Golimumab for Ankylosing Spondylitis User Reviews (Page 2)
Brand names: Simponi, Simponi Aria
Golimumab has an average rating of 6.7 out of 10 from a total of 37 reviews for the treatment of Ankylosing Spondylitis. 65% of reviewers reported a positive experience, while 24% reported a negative experience.
Reviews for Golimumab
- Amanda...
- October 7, 2016
"I was diagnosed three years ago with Ankylosing spondylitis, I first started with enbrel which I had some success with and the dr ordered me to stop the injectors due to a delayed skin reaction, be decided to go with the remicade infusion which ended up landing me in the hospital 24 hours after infusion due to delayed hypersensitivity reaction involving swelling of my throat, lips, eye lids and hives, after a brief hospital stay I had to take several weeks of steroids and benedryl to bypass the infusion until it was out of my system, I refused treatment for a year until last Thursday I received my first infsuion of simponi , I've had very minimal side effects nausea , dizziness, BUT I am already feeling the difference!! This drug is amazing"
- IanW
- Taken for 2 to 5 years
- January 16, 2023
"Golimumab works very well for me. I have both Ankylosing Spondylitis and Crohn's Disease, which are both very challenging to treat with conventional medicines. With Golimumab I don't need to take any extra medicines to manage both pain and issues such as internal bleeding and the Ankylosing Spondylitis is not causing further damage. I have been using Golimumab for some years now, with no obvious side effects or issues. I have an allergic reaction to Humira, another biologic sometimes used so, really, Golimumab is my only option. Since I am Australian, the cost is covered by Australia's very generous Medicare program. I have read that the monthly cost in the USA is around $US 6,000. I pay $AUD 6.70 a month."
Frequently asked questions
- Trishy
- April 13, 2021
"I am 30, have suffered AS for 6 years, diagnosed 6 months ago. In Australia this medication under the PBS costs $41/mth. At first the meds healed Psoriasis lesions I'd had for 10 yrs but they are coming back. Started on 4 weekly, just been moved to 3 weekly injections. I was needing a top up at the beginning of week 4. My inflammation markers were up to pre Simponi levels. The meds work well to prevent pain in the nights. I am so stiff by day & have a terrible pain in my left hip. When I am on my menstrual cycle my AS comes back for the first few days which is unbearable, reliving what this medicine generally delivers me from. For the 1st 3 months the medication did give me lightheadedness, all day, & balance issues at night. However that has subsided finally. Overall this medication has given me some quality of life back, but I can definitely feel my body seizing, the only relief is at night stopping the constant waking provided it isn't 'that time of the month.'"
- Changy
- January 16, 2010
Simponi (golimumab) "Works good and helps mobility. you can feel it working in 2-3 days. Also the injection process is quick and pain free. Thanks for the second chance at a bearable life."
Are you taking this medicine?
- DanS
- Taken for 2 to 5 years
- January 8, 2020
Simponi (golimumab) "I was skeptical about trying Simponi at first. But i'm glad my rheumatologist encouraged me. It works awesome! Made me realize what "normal" is again. I take 50mg every 3 weeks."
- Thb
- March 21, 2013
Simponi (golimumab) "Simponi has helped my symptoms tremendously. I did not have to take methotrexate along with this. I am very happy to be almost pain free. But I do notice maybe psoriasis beginning on my scalp."
- James
- Taken for 1 to 6 months
- August 22, 2022
Simponi (golimumab) "Severe anxiety and panic attacks after taking Simponi"
- Nick
- Taken for less than 1 month
- August 30, 2019
Simponi (golimumab) "Got severe neurological and optho side effects after 1st injection. Blurred/reduced vision, Dizziness, Unsteadiness, Cognitive problems etc.,"
- John
- Taken for 1 to 6 months
- December 10, 2021
Simponi (golimumab) "Got severe blurred vision and severe respiratory infections after taking Simponi."
- Mahesh
- December 29, 2020
Simponi (golimumab) "I had 3 injection of Simponi but so far no sign of any improvement. I am not sure whether I will take the 4th injection. The review of Simponi is good but unfortunately, it has not worked for me."
- Ado
- Taken for 10 years or more
- August 7, 2023
Simponi (golimumab) "Been on Simponi for over 10 years. It's been excellent. Had no side effects until now when I seem to have developed some eczema. It's been easy to take an injection pen once a month."
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
Learn more about Ankylosing Spondylitis
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Simponi (golimumab) "Treating ankylosing spondylitis - took a long time to diagnose but once I was it explained the pain and stiffness, lethargy I experienced. I used to rest to reduce back pain, which was obviously the wrong thing for this condition. So, along with an increase in activity, I started Simponi Golimumab after suffering for about 7 years with the disease. I have now been on it for over 6 years or so and have had very little to no noticeable issues. However, the change in my sleep, stiffness, and pain is considerable. Even joints not typically associated with AS are improved pain-wise (I have a lot of sporting injuries). I sometimes get some stiffness creeping in at about the 4-week mark as I am due for the next injection (4 weekly). I also take glucosamine supplements for my knees which also improve soreness for me, and coupled with simponi my knees have never been so good. I have often found simponi to actually improve flu/fever/covid symptoms, contrary to instructions about infections."