Gilenya for Multiple Sclerosis User Reviews (Page 4)
Gilenya has an average rating of 7.1 out of 10 from a total of 94 reviews for the treatment of Multiple Sclerosis. 59% of reviewers reported a positive experience, while 18% reported a negative experience.
Reviews for Gilenya
- Great...
- Taken for 1 to 2 years
- April 2, 2024
"I, like many, really hesitated starting on treatment when I was diagnosed 2 years ago. I tried 6 months of alternative therapy but felt pretty awful with symptoms and my check up MRI showed more lesions. With two kids under 5 to look after, I sucked it up and went on the Gilenya as recommended by my neurologist. The hospital admission to get started was uneventful and I drove home fine. Then I felt like total crap for about 2-3 weeks as my body adjusted to the drug. Then my symptoms and side effects (dizziness, nausea, headache) started to resolve! My latest MRI showed no new lesions! I am back riding my horse, trail running, and chasing my two kiddies around. I still get some mild symptoms sometimes but overall feel really happy on this drug. Note - I was happy to only have two kids, but definitely a consideration if you haven't completed your family."
- Joce
- Taken for 5 to 10 years
- November 1, 2021
"Anyone loves the idea of taking a pill vs. giving themselves a shot. I have really enjoyed the ease of taking my medication as a pill, however I have developed recurrent sinus infections over the course of 6 years. It has gotten progressively worse and is affecting my excessive absences from my job, which is undesirable. Looking into an alternative medication. Have previously been on Copaxone and Avonex. Overall I would say that this has helped with my lesions in my brain and spinal cord. There have been new ones and some have gotten smaller."
Frequently asked questions
- Gilenya vs Tecfidera. How do they compare?
- Can Gilenya cause weight gain?
- Can Gilenya cause high blood pressure?
- Can Gilenya cause headaches?
- Smith
- Taken for 2 to 5 years
- June 13, 2024
"I have been on Gilenya for 3 years and have done well with it. Only major side effect for me has been significant nasal congestion and stuffiness. Learned to live with it. I had my first flare in 3 years."
- Anonymous
- January 20, 2011
"I have been on this medication for a month and I have not experienced one side effect. SO MUCH better than the shots. We will see later if it is as effective as they say it is."
Are you taking this medicine?
- deero...
- Taken for 2 to 5 years
- January 9, 2015
"Gilenya is by far the best medication so far in treating my multiple sclerosis. Easy to take and with few to any side effects. Highly recommend."
- Anonymous
- July 28, 2011
"I have been on Gilenya for 8 weeks and just recently noticed my hair has begun to thin. As I brush, numerous strands fall out. I am a 32-year-old female so this is very concerning."
More FAQ
- Gilenya and the covid-19 vaccine, what should I know?
- What are the new drugs used for multiple sclerosis (MS)?
- How much does Gilenya cost?
- What happens when you stop taking Gilenya?
- Anonymous
- August 3, 2011
"I have been on Gilenya for 3 months now for my Multiple Sclerosis and am very impressed. I have had no side effects."
- Remir...
- September 7, 2015
"Been on Gilenya for 3 months. I haven't seen any improvements! In fact, I think I got worse! But who knows what will happen, injections/pills, whatever, but make it work!!"
- AZSteve
- April 15, 2012
"So far, no problems, except a sore throat. It's only been 4 days. I'll update later, as I'm expecting good things from what I've read."
- Tammy...
- Taken for 5 to 10 years
- May 5, 2017
"After 5 yrs, Gilenya is no longer working for me."
- Marty
- June 21, 2017
"Was on rebif over 10 years, went on Gilenya for trial. Stayed on it after trial ended. Tired, slight headache sometime. Better than taking Rebif. I will take these symptoms any day."
- Mano
- Taken for 1 to 6 months
- July 31, 2019
"I would not recommend Gilenya for MS. It made me worse. I could only take it for 5 months Then hair thinning, heavy period, halted my walking"
- Disgu...
- March 9, 2019
"I would NOT recommend Gilenya to anyone. The side effects are simply atrocious. It can cause such severe fatigue ."
- Anonymous
- Taken for 1 to 6 months
- October 4, 2017
"Hair loss, persistent headache"
- Crystal
- Taken for 6 months to 1 year
- February 12, 2020
"I have been on this medication about 8 months now and have experienced no side effects, I feel a lot better and am able to continue working and doing my everyday life activities."
- Cstokie
- Taken for less than 1 month
- November 20, 2016
"The drug lowered my blood pressure after first dose so I was not able to continue"
- mathg...
- Taken for 6 months to 1 year
- March 13, 2017
"Terrible stomach pains. How long does it last even when I'm off the med."
- Didys...
- Taken for 1 to 2 years
- August 6, 2020
"Gilenya is an awful drug!!!"
- Ms pp
- July 5, 2017
"Stabilized my MS symptoms and make it under control But the medicine already covered by my insurance so far"
- Kpoteet
- Taken for 6 months to 1 year
- November 2, 2017
"I like the convenience of it being a pill. The other medications I've taken for ME have been injections. Problems I'm having are thinning hair & hair loss."
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
Learn more about Multiple Sclerosis
Care guides
Symptoms and treatments
Medicine.com guides (external)
More about Gilenya (fingolimod)
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- Drug images
- Side effects
- Dosage information
- Patient tips
- During pregnancy
- Generic availability
- Support group
- FDA approval history
- Drug class: selective immunosuppressants
- Breastfeeding
- En español
"Was diagnosed on 2004 age 17 started interferon a year after. Couldn't tolerated longer than a year then changed it to another, rebef were only options same case happen then Avonex caused vertigo. I stopped all drugs 9 years then gilenya 2019 still on it :)) its like water drop until now its peaceful inshallah it lasts"