Dupixent for Atopic Dermatitis User Reviews (Page 2)
Reviews for Dupixent
- Ann...
- Taken for 1 to 2 years
- December 20, 2018
"My skin has improved 100% since this drug. I had horrible itching, and topical treatment only made the creepy crawly intense itching worse. I would scratch till there was blood, and my skin oozed, but still, I would itch. I can sleep! It's so worth the side effects! After a year, all of the dry, itchy eye and swollen lids have gone!"
- Sus...
- Taken for 6 months to 1 year
- December 31, 2019
"I was diagnosed about 15 years ago with prurigo nodularis. My current dermatologist labels it as atopic dermatitis. I started using Dupixent in April, after a month, I saw significant results. Enough to stop using Prednisone. Though the injections are painful and leave me with an onsite reaction for almost a week with each injection, I endured it because my itching had stopped. Seven months later, I'm having spots appear, and I am getting itchy again. I will speak to my dermatologist next month about stopping treatment. I also have joint pain all over my body, which may or may not be caused by Dupixent."
Frequently asked questions
- What are the most common skin conditions? (with photos)
- Why do Dupixent injections hurt so much?
- How fast does Dupixent work?
- Why does Dupixent cause eye problems?
- sur...
- Taken for 1 to 2 years
- June 18, 2019
"I started Dupixent in August 2017 to replace the cyclosporine, and it helped cosmetically with my skin but does very little to stop the itch. My AD is severe, and after reading the trials, it was only about as effective as cyclosporine but without the side effects. I scratch throughout the day - not 24/7 but enough to suffer from sleep deprivation and the social stigma of scratching and having skin come off due to how vigorous I scratch. Sheets changed weekly with blood spots from the bleeding."
- Ed ...
- August 15, 2017
"I am a 68-year-old Vietnam veteran that has been exposed to Agent Orange, and I have been plagued with atopic dermatitis for many, many years, and the itching has gotten progressively worse. I was tested recently at NY CPH and found to also have a severe allergy to Ultraviolet B sunlight. I have been on Dupixent for one month, and the results are amazing. I wish that this medication was available 40 years ago so that I did not suffer as I have. Arms, legs, back, and face are all clear, and thankfully, the itching is all but gone. I have experienced minor eye irritation at the outset, but that too has cleared up. Hope is eternal, and I wish that there are no long-term effects from the medication. I too hope that I will not be on long-term maintenance."
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Your review helps others make informed decisions.- Dee...
- Taken for 6 months to 1 year
- September 6, 2018
"I am 38 years old and have had eczema on and off most of my life. It started getting really excruciating about 3 years ago. Sores all over from scratching. Couldn't sleep. Couldn't sweat. Depressed because I didn't want to go out. The flare-ups got so bad that my patients would ask me if I was okay (I'm a nurse, so I have to work through the flare-ups, which were constant). I was put on high doses of oral steroids, antihistamines, even intravenous steroids, and nothing helped. This drug has changed my life. I've been on it 9 months, and my skin is 75 percent clearer. The itching is 90 percent better. I would not want to be without this medication. It is truly a blessing. I wish I could thank everyone who worked on getting this drug approved!"
- Pin...
- Taken for 1 to 6 months
- April 24, 2018
"I have had AD for at least 67 years of my 70 years on this earth. My life as a child was hell because of weeping, medicated baths and teasing by other children. My adult life has also been equally affected by the use of corticosteroids on my skin, which is now permanently affected due to chronic steroids. When my new dermatologist brought up Dupixent about six months ago, I was skeptical and scared. I started March 22. I STOPPED itching in 24 hours. It has been a MIRACLE. Scratching is now due to habit but not itching. My skin has lost redness. I am glad about my success but sad when I read about my fellow ADs who continue to suffer despite Dupixent."
More FAQ
- How does the Dupixent Myway copay card work?
- How effective is Dupixent for Eosinophilic Esophagitis (EOE)?
- Is Dupixent an immunosuppressant?
- Does Dupixent cause weight gain?
- Anonymous
- Taken for less than 1 month
- July 29, 2017
"I am 20 years old, and when I say I have tried anything and everything to calm my skin down from having horrendous eczema flare-ups, I mean it. I have eczema head to toe and have had it my entire life (all year round). I have just taken my first dose after getting the booster (double) shot on Dupixent, and I am amazed with how my skin is! My face has cleared up, and my arms look amazing! I can sleep through the night now! Before this, I would wake up with my bed covered in dead skin I had scratched off, even if I took 3 Benadryl! I would still wake up at night from itching!!!!!"
- Cha...
- August 26, 2018
"I suffer from atopic dermatitis and was on Dupixent for 7 months with no change. It calmed down the itching some, and that's all. 4 months into taking the injections, my joints started to hurt and continued to get worse. The Dr. stopped the Dupixent, and my joints began to feel a little better. So I still suffer from AD with no medicine that helps. Glad for those that it does help."
- SDa...
- Taken for 6 months to 1 year
- March 4, 2019
"My dermatologist suggested I try Dupixent for my severe atopic dermatitis. I was nervous to do injections on myself, but it's easy to get done. It doesn't hurt a lot if you do it correctly. I've been on it for over 6 months. I recently (2-3 weeks) noticed my neck broke out in hive-looking rashes. It's on the front and back of my neck. My eyelids and the skin above my upper lip are red and dry. I continuously moisturize every day multiple times a day, and it doesn't seem to help. Only a steroid shot seemed to help relieve the rash, but it has redeveloped. Dupixent really helped clear me up (22 female), but now I don't know if it's still working or not. I will give it time and see if it goes away."
- Nev...
- Taken for 1 to 2 years
- October 25, 2018
"Had AD since birth (youngest of nine and we all had it). We used to sleep with red bags wrapped around our feet and hands to force the steroid salves into our skin. Day after day, we would go to school with torn-up sheets as bandages on our fingers. Kids never wanted to sit next to me because they thought it was 'catchy.' I’ve been on Dupixent for a year. I do not have a single bloody crack on my hands. My skin is smooth and soft. Even my nails have straightened out. The bad news is that I have severe joint pain. Trying to manage it with Tylenol. Not giving up. Not ever going back to AD. Thank you for giving me life without pain, burning, itching, and embarrassment."
- Nin...
- Taken for 1 to 2 years
- December 29, 2019
"I was put on Dupixent in October 2018 for acute dermatitis on my hands. I had a 2-inch area in the center of each palm that was non-responsive to topicals. After 4 months, my hands were clear. I did not have any side effects. In May, I had a flare covering both palms and the soles of my feet. They are still flared after 8 months, and now I am getting rashes on my back, under my breast, and in my armpits. I should not be getting worse, but obviously, Dupixent is either contributing to the issue or doing nothing to prevent it. And over the last couple of months, the hair shedding hit."
- Mka...
- Taken for less than 1 month
- November 3, 2017
"I am 56 years old and have eczema/Atopic dermatitis since I was 10 months old. Mostly these years, I have been severe. The pain, the discomfort, it was horrible. I was made fun of, I couldn't wear shorts, go swimming, play sports, have cats, or basically eat anything! I have been on every steroid possible, from prednisone for two years straight to all of the topical creams and ointments. My skin is paper thin that if I even bump into a wall, I'm torn up and bleeding and scared. I have had the first 2 injections and 1 more of Dupixent, and I am clear, some little rash left but dang, I just started. I do have eye problems like uveitis, but the risk is definitely worth it. So far, no side effects! (4 weeks). I feel great and want to wear shorts!"
- Ste...
- Taken for less than 1 month
- November 7, 2018
"I am well into my 50s and started suffering diagnosed Atopic Dermatitis. My hands were so bad I couldn't shake hands with anyone. All my fingertips had to be bandaged up. The skin on my fingers and thumbs was so thick my phone at times could not recognize my thumbs if I wanted to text! My palms looked like chemical burns to my skin, they were peeling so badly. I also have this on my feet but not nearly as bad as my hands. Steroid shots would clear this up but only for a few weeks. Topical steroids would help but made my fingertips very sensitive to hot or cold. I will be closing in on my 4th Dupixent injection. I still have the itching, but my skin has really cleared up. Not close to 100%, but I will take this over the awfulness I have been through the past 2 years."
- Unh...
- Taken for 1 to 6 months
- March 3, 2019
"By their own statistics, Dupixent works less than 40% of the time, so it is no surprise that I had zero benefit. But to make things worse, their 'copayment reimbursement' program is a sham. First, they said they 'lost' my first 3 claims and suggested I resubmit them. Then they denied them, saying they were 'too late,' even though the original submissions had been on time. Nothing but excuses and a complete lack of professionalism."
- Dan...
- Taken for 1 to 6 months
- September 4, 2017
"This medication is incredible! I've had allergy and asthma issues since I was a baby, but atopic dermatitis began shortly after giving birth. I tried everything: allergy shots, tanning bed, steroids, and steroid creams. I felt hopeless, and the constant rashes and itching were driving me insane. I saw tremendous improvement within the first week. Now, three months later, my skin is 98% cleared. I'll get the occasional spot, but it clears up quickly and isn't a problem. I pray this medicine continues to work and that many others get the opportunity to try it. It literally has changed my life. Dupixent is amazing!!"
- Go4...
- Taken for less than 1 month
- November 16, 2022
"After the 2nd Dupixent injection, broke out in a rash on legs and small patches on the body. Also, red blotches and skin very hot. My skin doctor took one look and had never seen a reaction this bad, so I discontinued Dupixent immediately. Had high hopes, but Dupixent didn’t work for me. Hopefully, other people will have better results, worth trying to control dermatitis."
- LBa...
- Taken for 1 to 6 months
- November 9, 2019
"My daughter was born with eczema, tried lots of creams, and nothing has worked. As she grew, became a teen, it has got out of control. We heard about the shot and couldn’t wait for it to be approved for kids. She is 15. She noticed not itching within a few weeks, but had big patches on her face, and her neck is covered in redness and flaky. They wanted us to continue with shots, and we did from August to October. We had to stop them. Her neck and face have never been so broken out. Hate it didn’t work. Now on to cyclosporine."
- Kek...
- Taken for 6 months to 1 year
- September 10, 2020
"I have been on Dupixent since October 2019. I am eczema-free until a few weeks ago. I found out I am having a baby, and my derm told me it's not safe. So I have slowly begun to break out, and I am so worried. I don't know what to do."
- deb...
- December 23, 2022
"This drug is awful. And the process. The side effects. It is not a fix. It is a band-aid. The trial is for people to be guinea pigs for something that is not okay. And doctors use it as a way to get kickbacks. I do not recommend."
- Bli...
- July 9, 2017
"I have severe atopic dermatitis, and Dupixent has changed that significantly for me. I've been taking it for about 5 weeks now, and I felt relief from my itching within days of taking the 1st dose. My skin has started to clear, and my confidence is starting to improve. I am super thankful for this drug."
- Tay...
- October 10, 2017
"I am 21 years old and have had eczema my entire life, but it wasn't until I got my tonsils removed when I was 18 that the eczema became severe and spread throughout my entire body. For months, I could find no relief and had open wounds from scratching all over my body. I tried changing my diet, acupuncture, and went to see allergists, and nothing was working. I then went and saw a dermatologist who introduced me to Dupixent after pills and steroid cream didn't fix it. Dupixent was finally approved, and from the moment I started it, my skin cleared up. I've been on it for nearly 4 months and still have clear skin with the occasional small flare-up, but cortisone cream fixes it right away. Can't praise Dupixent enough! Hopefully, it continues to work!"
- Kri...
- Taken for 1 to 6 months
- November 21, 2017
"I’ve been taking Dupixent a little over one month now, and it’s already improving my life. 3-4 days in, I already felt less reactive. 2 weeks in, my hives were gone, and my scalp and back were clear. 3 weeks in, my skin feels soft again in most places, and my hands are significantly less reactive (one of my worst spots). 4 weeks in, I have some facial dryness, one spot on my chest, and still a little reactive spots on my hands (no longer itching me to death). Can’t wait to see what two more months does. I am so thankful for this medicine. It’s a life-changing experience. I’ve suffered severely the last 5 years, as well as my childhood. So pleased to know that I may not have to live in daily misery."
- Nor...
- Taken for 6 months to 1 year
- March 13, 2023
"I was treated for atopic dermatitis for a year before my doctor decided to have me try Dupixent. After a few injections, the rash on my chest suddenly covered my entire body. I am now being treated at MD Anderson for Cutaneous T-Cell Lymphoma (CTCL) Stage IIIa. DO NOT take this drug until you have had numerous blood tests done to rule out undiagnosed CTCL. MD Anderson told me Dupixent is known to worsen CTCL!"
- mur...
- October 18, 2018
"Absolutely, helped me, the drug has improved my life! The problem is with my eyes, weeping, red, inflamed, itchy, etc. Actually, becoming unbearable. (I have been on Dupixent since March 15th, 2018) deciding what to do. (Actually, the Swiss health care may not pay anymore)... interesting, wow people so underestimate this disease... just so, so underestimated how horrible it is for families, etc."
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"I was on Dupixent for a year and one month. I've been on Prednisone 10 mg for 55 years. It cleared up my asthma, eczema, and nasal polyps. I was now down to 5 mg and was going to keep tapering further. However, I was losing my hair and starting to get close to balding. It's confusing, because it affects people differently. I think it will benefit a lot of people. Unfortunately, I have made the decision to stop using it. I don't want to go bald. I understand that it does cause this in some people. Good luck to all."