Vyvgart for Myasthenia Gravis User Reviews

Vyvgart has an average rating of 8.0 out of 10 from a total of 9 reviews for the treatment of Myasthenia Gravis. 78% of reviewers reported a positive experience, while 11% reported a negative experience.

Vyvgart rating summary

8.0/10 average rating

9 ratings from 9 user reviews.

Compare all 20 medications used in the treatment of Myasthenia Gravis.

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9		33%
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7		11%
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2		11%
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Inland...
Taken for 1 to 6 months
December 22, 2022

"I have had 4 Vyvgart treatments. After the first treatment, the next day had no slurring, no drooping eye, and I could eat without food falling out of my mouth. Each treatment felt better. Been 7 weeks and starting to have issues with speech. It sure was great till now."

9 / 10

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12 Report

walter
Taken for 1 to 2 years
June 5, 2023

"The first 2 cycles made the MG symptoms worse. one month after the second full cycle, I saw improvement and improvement has continued with each cycle. I believe I am as close to being in pre-MG condition as possible. I am currently on 4 weeks on, 8 weeks off, and could possibly have a longer off duration."

9 / 10

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5 Report

Bob...
Taken for 6 months to 1 year
December 24, 2023

"I have been on Vyvanse since Feb 2023. I started with the IV treatment, and now I am getting the Hytruloo treatment. Both forms have helped me get my strength and life back to somewhat normal. I am only at, I would say, 80% of where I used to be before I got MG, but before this medicine, I was probably at 50%. I had problems with the IVs; it took an average of 3 sticks for my veins to hold, so getting the Hytruloo treatment was a blessing for me. Although this shot only lasts for 2 minutes, it does burn quite a bit. We have found that icing the injection site for about 20 minutes is very helpful and greatly reduces the burning pain."

9 / 10

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2 Report

Brenda...
Taken for less than 1 month
May 18, 2023

"As of Tuesday, I received my third infusion. However, this is my first cycle. After the second infusion, I had an adverse effect. I usually experience droopy eyelids, but after the infusion, it totally shut my eye where I was unable to open it. After calling my neurologist, he had to prescribe 20mg of prednisone. This opened my eyelids back up to its normal droopy eyelids. As of today, I have not experienced improvement. I’m keeping hope alive that I will see improvement after I complete a full cycle."

2 / 10

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3 Report

Great...
Taken for 1 to 6 months
January 21, 2024

"Over the last ten years of coping with this disease, I’ve had IVIG, prednisone, mestinon, rituxan, ultomiris, and Soliris. Most gave me some relief. After my second injection of Vyvgart, there was a noticeable difference in MG symptoms. After my fourth injection, I feel free of MG symptoms completely. I’m almost 3 weeks since my last injection and still doing great - speech, weakness, droopy eye, and breathing are great. I had mild headache and backache for a few days after the injection. I am now waiting to see how long it lasts me."

10 / 10

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1 Report

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MGandME
Taken for 1 to 6 months
May 2, 2024

"This Sunday will be my 8th Vyvgart infusion. I’m 4 weeks off, 4 weeks on (receiving it on Sundays). I jumped through so many hoops to get Vyvgart, that I had it in my head I would be up and moving immediately. But my shortness of breath when ambulating was becoming worse. However, thanks to the lab draws done at each treatment, it showed my hemoglobin being critically low. So relieved it wasn’t the myasthenia gravis. Once my hemoglobin returns to normal, I will follow up here with my Vyvgart progress."

7 / 10

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0 Report

Natalia
Taken for 1 to 2 years
April 30, 2024

"First of all, I was diagnosed 30 years ago, and it took me 3 years to get the right diagnosis. Over all these years, I have tried many medications, but the only medication that made me feel like I never had MG is Vyvgart. I know it's not easy to be a slave to a medication because I'm going to be honest, nobody tells you that you are going to be on that treatment forever! Every 50 days, counting from the first dose, you only have like 15 days to rest and then start all over again. I have to say that I asked my doctor to change from the infusion to the injection, and in the meantime, it took about 3 months for approval. It didn't get approved, so I was without the medication for more than 3 months. Without Vyvgart medication, I noticed something very weird, and it was that I started to feel like I got this condition for the first time all over again. It was horrible! I appreciate Vyvgart because it really works for me, but I have to get it every 50 days; if not, I'm going downhill even with Mestinon and Cellcept."

8 / 10

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0 Report

Glene...
Taken for 1 to 6 months
October 25, 2023

"I started Vyvanse on 10/02/2023 and so far, so good. No side effects, well tolerated."

10 / 10

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1 Report

Doc
Taken for 1 to 6 months
March 29, 2024

"On second cycle and see some steady improvement. Lost a little bit of taste, but my appetite is good. Balance has improved, and distance walking has picked up."

8 / 10

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0 Report

Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.