Evolocumab for High Cholesterol User Reviews (Page 5)
Brand names: Repatha
Evolocumab has an average rating of 5.0 out of 10 from a total of 359 reviews for the treatment of High Cholesterol. 38% of reviewers reported a positive experience, while 50% reported a negative experience.
Reviews for Evolocumab
- CJano
- November 9, 2019
Repatha (evolocumab) "Family history of Hypercholesterolemia. 34y/o Male. I've been taking 40mg of crestor for at least 7 years now and the best it does is bring my total cholesterol down to mid 250s. I am in good shape and workout at least three days a week. My cardiologist has been trying to get me to take Repatha for at least two years now. I was worried about all the side effects because I am usually the one getting the side effects. It is frustrating. Reluctantly, I started taking the two week injections over 6 weeks ago. I am blessed to say that I have had little to NO side effects at all other than a stuffy nose every now and then. I feel great. I'm waiting another month or so until I check my cholesterol panel again to give the medication time to work. I'm glad I got the courage and tried it out. Best of luck everyone. Sorry to the people who have had a bad experience. Hope you get well and find an alternative to keep you healthy."
- Cgaston
- May 16, 2021
Repatha (evolocumab) "I started Repatha because statins were causing heartburn, muscle aches, and dry mouth. After first dose, I was OK but after second dose, I had a nosebleed that soaked several paper towels and lasted about 15 minutes. I googled to find out if that is normal and found that nosebleeds are common in women over 60, which I am. I also had constant nose dripping like water and fatigue so bad that I could hardly make it to my mailbox. Some shortness of breath as well. After several unexpected nosebleeds at very inopportune times, I stopped it."
Frequently asked questions
- Praluent vs Repatha: What's the difference?
- What is the difference between Leqvio and Repatha?
- Does Repatha cause weight gain or loss?
- Can you drink alcohol and take Repatha?
- Netta
- Taken for 1 to 2 years
- October 22, 2019
Repatha (evolocumab) "After taking Repatha for a year and a half my cholesterol was lowered dramatically. But I had sinus infections that got worst, respiratory infections and was diagnosed with COPD 1 year ago after taking Repatha faithfully. I have always had sinus problems and seasonal asthma and bronchitis maybe once a year I had to use an inhaler. Since being on Repatha I have had asthma attacks and pneumonia so bad I had to be hospitalized. Exactly 4 times in a year. I never smoked and now I am on 3 inhalers and a nebulizer. I have always had a pneumonia shot every 5 years and never got pneumonia for over 15 years. I am fatigued and have muscle pain. I decided to stop Repatha on my own and see what happens."
- Pop
- Taken for less than 1 month
- December 14, 2019
Repatha (evolocumab) "Took two Repatha injections (over two week period) and then went to ER and spent 4 days in hospital. Two weeks later I am still in severe pain. Lower back, in liver area, feels very sharp and burning pain. Shingle like pain throughout upper body. I thought was having heart attack at one point. Taking pain pill every 4 hours JUST to exist. Terrible, evil drug"
Are you taking this medicine?
- Beth
- Taken for 1 to 6 months
- May 3, 2019
Repatha (evolocumab) "I have had 3 Repatha injections so far. My 3rd injection was on a Friday. That night I woke up with chest pains. I am a heart patient. Have 1 stent. I thought maybe my heart was acting up again. Went to my dr told him. I asked if it could be the Repatha. He said, he really didn't know. Wasn't a lot of info on it yet. He only has 3 patients on it. That weekend still had pinches in my heart and nausea where I vomited. (No it wasn't a heart attack) by Tuesday no more pinches in my heart. I really think it was the Repatha. Scared to take another injection in case it does make me have a heart attack."
- Sandra
- Taken for less than 1 month
- March 5, 2024
Repatha (evolocumab) "Within 24 hours of the first injection, I became ill with what I believed to be an upper respiratory illness or flu. This illness persisted over a week and a half. I had a sore throat, consistent, deep, and terrible cough, lots of phlegm coming up with a green tint plus no energy. I’m due to take the 2nd shot in two days, but still feel very ill. Not sure about taking the second shot if I’m still feeling ill."
More FAQ
- How long should you take Repatha?
- Is Repatha effective without a statin?
- How long do Repatha side effects last?
- RoBoTeq
- Taken for 1 to 2 years
- January 3, 2020
Repatha (evolocumab) "I have been plagued with high cholesterol most of my adult life. I have had three heart attacks resulting in a total of 16 stents in my heart that all doctors attribute to high cholesterol. I had tried every statin drug available that really did little to control my cholesterol but, other than red yeast rice, all had horrific side affects of pain and lack of muscle usage. Rapatha, along with red yeast rice, has reduced my cholesterol to below normal averages. My doctor is ecstatic, which makes me happy to not be subjected to statins. At the most, I have experienced minor local pain temporarily after an injection and on rare occasions a bit of minor nausea for about an hour after an injection. Repatha truly has saved me from misery."
- Michael
- Taken for 1 to 6 months
- March 30, 2024
Repatha (evolocumab) "People keep calling Repatha a statin. It is NOT a statin. Second: People keep talking about multiple issues that high blood sugar causes. It's the high blood sugar, not directly the drug. It warns high blood sugar can be a side effect; hence, you should be checking your blood sugar regularly. Is it worth taking a slow-acting insulin to extend your life? Granted, not a good side effect. It sucks if it happens. But for those who can't tolerate statins, it can be a godsend. So far I'm tolerating it well. Also, keep in mind, people having reactions they feel is the drug's fault are far more likely to come to a site like this and complain than others will praising the drug. Like all drugs, it may be great for many but truly bad for others. Just like statins of which Repatha is not."
- trump...
- Taken for 1 to 6 months
- April 29, 2016
Repatha (evolocumab) "I had a heart attack and stent and have a problems with taking statins. I have taken 4 injections so far. I have stomach cramps , and double over with pain, leg cramps unreal. I can tolerate Crestor 3 days a week. Had check up with my heart Dr and he said go off the Repatha it will lower your numbers but, as it states and so did my heart Dr that there is NO proof it will help your heart. I thought this strange but, as he said it also says that on the pamphlet that comes with it. I am quitting taking it stomach aches and bowel problems are miserable."
- Canuc...
- Taken for 1 to 6 months
- September 9, 2018
Repatha (evolocumab) "I took repatha for 6 weeks and started to feel lethargic. I also had lower back pain and was light headed with bouts of dizziness. After discontinuing repatha it took 6 weeks to start to feel better. Repatha was very effective at reducing my cholesterol but I could not handle the side effects. I just hope that I will eventually feel normal"
- Rex
- Taken for 1 to 6 months
- December 2, 2023
Repatha (evolocumab) "One month after two two-week injections of Repatha, blood test shows great control of LDL and general cholesterol, but a significant rise in A1C, neutropenia, upper respiratory infection, especially in both nostrils responsive to Bacitracin, general muscle fatigue, terrible low mood, and social withdrawal, significant cognitive/psychosocial impairment. Physicians never tell patients what to expect, they just write the prescription and wish you luck."
- Fritz
- Taken for 2 to 5 years
- December 17, 2020
Repatha (evolocumab) "I was prescribed Repatha after trying and not being able to tolerate a multitude of different statins which left me fatigued and with muscle pain. I have been on Repatha for over 3 years and, knock on wood, have not had any issues with it. It has been a great drug. I was surprised to read all the negative reports here, and wondering if it is a self-selecting sample and fails to represent a balanced picture of this medication."
- Lynn
- Taken for 1 to 2 years
- September 26, 2018
Repatha (evolocumab) "I started using in this 5/17. Effects after first taking was very bad. Got very sick like the flu. Wasn’t going to take anymore but I talked to a pharmacist who suggested I give it another try. I couldn’t take statins so this was prescribed. My cholesterol was over 300. Side effects seemed to be not as bad. My cholesterol went to perfect numbers. But now over a year on this my blood platelets have dropped. A lot of bruising. My red blood cells have enlarged and fewer of them. I have stopped taking this drug. Hoping my blood levels can be restored. Have been referred to a hematologists. Do not recommend. Wish I had done more research instead of just listening to my doctors."
- Sandy
- Taken for 1 to 6 months
- June 30, 2018
Repatha (evolocumab) "I am a 71 year old male and in relatively good shape. I was working out and riding my bike 10-15 miles a day. I have chronic high cholesterol (300 overall). I cannot tolerate statins. I started taking Repatha on March 3, 2018. Shortly after the second injection I developed sinus issues (bloody nasal discharge), headaches, muscle/joint pain, muscle weakness, arrhythmia, diarrhea, and severe debilitating back pain. I did not immediately make the correlation with the Repatha injections. I made a appointment with my GP and he took me off Repatha. My last injection was May 13, 2018. The symptoms have improved, but are still present. I only hope the side effects are reversible. The quality of my life has been significantly impacted. I am disappointed. Repatha did lower my cholesterol, but the side effects are hardly worth it. Research this drug before you inject it."
- Take...
- Taken for 6 months to 1 year
- August 31, 2018
Repatha (evolocumab) "I have been on Repatha for about eight months because I can not take statins. I have had some bad side effects. Joint pain, back pain, sinuses continuous drain. Can go to sleep, fatigue bad. High blood sugar. And I feel it has eat my stomach lining out. I can't eat much of anything. I have been off of it 30 days and hope and pray this medicine gets our of my system before 3 months. I will have to see if I can keep my cholesterol down with diet. This stuff feels like it is killing me. Would never recommend it at all.."
- Minip...
- March 8, 2019
Repatha (evolocumab) "My mother took reptha. If you are taking this medication by watch for memory lose, having a hard walking, anything not normal. This medication just about killed my mother. From heart problems to liver. Her memory confusion started mild, along with the walking problems. She went from walking on her on to a cane to walker. She is 3 weeks from last shot and finally she can walk with the walker again and yet she had been really bad last month and half. Thought we where going to loose her. Please be careful with Repatha."
- njboy
- Taken for 1 to 6 months
- August 30, 2017
Repatha (evolocumab) "Took 3 shots or Repatha. OK after first one, but after the 2nd and 3rd I began to feel bad. Had back aches, soreness in hips and knees. Difficulty in climbing stairs. Blood work showed that it did lower my total cholesterol and LDL. However, I feel that this drug is not worth the serious side effects which I experienced."
- shirl...
- October 13, 2022
Repatha (evolocumab) "Repatha is dangerous with muscle, and joint , sinus, yeast infections, runny nose continue every day. The worst is muscle and joint after 6 injections oct. 2022, I quit, I would rather die. this should be reported do not take it Drs. lie to you."
- Steve...
- Taken for 1 to 6 months
- October 21, 2017
Repatha (evolocumab) "I am 69 years old. I have been an athlete all my life and have run over forty thousand miles. I do not tolerate statins due to severe muscle pain. I was walking 6 miles a day prior to taking Repatha. After three shots of Repatha I developed debilitating pain and weakness in my back and right leg. 9 on the pain scale. I still, three weeks later, have difficulty walking. It seems to be improving somewhat with better days followed by a more difficult day. This has had a terrible impact on my quality of life. DO NOT TAKE this drug!"
- Suz
- October 20, 2019
Repatha (evolocumab) "I took Rapatha for high cholesterol I had had a heart attack in 2016 and struggled with statin drugs I ask my doctor about repatha and she said to try it and I did ask about side effects she told me there was none. I wonder why the doctors don't look into the medications that they give people, knowing the other problems people are having with their health. After the shot I immediately felt like my tongue was was swollen but that passed the next day is when the bad side effects started I've been in the bathroom ever since that first shot with diarrhea I've been in the emergency room I have nausea and the chills on and off. I'm a diabetic and it has raise my blood sugar. The thing I wonder about all medications is why don't the doctors know more so they can give you an honest realistic answer about what might happen so that you can make your own decision."
- jhman
- August 11, 2017
Repatha (evolocumab) "Was going in for a heart Cath, put on repatha because I can't take statins. Dose 1, some diarrhea, mild back pain and feeling like a kidney stone was trying to move. Dose 2, same feeling as dose 1, seemed a bit worse, wrist, knees and ankles slightly swollen. Dose 3, Two hours after injection, felt like my teeth were 3 inches tall , lost the use of my legs for 5 hours, joints ache and low back pain, 7 on pain scale, 3 days later, upper right quadrant pain, muscle spasms, hurt to walk, knees and feet felt like they were on fire. Nipples are painful, short of breath and can't get enough sleep, tired all the time. Been to ER, advised to discontinue repatha. Been 45 days, still having severe back pain and very short of breath,"
- Jimmy
- Taken for 1 to 2 years
- March 5, 2024
Repatha (evolocumab) "It works great for what it is intended for, the lowering of bad cholesterol, or LDL. Even with the strictest of diets, I could never get my LDL below 135, which for someone with mild coronary artery disease and PAD, is not nearly low enough to prevent additional arterial calcification. A little over a year of Repatha has my total count to 135 and my LDL at 40. However, I have been beset by a series of injuries (persistent inflamed sesamoid in foot, carpal tunnel syndrome bad enough to require surgery, severe forearm and shoulder pain, occasional weird pains that resolve in weeks (today it's the hip) in the 14 months of Repatha. Plus two colds that morphed into severe sinus infections that have required two rounds of antibiotics to resolve, the last one having just reappeared in my ears so now I have vertigo from it. If I get another upper respiratory infection I will stop Repatha, or I will move on to another medication when one becomes available."
- Hurting
- Taken for 1 to 6 months
- October 25, 2018
Repatha (evolocumab) "The night after the first injection I had lower back muscle spasms for two hours. Every old injury has flared up and the lower back pain is unbearable. I've taken ten injections but this is my last. No one should even attempt to take this medicine as it will ruin your quality of life."
- Slarson
- September 8, 2019
Repatha (evolocumab) "After seven once a month injections I have had significant lower numbers, but have also had increasing itching—especially on my scalp and upper body. Can’t stand it! I have been advised to stop. Not sure yet if it is from repatha. Anyone else have that symptom?"
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
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Repatha (evolocumab) "I have been on Rapatha for 2 months and I have had 4 injections. I am allergic to statins. No side effects at first but eventually I began to feel anxious/nervous. These are issues I have not dealt with in the past, prior to Rapatha, and nothing has changed in my life that might explain these feelings. As I reviewed the formal list of possible side effects I saw nothing listed for feelings of anxiety or nervousness so I decided to give it more time. More time has resulted in no improvement so I googled my issues and found this site. While not as common as side effects with muscle pain and cough/cold like symptoms I have read of some experiences similar to mine. I will be having my cholesterol checked soon. After that I will stop taking Rapatha to see if my anxiety goes away."