Guselkumab User Reviews & Ratings (Page 3)

• Rob...
• Taken for 2 to 5 years
• March 1, 2024

Guselkumab for Plaque Psoriasis "I’m 42 years old and I’ve had plaque psoriasis since I was a teenager. Not only on my elbows and other common places, but literally all over my body. When I went to a new dermatologist about 6 years ago, I had over 90% coverage on my body. I was miserable and embarrassed to be seen by anyone. My quality of life was suffering a lot due to plaque psoriasis. I was prescribed Otezla and took 2 pills a day. It helped a lot but didn’t clear my skin completely. I took it for 2 years before telling my doctor I wanted to try something else to see if I could get my skin even clearer. 4 years ago, I started Tremfya injections. Within 2 weeks of the first injection, I could see significant improvement in my skin. About a month after the first shot, I had 0% coverage. All signs of psoriasis were completely gone everywhere on my body and have been ever since. For me, Tremfya is a miracle drug. It truly has given me my life and confidence back. I haven’t had any noticeable side effects either."

• Anonymous
• Taken for 1 to 6 months
• January 6, 2024

Guselkumab for Psoriasis "I loved Tremfya at first. I have guttate and scalp psoriasis, and it cleared my scalp so fast. The spots on my body are 99% gone, and now there’s just pigmentation. I've stopped scratching behind my ears and the parts of my body with psoriasis on them. Tremfya has helped clear my skin! However, after the second injection, I noticed I started to gain weight. Not only this, but I started experiencing constipation and harder bowel movements. After my fourth injection, I've gained 10 pounds. My periods are irregular and heavier. I've never had these issues before Tremfya. It sucks because it works so well for my psoriasis, but the side effects are not worth it. I will be getting off of Tremfya and letting my hormones and body readjust. Maybe it’s just not right for me or because I'm 22, I think my body just reacted very badly to it."

• Dav...
• Taken for 1 to 6 months
• December 13, 2021

Guselkumab for Psoriasis "I have a severe case of psoriasis only on the bottoms of my feet. Over the past 30 years, I tried all of the standard topical and oral medications. Nothing worked. I've been doing the Tremfya injections for 20 weeks. I've seen only minimal improvement. I was hoping for better."

• Fi ...
• Taken for 1 to 6 months
• December 16, 2023

Guselkumab for Plaque Psoriasis "Due to my third injection on Xmas day, within 3 hours of my first injection, I could see a difference-fabulous. A week later, my body was free of psoriasis after 43 years-wonderful. I have noticed a tiny bit of psoriasis returning, but due to another injection next week, all's well. We actually went on holiday a few weeks ago. I put my swimming costume on for the first time in years and swam in the sea. I cannot believe my skin! Thanks to Tremfya, I’ve got my life back and I'm loving it. I am wearing clothes I’ve never worn in years. THANK YOU FOR GIVING MY LIFE BACK! CAN'T THANK YOU ENOUGH!"

• DMS...
• Taken for 2 to 5 years
• October 26, 2023

Guselkumab for Psoriasis "I've been taking Tremfya for 2.5 years. Tremfya was the only medication that worked for my psoriasis. I had bad side effects to 5+ others I tried first. Humira actually made it way worse. My doctor said I had the worst case of psoriasis he had ever seen and he has been practicing for 30+ years. After being on Tremfya for 6+ months, I noticed I began to have to urinate more frequently. After a year on Tremfya, it began to become an issue because sometimes I couldn't hold my bladder long enough to make it to the bathroom. This has gotten worse over the past year, to the point where I have pain in my urethra at times. If I take 600-800mg of ibuprofen when this pain starts, it seems to help ease the urethral pain. I talked to my case manager at Janssen and she said a side effect listed is frequent urination. I hate to switch meds because of the difficulty I've had finding something that works, but I no longer qualify for the patient assistance program."

• Ver...
• Taken for 6 months to 1 year
• September 16, 2024

Guselkumab for Psoriatic Arthritis "Tremfya was effective for my skin psoriasis and joint arthritis after four 100 mg injections (2 initial, then 2 over months). Injections are easy to administer, and disposal of the injector is provided for by a self-mailing envelope. Tremfya continues to heal my skin lesions, my lower back, knees, and elbows were cleared. The lesions on both my lower legs above my ankles remain, but smaller in area. No side effects noted so far. However, effectiveness in keeping the joints in my hands, feet, elbows, hips, and knees pain-free is still in question. The week before my injection time, all these joints experience pain and stiffness. A week after the injection, my joint pains disappear, except for my right elbow and left knee. Overall, I am pleased with the effectiveness of Tremfya, but need to find a solution to the pains of my left knee and right elbow."

• JRR...
• Taken for 1 to 6 months
• July 25, 2022

Guselkumab for Plaque Psoriasis "When I started Tremfya, I was 80% covered, and now I’m 100% clear, plus, my arthritic symptoms have stopped. No side effects that I can tell, although I have had a few mild colds that could be related or not. I had about 10 years of remission with just diet/lifestyle change… and then I had children. With each pregnancy, I progressively got worse despite light therapy, etc. I truly feel like I tried “all the things” to stop this horrible disease without medication, but in the end, I am so, so grateful for Tremfya, and I wish I had started sooner."

• JCJ...
• Taken for 1 to 2 years
• March 16, 2022

Guselkumab for Plaque Psoriasis "Switched from Siliq to Tremfya due to insurance issues... not by choice. Tremfya, by far, the worst-performing injection. Psoriasis spots reappeared on my legs, so my derm prescribed a topical. Hadn't used topicals in years. The worst part: upper respiratory infections galore. Four in 2 months, with the most recent this week resulting in an ear infection requiring antibiotics. Head and body aches common with Tremfya as well. Not a good medicine for me at all."

• Lin...
• Taken for 6 months to 1 year
• May 13, 2023

Guselkumab for Plaque Psoriasis "I’ve been using Tremfya for nearly a year and have had wonderful results. Not only has nearly all of my psoriasis disappeared, but I also feel better in general. Interestingly, my hand pain has greatly decreased even though I haven’t been diagnosed with psoriatic arthritis. (I was diagnosed with osteoarthritis by an orthopedic doctor, however.) I do now have a reduced white blood cell count, which returns to normal a month or so after the injection. I never had a low white blood cell count before, except during unrelated radiation treatments. I get a couple of extra colds per year, but it’s worth it for how much better I feel!"

• eil...
• Taken for 1 to 6 months
• June 6, 2024

Guselkumab for Psoriasis "Got bad skin infections, cellulitis with it. When I had to stop the injection for a month, realized that the bad fatigue was caused by Tremfya because as the fatigue decreased, the joint and muscle pains increased, and the scalp and overall psoriasis increased and came back. Need to try another, but at least I know relief is possible. Been suffering too long...decades."

• Phi...
• Taken for 2 to 5 years
• June 28, 2024

Guselkumab for Psoriatic Arthritis "First injection was late Dec 2022, then Jan 2023. By the 3rd injection in late March, 90% of the psoriasis I had was gone (was gone between 6 - 8 weeks). By the June 1 injection, no psoriasis remained. The bulk of joint pain is controlled fairly well until the last 2 weeks of the 8 week period, but for me, the pain is minimal. I was on Enbrel for a few years and the psoriasis never cleared. I recommend this drug, however, the cost is extremely high even with insurance. It is not covered under Medicare."

• eke...
• Taken for 6 months to 1 year
• January 12, 2023

Guselkumab for Psoriasis "I moved from Stelara to Tremfya when the Stelara stopped working after 3 years. 100% clear within 6 weeks. I do feel a bit tired after the injection for a few days, but nothing major. My only complaint is the injection itself. I have no control over the injection, and I'm constantly scared I will lift the injection, causing the needle to retract. Bad design, much preferred the control I had with the Stelara injection."

• BST...
• Taken for 6 months to 1 year
• March 29, 2024

Guselkumab for Psoriatic Arthritis "I have AS and PsA. I have taken Humira and Cosentyx, both giving me many side effects. I had to stop taking both drugs. I started getting Psoriasis on my ear and Rheumy wanted to try me on Tremfya. I have been on Tremfya for a total of 9 months. If I am going to rate the drug, I would say a 7 out of 10. It has really helped the severe stabbing right hip and pelvis pain. I continue to struggle with lower back pain, swollen wrists, and knees. I also am hungry all the time and am having issues with anxiety. Never had either of them before using Tremfya. Do I want to quit the drug? No, the side effects and the stabbing hip/pelvic pain alleviated even for a bit is worth it. Is it a wonder drug? No, I still struggle with pain and the added side effects. But to me, it is worth it. I hope it continues to work. I do have 2-3 days after taking the drug where I feel very ill but it goes away."

• Mel...
• April 16, 2022

Guselkumab for Plaque Psoriasis "I’m about to start my first injection April 20. They are taking me off Otezla because that didn’t work at all. I got psoriasis all over my face and my hands. Now it’s going on my back. I think an allergy makes me get psoriasis. I will keep y’all updated. I really hope Tremfya works for me. I have had this for 7 years. Keep y’all updated."

• T F...
• Taken for 1 to 6 months
• March 8, 2022

Guselkumab for Psoriasis "I have minor-to-mild psoriasis, about 10-12 relatively small but persistent spots for years. Ointments would work temporarily, but I had to constantly reapply, and they would stain my clothes. I tried Otezla too, and that helped a bit at first, but I stopped seeing any benefit after several months. Tremfya has been AMAZING. I finally have my skin back! I love how easy and infrequent I have to take it (and for someone who is afraid of needles, I find the approach very manageable). My skin is clear without any noticeable spots after two months."

• Ter...
• Taken for 2 to 5 years
• February 8, 2024

Guselkumab for Psoriasis "I have been taking Tremfya for close to 3 years and am 95% cleared, since month 2. I get my dose delivered to my home and do my own injection. It's super quick and easy. No issues with it at all. Side effects are I now normally need antibiotics for Strep Throat now. However, pros outweigh the cons."

• doc...
• October 4, 2021

For Psoriatic Arthritis "I have failed on multiple disease-modifying medications, including Cosentyx, Simponi, Humira, and Enbrel. Took my first dose of Tremfya 2 weeks ago. No side effects. 3 days later, I noticed slight improvement in tendon inflammation in my feet. Day 10, marked almost miraculous improvement in foot pain. I could walk for the first time in three months without severe pain."

• Lor...
• Taken for 6 months to 1 year
• February 24, 2022

Guselkumab for Plaque Psoriasis "So happy with Tremfya. Cleared up my skin beautifully except for the palms of my hands. Still dealing with plaque and multiple skin splits. Otherwise, it's the best out there. I've not experienced any side effects. Easy to inject."

• Gar...
• Taken for 6 months to 1 year
• April 17, 2024

Guselkumab for Plaque Psoriasis "I've had moderate to severe psoriasis in my 20s. It started in my mid-30s and cleared me up in the first 2 months. It completely cleared it. I noticed no side effects. After about 8 months of routine use, in the last 2 shots, I waited 3 months between shots. I noticed spots after the first skipped shot and a little more after the second skipped shot. That's 2 shots in the last six months. I think I will try to stick with every three months even though there are spots and slight itching. If it gets worse, I may have to do every other again, and hopefully, it didn't alter the effect. If it stays clear, I'll try to push out for longer, but as of now, it doesn't seem to be the case."

• Lec...
• Taken for 1 to 2 years
• May 23, 2020

For Psoriasis "I have been on Tremfya for 18 months. I have been on lots of biologics including Stelara, Humira, and a few others. None helped. I have severe psoriasis head to foot and also psoriatic arthritis. I was clear after a few months and improved dramatically within 8 weeks. My arthritis is 100 times better than before too. The only side effect is itching, but it goes a few days after the injection. I don't get infections or any other problems. I am so happy with this treatment after suffering since I was 5 and trying multiple drugs throughout my life. I am now 28 and able to go swimming, etc., now with my children!"

• Lyn...
• Taken for 6 months to 1 year
• October 11, 2024

Guselkumab for Psoriatic Arthritis "The first injection seemed to work wonders. I was covered with plaque, and in about 3-5 days, I was 80% clear already. I had been doing very well until this injection #6. I actually broke out quite a bit, especially on my scalp. I had a variety of other side effects also. It’s been 2 weeks, and I’m still having a cough and other problems. Hopefully, the next injection will not be like this one."

• Che...
• Taken for 6 months to 1 year
• January 31, 2024

Guselkumab for Plaque Psoriasis "I was covered head to toe with 3 different types of psoriasis. My doctors and I had tried all topicals on the market, UVB light therapy, and methotrexate to no avail. None of these were a long-term solution for myself. They would bring my psoriasis flush to my skin, but I would still be itchy and sore from all the lesions, and the results would only last a few days before it all flared back up. My skin was getting very thin from the topical steroids. With hesitation, I agreed to try biologics. 1 week after my initial loading dose of Tremfya, I noticed a decrease in the severity of my lesions. By the time I was ready for my second loading dose, my psoriasis had vastly cleared; all I really had left by this time was scalp and nail psoriasis. I do find that 8 weeks is almost too long of a wait for me in between doses. By week 6, I start getting spots again, but they are more like tiny little dots that clear up within a week of my next dose. Tremfya is my 1st biologic, and I am impressed with it."

• Mar...
• Taken for 6 months to 1 year
• April 13, 2025

Guselkumab for Plaque Psoriasis "I was previously on Tremfya, and at the 10th injection, my dermatologist did a biopsy for a small rash spot that would not go away, and it turned out to be squamous cell carcinoma (skin cancer). Upon further self-research and joining a psoriasis support group, other dermatologist doctors in the group confirmed that biologics are well known to cause skin cancer. I also had several UTIs and became allergic to nine different meds that prior to Tremfya I had taken without problems. After Tremfya, I now carry an EpiPen as a result, in which I ended up in the ER for severe allergic reactions."

• Kar...
• Taken for 2 to 5 years
• April 18, 2025

Guselkumab for Psoriasis "Have had great success with this drug. Psoriasis has completely cleared. After stopping taking it for 1 year, it has returned. My concern is that I have kidney damage from UTI and not sure if I should start taking it again?"

• MoS...
• Taken for 6 months to 1 year
• February 4, 2025

For Ulcerative Colitis "I have been using Tremfya for about 6 months now for ulcerative colitis. I noticed improvement after the second infusion. I started then weaning off prednisone after the 3rd infusion, and since the wean, I have noticed that I have more constipation and hemorrhoids. BUT I no longer have diarrhea, stomach pain, gut pain, bleeding, or urgency. I’ll take the constipation and hemorrhoids any day just so I don’t have to run to the bathroom and be in there for 30 minutes while I shop for groceries. What you aren’t told is that the benefit card can run out of funds before the second pen fill, and you may have to pay into your deductible with no help, and this costs me $3000 to fill. Unfortunately, Johnson and Johnson aren’t going to add more funds either, once they are used, I guess that’s it, you’re effed unless your insurance takes care of it. Their Tremfya guides are great, but their card for help at the pharmacy is absolutely horrid. That’s why I put an 8 instead of a 10."