Skip to main content

Florinef for Postural Orthostatic Tachycardia Syndrome User Reviews

Rating: 8.7

Florinef has an average rating of 8.7 out of 10 from a total of 6 reviews for the off-label treatment of postural orthostatic tachycardia syndrome. 67% of reviewers reported a positive experience, while 0% reported a negative experience.

10
50%
9
17%
8
0%
7
17%
6
17%
5
0%
4
0%
3
0%
2
0%
1
0%
  • Jay...
  • Taken for 6 months to 1 year
  • June 25, 2019

"I have been 'sick' as long as I can remember. I passed out for the first time when I was 14. I've always had the 'I feel like I have the flu, and I'm dying' symptoms. I did not have a good quality of life. I was diagnosed with POTS and NMH (Neurally Mediated Hypotension) in April of 2018 and was immediately put on medicine. The first medicine gave me awful side effects, so I was switched to Fludrocortisone. This medicine has changed my life. I cannot live without feeling like I'm sick all the time. The only times I feel sick now are when I forget my medicine or I go too long between meals. The only negative side effect is that I've gained 14 pounds so far, which sucks, but it's better than the alternative."

10 / 10
Was this helpful?YesNo
66 Report
  • A j...
  • Taken for 5 to 10 years
  • May 2, 2023

"I have been taking fludrocortisone for about 9 years. It is helping me a lot. I have episodes about once every 2 months, sometimes once a month. The way to describe how I look is that I look drunk. Once the episode is finished, I'm in bed for 2 days. I just need to lay down flat."

10 / 10
Was this helpful?YesNo
13 Report
  • POT...
  • June 25, 2015

"I started taking Florinef a few months ago, and while I haven't noticed a difference, I believe it is keeping my symptoms from progressing. Before I went on it, my body was on a downward fall, but as soon as I started taking it, everything was stable. It has made me gain about 5-10 pounds of water weight, but it's not too bad. This drug, along with my other medicine, allows me to live my life better."

7 / 10
Was this helpful?YesNo
42 Report
  • sim...
  • December 20, 2009

"I developed a rash, and after testing at the NY Medical College and Vanderbilt Center for Dysautonomia, we found my blood volume was not low (often the case with POTS patients) and the mechanism that Florinef acts upon."

6 / 10
Was this helpful?YesNo
34 Report
  • Kim...
  • Taken for 1 to 6 months
  • September 5, 2014

"Florinef has helped me out quite a bit. I'm not cured, but am better. I can walk up minor inclines without any problem. I am able to be up and active for longer periods of time."

9 / 10
Was this helpful?YesNo
42 Report
  • Anonymous
  • August 10, 2010

"I have taken this medicine along with Toprol-XL for a few years, and it has helped a lot! I think this medicine paired with Toprol-XL is great!"

10 / 10
Was this helpful?YesNo
32 Report

Are you taking this medicine?

Your review helps others make informed decisions.
Write a review
Reviews may be edited to correct grammar/spelling or remove inappropriate content. Reviews appearing to come from parties with a vested interest are not published. This information is not intended to endorse any medication and should not replace the expertise and judgment of healthcare professionals.