Fingolimod for Multiple Sclerosis User Reviews (Page 4)
Brand names: Gilenya, Tascenso ODT
Fingolimod has an average rating of 7.1 out of 10 from a total of 97 reviews for the treatment of Multiple Sclerosis. 60% of reviewers reported a positive experience, while 18% reported a negative experience.
Reviews for Fingolimod
- Arab
- Taken for 2 to 5 years
- September 7, 2021
Gilenya (fingolimod) "Was diagnosed on 2004 age 17 started interferon a year after. Couldn't tolerated longer than a year then changed it to another, rebef were only options same case happen then Avonex caused vertigo. I stopped all drugs 9 years then gilenya 2019 still on it :)) its like water drop until now its peaceful inshallah it lasts"
- Anonymous
- January 26, 2011
"I have been on this medicine for almost 3 months and must say it has a really big impact on my MS. I have improved. Who improves when having this disease for 10 years. I have had side effects such as nausea, malaise, headache and GI problems but worth it for the benefits."
Frequently asked questions
- Gilenya vs Tecfidera. How do they compare?
- What are the new drugs used for multiple sclerosis (MS)?
- How much does Gilenya cost?
- What happens when you stop taking Gilenya?
- Joce
- Taken for 5 to 10 years
- November 1, 2021
Gilenya (fingolimod) "Anyone loves the idea of taking a pill vs. giving themselves a shot. I have really enjoyed the ease of taking my medication as a pill, however I have developed recurrent sinus infections over the course of 6 years. It has gotten progressively worse and is affecting my excessive absences from my job, which is undesirable. Looking into an alternative medication. Have previously been on Copaxone and Avonex. Overall I would say that this has helped with my lesions in my brain and spinal cord. There have been new ones and some have gotten smaller."
- Moham...
- Taken for 2 to 5 years
- July 5, 2024
"It's the best possible choice. I am taking it just after my disease was diagnosed. No relapse or any side effects in these years. BUT, After three years, my liver enzymes started elevating. I hope my doctor can control them somehow, although I am scared."
Are you taking this medicine?
- Smith
- Taken for 2 to 5 years
- June 13, 2024
Gilenya (fingolimod) "I have been on Gilenya for 3 years and have done well with it. Only major side effect for me has been significant nasal congestion and stuffiness. Learned to live with it. I had my first flare in 3 years."
- Anonymous
- January 20, 2011
Gilenya (fingolimod) "I have been on this medication for a month and I have not experienced one side effect. SO MUCH better than the shots. We will see later if it is as effective as they say it is."
More FAQ
- Does Gilenya suppress the immune system?
- Where is Gilenya manufactured and by whom?
- How long does it take Gilenya to work?
- Does Gilenya cause hair loss?
- deero...
- Taken for 2 to 5 years
- January 9, 2015
Gilenya (fingolimod) "Gilenya is by far the best medication so far in treating my multiple sclerosis. Easy to take and with few to any side effects. Highly recommend."
- Anonymous
- July 28, 2011
Gilenya (fingolimod) "I have been on Gilenya for 8 weeks and just recently noticed my hair has begun to thin. As I brush, numerous strands fall out. I am a 32-year-old female so this is very concerning."
- Anonymous
- August 3, 2011
Gilenya (fingolimod) "I have been on Gilenya for 3 months now for my Multiple Sclerosis and am very impressed. I have had no side effects."
- Remir...
- September 7, 2015
Gilenya (fingolimod) "Been on Gilenya for 3 months, I haven't seen any improvements! In fact I think I got worse! But who knows what will happen, injections/pills whatever but make it work!!"
- AZSteve
- April 15, 2012
Gilenya (fingolimod) "So far, no problems except a sore throught. It's only been 4 days I'll update later as I'm expecting good things from what I've read"
- Tammy...
- Taken for 5 to 10 years
- May 5, 2017
Gilenya (fingolimod) "After 5 yrs Gilenya is no longer working for me"
- Marty
- June 21, 2017
Gilenya (fingolimod) "Was on rebif over 10 years, went on Gilenya for trial. Stayed on it after trial ended. Tired, slight headache sometime. Better than taking Rebif. I will take these symptoms any day."
- Mano
- Taken for 1 to 6 months
- July 31, 2019
Gilenya (fingolimod) "I would not recommend Gilenya for MS. It made me worse. I could only take it for 5 months Then hair thinning, heavy period, halted my walking"
- Disgu...
- March 9, 2019
Gilenya (fingolimod) "I would NOT recommend Gilenya to anyone. The side effects are simply atrocious. It can cause such severe fatigue ."
- Anonymous
- Taken for 1 to 6 months
- October 4, 2017
Gilenya (fingolimod) "Hair loss, persistent headache"
- Crystal
- Taken for 6 months to 1 year
- February 12, 2020
Gilenya (fingolimod) "I have been on this medication about 8 months now and have experienced no side effects, I feel a lot better and am able to continue working and doing my everyday life activities."
- Cstokie
- Taken for less than 1 month
- November 20, 2016
Gilenya (fingolimod) "The drug lowered my blood pressure after first dose so I was not able to continue"
- mathg...
- Taken for 6 months to 1 year
- March 13, 2017
Gilenya (fingolimod) "Terrible stomach pains. How long does it last even when I'm off the med."
- Didys...
- Taken for 1 to 2 years
- August 6, 2020
Gilenya (fingolimod) "Gilenya is an awful drug!!!"
- Ms pp
- July 5, 2017
Gilenya (fingolimod) "Stabilized my MS symptoms and make it under control But the medicine already covered by my insurance so far"
- Kpoteet
- Taken for 6 months to 1 year
- November 2, 2017
Gilenya (fingolimod) "I like the convenience of it being a pill. The other medications I've taken for ME have been injections. Problems I'm having are thinning hair & hair loss."
- dusty...
- January 26, 2011
"1 month on this medication and no side effects. Love not giving myself shots. Will see Doctor in March to see how it is helping. Hoping for the best."
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
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Gilenya (fingolimod) "All the comments I have read are old! I have been on gilenya for about 3 months and it has made me feel better. I just got a call today about my insurance company objecting to my copay card. Starting with next delivery, I have to pay copay up front and Novartis will reimburse me. My copay is $1500! I will try that and see how it goes. I obviously can not afford to foot the bill! It’s interesting that the lady that I spoke with gave me the impression that this was a new development with insurance companies. Since people have recounted the same circumstances, this does not appear to be true. It is what it is and I’ll give reimbursement a shot. I was diagnosed in 2002 and took rebif injections for 8 years. When I was forced to switch neurologists, I was UNDIAGNOSED in 2010 and just really started having issues.... thus the REDIAGNOSIS of MS! I was very happy to learn there was now a pill. I pray it goes smoothly from here on out! We’ll see."