Aptiom User Reviews & Ratings

• Luk...
• October 14, 2015

For Seizures "This medicine works well. I think it works better as an add-on, though, than by itself. I took it by itself, 600 mg, and it completely got rid of my seizures. I had some bad side effects, though, which included terrible headaches and lots of sweating. It was unbearable. I went down to 200 mg with another seizure medication (Lamictal) and am currently seizure-free and doing much better. The side effects from Aptiom have completely gone away. If this drug gives you side effects at a high dose, try it as an add-on therapy with a low dose of another medication. Being on two medications, both at low doses, will probably give you fewer side effects. Also, it is very expensive. You can get a little help from the company, though, if you call them."

• Tir...
• Taken for 1 to 6 months
• November 1, 2016

For Seizures "I have been taking 600 mg Aptiom for 3 months, and I cannot function! Dizzy, nervous, and unable to consistently function. I am tired and never want to go anywhere. Now I'm starting Keppra and Aptiom low doses and will see how that works. I'm miserable... Unhappy... and NOT MYSELF! Will keep you posted... 11/1/2016 (in the hospital)"

• TJs...
• Taken for 1 to 6 months
• March 26, 2016

For Seizures "I have been taking Aptiom 800 mg once daily for 2 months. So far, I experience headaches and dizziness, but I know it's the medicine, so I live with it for now, hoping that will all go away. I also take Vimpat 150 mg twice daily, with other problems that may or may not be associated with that medicine. Aptiom is great so far. It controls my Grand Mal seizures better than anything has in 35 years. My family tells me I have turned into Mr. Nice Guy overnight. I'm having a good experience so far."

• Fee...
• Taken for 1 to 6 months
• April 11, 2021

For Epilepsy "At first, I thought this medication was working, but slowly but surely, I realized I was having really extremely bad panic attacks out of nowhere. Then, for the first time ever, I had humongous seizures that were exactly like grand mal seizures, but I was awake, and I couldn't control my seizure. I had at least 20 back to back that I've never had before. I have extreme trembles where I feel them inside my body. It's absolutely insane. My panic attacks are continuous, and now I panic that I'm going to have a panic attack. I'm trying to stop this medicine, but it's like I'm having some type of withdrawal... maybe. I pray that this goes away. This will be my 3rd day off of it, and I cannot stop trembling."

• Dea...
• Taken for less than 1 month
• September 29, 2019

For Seizures "I have been on Aptiom for 8 months now, and it hasn't been a good experience. The neurologist didn't tell me this medication could lower my thyroid. I have hypothyroidism, and this drug has dropped my thyroid levels to an unbelievable level. My thyroid medication was upped, and I had to drop the Aptiom to 400 mg a day. No seizures yet. Another thing I would like to mention is this drug does not mix with a lot of different antibiotics. I am going to ask my neurologist to put me on something different."

• Bix...
• January 18, 2021

For Seizures "I also have been on Aptiom for 2 years for partial seizures. It has been horrible. Besides playing around with my thyroid, it blurs my vision along with extreme insomnia. That's not good for a person who is also bipolar to go with no sleep, as I also suffer with mild psychosis. My doctor has added Epival to control the moods. Time to get off Aptiom. This drug is a person's worst nightmare."

• Rav...
• Taken for 1 to 6 months
• September 1, 2016

For Seizures "I was placed on this medication due to my epilepsy. At first, I didn't notice anything huge, other than I was stuttering more and 'losing words'. Then the intense dizziness and vertigo was hitting me every day. I'd randomly feel like I was underwater and someone was spinning me. Once I made sure my balance was okay, I would have a very difficult time with my thought processes or communicating. This would last a while after the dizzy incidents. I was only on 200 mg once a day. After I spoke with my neurologist, they stated that other patients on this medication have been reporting the same things. I was removed from it immediately. That was about a month and a half ago. The dizzy spells STILL happen a couple times a week."

• Yay...
• Taken for less than 1 month
• April 28, 2016

For Seizures "In about five days, I started feeling like a cloud lifted and clear thinking rolled in. I'm very happy with the Aptiom (800 mg is my dose). So glad I have it. Wish the ACA insurance paid more, as I'm paying $622/90-day supply. Otherwise, it's very effective."

• Not...
• July 6, 2017

For Seizures "I was on Aptiom 800 mg once a day for partial motor seizures. Price was astronomical! My co-pay was over $600 a month. Luckily, I was given 3 months' worth of samples for free. I changed doctors and was told that oxcarbazepine was basically the same as this drug (eslicarbazepine) and my copay was $2.85. I was a little ticked when I was told this. Yes, it is the newest drug on the market, but is it really new? Be sure to ask questions of your doctor. It may save you lots of money. Oh... the initial days I was sick, but after I took it a while, I felt better. No seizures in the 3 months I was on it."

• Mr ...
• December 18, 2017

For Seizures "I take Aptiom as a 2nd-line med, along with Vimpat. I started Aptiom with 400 mg. Side effects of dizziness and loss of balance were fairly bad. After a week, the doctor had me go up to 600 mg. I did that for just 2 days because I could hardly stand up due to the dizziness and loss of balance. Short-term memory problems developed also. I called the doctor and told him how bad I felt, and he moved me down to just 300 mg/day along with Vimpat 800 mg/day. After a couple of days for the meds to adjust, my seizures went away! I've had seizures for over 45 years, but with Aptiom and Vimpat I've had no seizures for 56 days! That's a record for me. The doctor had me scheduled to go up to 800 mg/day eventually, but he decided 300 mg is ok."

• Dan...
• Taken for 2 to 5 years
• October 30, 2020

For Seizures "I have been on Aptiom for 2 years now. The worst thing for me is it causes insomnia badly. Sometimes I don't sleep more than 2 hours a night, if that. My doctors have put me on various meds to help with this, but they only work for about a week and then they stop. I have had 2 seizures in the last month, and I hadn't had any in 13 years. This drug is a nightmare for me."

• Dar...
• Taken for 1 to 6 months
• January 9, 2019

For Seizures "My son has been struggling with complex seizures for 3 years. Being on Lamictal was causing seizures with severe psychosis afterward. He has 22q11 (deletion of a small piece of chromosome 22) and is very drug sensitive. After getting off that Lamictal, he was put on Brivaracetam, which was no better, if not worse. Dr. changed it to Aptiom. He is now happy and not tired all the time. This is a great drug with minimal side effects and no more seizures and psychosis. I hope when upped tomorrow to 400 mg that he will still not have any side effects."

• Anonymous
• Taken for 1 to 6 months
• February 21, 2020

For Epilepsy "I have been on Dilantin for nearly 15 years. Currently, I have been seizure-free for 10. My neurologist put me on Aptiom as he planned to take me off medication altogether. It was fine until I had to double the dosage. The headaches are extreme. There is some random numbness in my extremities. I also have random tremors. The side effects have been scarier than the seizures. I came off of it for weeks and still have the side effects. I think this med is great in a small dosage, but that’s it."

• smi...
• Taken for 1 to 6 months
• February 28, 2018

For Seizures "I've been on many seizure meds and Aptiom is a combo along with my Keppra and Vimpat. Side effects have been minimal like dizziness and nausea at first, but they go away. Now that I'm on 800 mg, my seizures have stopped. Only been a week, but for me that's a great sign!!"

• Jos...
• Taken for 1 to 6 months
• August 26, 2021

For Epilepsy "It's been amazing for me. I was having very frequent focal seizures for about four years. I self-diagnosed the seizures as anxiety (thanks to Dr Google) and never visited a doctor for help. Then, I had a tonic-clonic seizure and ended up hospitalized. After a bunch of tests, my Neurophysiologist diagnosed my epilepsy and put me on 400 mg of Aptiom per day. I haven't had a single seizure (focal or tonic-clonic) since -- it's been about 4 months. Best of all, I have zero side effects. Thus far, it's been miracle drug from me."

• apt...
• Taken for 6 months to 1 year
• August 5, 2023

For Epilepsy "Before, I was struggling against about four types of seizures. Now, I'm only having occasional issues with one. Not only has it narrowed the type of seizures I'm having, it's also spread them out more. Before, I was having severe ones every 3-5 days, then it became 5-7 days, then moderate ones every 7-10 days, then mild ones every 10-14 days. Now, I'm having mild ones every 14-16 days. An excellent medicine once you get it tuned."

• Edd...
• Taken for 1 to 6 months
• April 17, 2020

For Seizures "I am 63 and started having seizures a couple years ago. I was afraid to take medication because of the side effects. Once I started taking Aptiom 600 mg, my seizures stopped. I seem to have short-term memory loss, but not sure if that is the medication. The seizures caused memory loss, and I do feel better now. I am starting to wake up around 5:30 a.m. I'm going to try a lower dosage to see if that helps."

• Lau...
• Taken for 1 to 6 months
• July 27, 2018

For Seizures "I'm very new to seizures, so I don't know what symptoms were seizure-related and which symptoms were medicine-related. I do know that my seizures were mostly focal aware, but I was having dozens a day. They were significantly fewer by the time I titrated to 600 mg. By 800 milligrams, I am nearly seizure-free and am feeling great again!"

• awx...
• Taken for less than 1 month
• August 27, 2018

For Seizures "Been taking it about a week. I was on oxcarbazepine before and Lamictal, but I pretty much hit the dosage ceiling. Alright folks, oxcarbazepine and Aptiom are very similar in mechanism of action in the brain, but my doctor explained (after I brought it up) how he has seen improvements when people switched to Aptiom. He assumes that this is because the half-life of oxcarbazepine is quite short and Aptiom maintains a much more even plasma concentration. And by the way, oxy has all the same side effects, except twice as bad. My current meds: Lamictal: 500 mg, Aptiom: 800 mg."

• epi...
• Taken for 6 months to 1 year
• April 29, 2023

For Epilepsy "A welcome change from previous medicines, which literally made me paranoid and scared of my own reflection. No medicine is perfect, very few are great, and most are just okay. This is one of the few medicines that deserves to be classified as “great”. Once a day? Yes please. Few side effects? Yes and thank you. Took me from frequent grand mal seizures to weekly absence episodes."

• Win...
• Taken for 2 to 5 years
• August 29, 2019

For Epilepsy "This has been the most effective medicine of all the seizure medications I have tried, which has been a lot. I agree that the medicine is extremely expensive, which is a major downside to using it. Still, if it helps, then it helps."

• Jus...
• Taken for 1 to 6 months
• June 1, 2022

For Seizures "My 16 year old son takes Aptiom for epilepsy. Aptiom doesn't seem to help at all. In fact, his seizures have gotten more frequent since he's been on it. Absolutely no side effects but why even take it if it doesn't help him? (if ANYTHING, it shortened the convulsion part of his seizures but not enough of a difference to say for sure)"

• mod...
• October 5, 2016

For Seizures "I have stroke-induced epilepsy. Many of the medications controlled the seizures in the required dosages, but the side effects on my stroke side frequently left me nearly nonfunctional. I was 68 when my neurologist suggested Aptiom as an add-on to Lamictal. The combo still has side effects relating to aphasia and balance, but, with consistent effort, I function really well. I’ve been taking Lamictal 200 mg/Aptiom 400 mg and am still seizure-free after 18 months. I'm on Medicare (think 'doughnut hole') and do not qualify for additional assistance."

• Epi...
• Taken for less than 1 month
• July 18, 2018

For Seizures "It's been 5 years since I've had a seizure. I was on Aptiom before, and it made me feel wonderful, but I'm not feeling like myself now. I feel constantly nauseous and have a constant headache. However, I did find this grant that will help with the payment of Aptiom if you meet the financial requirements. Check it out online."

• Dar...
• Taken for 1 to 6 months
• April 10, 2019

For Epilepsy "The seizure control is great. One big problem with this drug is that it can cause hypothyroidism. My son was hypothyroid before going on this medication and now it has dropped his levels drastically even when he is on thyroid medication. If this doesn't improve with more thyroid medication he will have to stop the Aptiom. I hope this doesn't happen because its the only one he can take."