much in the way of side effects, mouth sores that can be controlled with mouthwash. My counts are all in the normal range & waiting on the results of an MRI I had for another issue to see what my lymph nodes are looking like."

10 / 10

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More FAQ

Sad
Taken for 2 to 5 years
August 24, 2021

Imbruvica (ibrutinib) "My husband did very well on Imbruvica taking one pill three times a day when he was switched to same dosage once a day within months he had a VF heart attack went on Life support never recovered never had cardiac issues or was told to get a cardiologist high BP and smoked I suspect the med but don't know for sure. My advice is get a cardiologist if you take this medication."

4 / 10

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Ray
Taken for 1 to 6 months
February 22, 2024

Imbruvica (ibrutinib) "Thus far I have done well on Imbruvica. My swollen lymph nodes have been reduced by almost 100%. I am on week 5 and am in the early stages of taking the medication. I have had one mouth sore which cleared up and has not returned. I am fighting a bad chest cough. I see my doctor tomorrow."

10 / 10

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hrae
Taken for 6 months to 1 year
November 5, 2021

"This medication caused my dad to have a heart attack. I hadn't even considered talking about it in review form or on a forum until the commercials for this medication started to air. I also don't want this to be a reason not to try this medication as for my dad it was truly so promising. But I think it is important to know that the side effects are a real potential, and he had them all. Tremendous fatigue, chronic dry mouth, and worst of all, feelings of AFib. His doctor , a nice man of course, felt strongly that he should stick with the medication despite the side effects and that they could treat those side effects separately and also saying that my dad's heart looked normal and to be working fine. My dad knew something wasn't right but trusted his doctor and kept on taking the medication. A few weeks later he had a sudden and major heart attack in the middle of night leading to his passing. My biggest take away is to trust your instincts. Don't suffer the side effects."

1 / 10

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Del
Taken for 5 to 10 years
June 23, 2023

Imbruvica (ibrutinib) "On Imbruvica for almost 7 Years. I had to do 2 cycles of RCHOP first as Imbruvica was a second-line treatment. It was very effective at reducing my tumor load and keeping it away with 420 mg a day. I had side effects that were managed for most of the time. The neuropathy, diarrhea, heart palpitations, and lung damage were the most persistent. Fifteen months of bleeding from the lungs was the reason for stopping Imbruvica."

9 / 10

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irkee
Taken for 2 to 5 years
March 19, 2024

Imbruvica (ibrutinib) "If my mother had had this drug, she wouldn’t have died of CLL 25 years ago. Wonderful drug. Very few side effects. Hard to know what symptom to pin on what (including age). I’ve maintained excellent blood counts, life activity, general well-being for 4 years now. Side effects: blood pressure, red spots under the skin of arms, slight decrease in energy, greater tendency toward bruising/bleeding, recent slight urinary incontinence. 420mg pill/day makes it easy to administer."

10 / 10

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JoeP
Taken for 2 to 5 years
October 4, 2022

"Second update on my CLL condition. Last November I went for my colonoscopy , and when they monitored my heart they found I had a-fib. They consulted my oncologist and he told me to stop taking the (2) 140 mg ibrutinib pills. Since then I've been seeing the oncologist every (6) months and we both realized I am in remission. Still no side effects, I am 76 years old, used to jog for decades and still take power walks daily. JUST FEEL WONDERFUL."

10 / 10

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Jinjari
Taken for 6 months to 1 year
May 13, 2023

Imbruvica (ibrutinib) "I was diagnosed with CLL in 2013. Treated with Rituxan and Bendamustine. Went into remission but CLL returned in 2022. The oncologist prescribed Imbruvica 420 mg daily. My WBC level is now in the normal range. I suffer a great deal from rash and fatigue since my hemoglobin level and red blood cell count are below the normal range."

8 / 10

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rspre...
April 17, 2016

Imbruvica (ibrutinib) "My husband took 3 Imbruvica before bedtime and died from sudden cardiac arrest the next morning."

1 / 10

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50 Report

jim
Taken for 5 to 10 years
April 26, 2024

Imbruvica (ibrutinib) "Using this for a few years now with no side effects so far."

10 / 10

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2 Report

Genicon
Taken for 1 to 6 months
March 25, 2017

Imbruvica (ibrutinib) "Shrunk lymph glands in back of neck first week of taking 3 capsules a day second week swollen glands in armpit are gone minor side effects ."

10 / 10

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28 Report

Poor...
July 7, 2017

Imbruvica (ibrutinib) "My husband took 3 Imbruvica before bedtime and died the next day from Sudden Cardiac Arrest"

1 / 10

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25 Report

Nicole
January 24, 2017

Imbruvica (ibrutinib) "My 78 year old mother was taking this and in her third month she had vomiting one day back and neck pain for 3 days, then passed away in her sleep, Didn't get a chance to lower the dose."

4 / 10

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26 Report

CLL...
Taken for 1 to 6 months
July 23, 2014

"Side effects for me: muscle spasms, mouth ulcers, diarrhea, fatigued, dizziness, itchy skin, sore throat, cramps, insomnia, sun sensitivity, and drowsiness."

7 / 10

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31 Report

Eddie...
October 27, 2016

Imbruvica (ibrutinib) "Medication has effectively arrested my father's CLL. From 140,000 WBC to 5,000 within two months."

9 / 10

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25 Report

BBano
January 3, 2019

Imbruvica (ibrutinib) "My mother has been given thus medicine and when the her dose increased it shut down her internal organs she nearly died. She now gets blood transfusions."

1 / 10

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13 Report

Teresa
February 29, 2016

"Been on IMBRIVUCA 3 weeks. Dramatic shrinkage of cervical nodes. Platelets high increased energy. Lucky Canada health care pays for this or I would be dead."

10 / 10

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15 Report

Simon...
Taken for 2 to 5 years
December 1, 2020

Imbruvica (ibrutinib) "Taking this drug for over 3 years. Thankfully, never had any side effects. It is a lifesaver. Dropped my numbers from 160 to 13."

10 / 10

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6 Report

Tbano
March 14, 2021

Imbruvica (ibrutinib) "Arm sores so bad had to stop using."

1 / 10

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4 Report

Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.