Promacta User Reviews & Ratings

• Rus...
• September 19, 2011

For Immune Thrombocytopenia "My platelet count was dangerously low. After taking 50 mg Promacta daily, my count was 275 after one month. I have not had any side effects whatsoever. However, I am curious as to why dairy is prohibited for four hours before and after taking medication. The only other negative is the cost. Thank God for insurance help."

• Jes...
• September 18, 2023

For Immune Thrombocytopenia "I've been on this medicine for about 1 year. My platelets are finally up from 1 (yes, I typed 1) to 222! However, my body hurts so bad! My joints, my bones, low back pain, my muscles! Migraines are more frequent, fatigue varies."

• Anonymous
• Taken for 1 to 2 years
• May 28, 2022

For Immune Thrombocytopenia "My last entry dated December 17th, 2021. I am no longer taking Promacta due to it no longer working for me. I was admitted to the VA hospital in Puerto Rico on March 17, 2022, with a platelet count of 2000 ppm. I was released on March 23 with a platelet count of 100,000 ppm. My Promacta was changed from 25 mg every other day to 50 mg every day. The following day, I had a lab appointment for my primary care doctor. That evening, my doctor called, telling me to return to the hospital because my platelets had dropped to 20,000 ppm. When I arrived back at the ER, more blood was drawn, and the results were that my platelets had dropped to 6,000 ppm. I am currently still in the hospital with a platelet count of 49,000 ppm. Other treatments that worked before have also failed me or resulted in slow results. It worked for a while, just no longer."

• Rob...
• Taken for 1 to 2 years
• April 27, 2023

For Immune Thrombocytopenia "I have had a very positive experience with Promact. I have been taking it for over a year with no negative side effects. It took a while to find a dosage that will hold my count around 110 to 120. I am currently taking 50 mg a day."

• sac...
• Taken for less than 1 month
• September 27, 2023

For Immune Thrombocytopenia "I just started taking it 2 weeks ago, so far, I have had bouts of nausea in the middle of the day (no diarrhea). I have had headaches, but I'm prone to headaches anyway, so who knows if this caused them. I take it at night to avoid immediate side effects. I don't know if this is why I don't feel sick until hours later? I went for my blood work on Monday, 2 days ago, and my platelets had stayed up to 152, pretty good for me. Not sure if I will continue, if it keeps working it beats going to get blood work EVERY week, once they are stable, I can go in once a month."

• Pra...
• Taken for less than 1 month
• July 16, 2019

For Immune Thrombocytopenia "I have lupus and ITP, my platelets are in the range of 0-10k. Promacta was the only drug that raised the platelets to 100k. Then, after one month, I had renal failure and lesions in my brain. It didn’t work for lupus, I guess. :("

• Ano...
• Taken for 1 to 2 years
• May 19, 2022

For Immune Thrombocytopenia "Update for December 17, 2021. On January 18, 2022, my platelet count was 158,000 ppm. But on May 17, 2022, I checked into the VA hospital ER because I saw blood in my spit and blood on toilet paper after wiping. I know it's minor, but at the VA ER in Puerto Rico, they took blood samples and a COVID test. After a while, they came back with the results. The COVID test was negative, that's the good news. Platelet count not so good - 2,000 ppm - I'll be here for 5 days. They gave platelets and got my level to 69,000 ppm. Plus, raised my Promacta from 25 mg (which I was taking every other day) to 50 mg, which will be adjusted if needed. For now, I will not change my rating until I see what happens with the new dose. So, I will be adding results at a later date."

• Anonymous
• Taken for 6 months to 1 year
• December 17, 2021

For Immune Thrombocytopenia "Been taking Promacta since the start of January 2021. Started out with 50 mg, which raised my platelet count from 11,000 ppm to 409,000 ppm. After finding the right dosage, the doctors have me taking 25 mg every other day. Last platelet count was 105,000 ppm on December 6th, 2021. I am being treated by the VA."

• Apl...
• May 8, 2019

For Aplastic Anemia "Promacta and Eltrombopag are the same drug. One name is the scientific name, Eltrombopag, and the retail (brand) name is Promacta. There is no difference in the two names, they are the same medicine. Our son did very well with ATG horse, cyclosporine, and Promacta (Eltrombopag). Four years in, he has not received a bone marrow transplant and has only received three blood transfusions ever. He lives a pretty normal life but does monitor his labs often and is still on meds. He did have a slow relapse, and we found that him going back on high-dose cyclosporine twice a day and taking the Promacta (Eltrombopag) helped his labs go back up again (near normal), again avoiding a BMT. If insurance doesn't pay for it, have your doctor advocate first, and if still no, call Novartis or visit their website, as they have options to send this very expensive medicine to you for free."

• Moi...
• Taken for 10 years or more
• May 13, 2021

For Immune Thrombocytopenia "Bloating of stomach, serious thinning and hair loss, blurred vision with dry eyes and dry mouth. The co-pay got too expensive, and I told the doctor I need to switch to another medication for my low platelets."

• sho...
• Taken for 1 to 6 months
• March 21, 2023

For Thrombocytopenia "I have intermediate-risk secondary MDS, but the doctor has prescribed 15 mg Promacta due to chronic low platelet count. After approximately 2 months, I still need platelet transfusions once or twice a week."

• no ...
• December 27, 2017

For Aplastic Anemia "I have been taking Promacta for two months for aplastic anemia and have seen no increase in my hemoglobin count. I have had no significant side effects, but do not think the drug is effective in my case, too bad it's probably chemo for me. The drug is easy to take if you can find the proper time. I take it around 4 a.m. when I first wake up, then try to get some more sleep. Hope it works for you."

• 50M...
• Taken for 2 to 5 years
• February 8, 2013

For Thrombocytopenia "I have been on eltrombopag for two years. I have had no side effects, but my platelet count says about 20 to 30,000. I get treatment through the VA."

• Ano...
• Taken for 1 to 6 months
• April 10, 2017

For Aplastic Anemia "It didn’t cause any side effects, and, more important, I’m not dead. That’s pretty good."

• SAC...
• Taken for 1 to 2 years
• May 3, 2023

For Thrombocytopenia Idiopathic "My platelets have gone from 23 to the high 90s. I felt human again. Just increased to the highest dose. Hoping it works."

• Anonymous
• Taken for 6 months to 1 year
• August 2, 2020

For Thrombocytopenia "I have the same side effects from Promacta as the first reviewer: lesions in the brain, double vision, and dizziness that I lose my balance."

• Anonymous
• Taken for 1 to 6 months
• July 4, 2023

For Thrombocytopenia Idiopathic "Dizziness, extreme fatigue, but platelets are better."

• Ada...
• September 9, 2024

For Thrombocytopenia "I am taking Promacta since 2020 from number 5, slowly moved to 239, the highest. Of course, the numbers all the time are different, but at least Promacta 75 mg keeps my platelet levels in good shape."