Daratumumab User Reviews & Ratings

• And...
• Taken for 6 months to 1 year
• November 16, 2019

Daratumumab for Multiple Myeloma "I was diagnosed with MM Sept 04, had BMT Sept 05. Burned through all the proteasome inhibitors by the summer of 2016. We started Darzalex 6 days after it was approved by the FDA, treated for about 9 months. My last dose was January 2017, and I've been in full remission ever since. All counts normal, M spike minimal. This protocol is a miracle for me. I hope it can be for you too. God bless."

• She...
• Taken for 1 to 2 years
• March 31, 2025

Daratumumab for Multiple Myeloma "I have been taking Darzalex Fastpro since May of 2023. I was in remission by mid-July. I am currently taking monthly injections with no side effects, and I am very happy with my recovery. My oncologist watches my lab work closely and believes I will be in remission long term. He firmly believes I will be one of his marathon remission patients with 10 years or more without recurrence. I had a stem cell transplant with my first episode of Multiple Myeloma. I had a port in my chest, lost all my hair, missed so much work that I lost that job, and I was very ill. That experience was not something I might have to repeat! Luckily, I was able to have Darzalex Fastpro, and I'm thrilled with my results! 10/10, highly recommend!"

• Jer...
• Taken for 1 to 2 years
• April 13, 2021

Daratumumab for Multiple Myeloma "Diagnosed with MM eight years ago. On IV Darzalex for almost two years, and it's the best treatment I've had. My hemoglobin is 13, and it never was higher than 11 on Velcade. I've had no ill effects. Revlimid gave me a DVT in my right thigh, and the doctor put me on Xarelto. Xarelto caused me to have bleeders, and my hemoglobin crashed into the 7 to 8 area. After being off Xarelto for two weeks, my hemoglobin is back in the 12 to 13 area."

• Don...
• Taken for 1 to 2 years
• January 25, 2019

For Multiple Myeloma "I am writing this because the only other rating was very negative, and it could influence others with multiple myeloma without hearing another experience. I have been on Darzalex for 1-1/2 years, and it still has my myeloma at trace amounts. My cancer was raging when I started. It is a miracle for me. After the first few months, the infusion is once a month and no other weekly drugs. If your doctor puts you on it, be positive. Be patient. The infusion takes longer at first, and weekly is a bit hard but worked for me, and now once a month is a gift!"

• Dou...
• Taken for 6 months to 1 year
• June 17, 2023

For Multiple Myeloma "I think it's a life-saver in my case. I had a relapse four years ago while on another type of chemotherapy, and it was questionable whether I would make it through. I have no side effects to report while on daratumumab, and my consultant is happy with my progress."

• Ste...
• Taken for 1 to 6 months
• July 19, 2019

For Multiple Myeloma "We are all different. After being treated with various drugs, including Cytoxan, Revlimid, and Velcade, the winner for me is daratumumab. After 3 weeks of weekly IV, my blood ratios were normal. I had very minimal side effects. I gained back 5 pounds. I have gone through the initial weekly IV, which includes Velcade and Dex. I am now on the every third week treatment and will eventually get to once a month."

• Edm...
• Taken for 1 to 6 months
• July 30, 2019

For Multiple Myeloma "After nearly 6 months of Rev/Dex, sleeplessness, blood clot in knees, neuropathy, I began daratumumab once a week, every two weeks, and now once a month. I have my life back. Not sure what's next, but it has been great."

• Kiw...
• July 9, 2023

For Multiple Myeloma "I've been taking Daratumumab for over 18 months, expecting to take it going forward. I've experienced no side effects at all. The MM responded well, I achieved a negative MRD, verified by bone marrow biopsy after 12 months."

• Ice...
• Taken for 1 to 2 years
• July 6, 2024

For Multiple Myeloma "Have been on it, monthly subcutaneous injection with elranatamab (bispecific antibody). The combination has done a very effective job (complete response) for the past 18 months. Had to stop for 4 months due to Covid and then pneumonia. Resumed 2 months ago. Occasional nasal discharge and slight cough, especially in the morning. Don't know if it is related to either or perhaps both drugs. Neuropathy in soles of feet (pre-stem cell transplant induction therapy) from Velcade (bortizimeb) has slightly increased to include my toes. Best counter to that has been physical stimulation of soles of feet with a roller pin and cork ball the size of a golf ball."

• Mur...
• Taken for 6 months to 1 year
• August 12, 2023

For Multiple Myeloma "I believe it is working, but with no input from the doctor, I cannot actually say for certain if it is working. I find that I am having it subcutaneously after having it intravenously, which I find much better because it is much quicker administration. I don't know why I was put on this medication, because I was having chemotherapy, but it is much better because it is much simpler. I don't appear to have any real side effects, so as far as I am concerned, I am quite happy with Daratumumab. I have 1800 milligrams every four weeks."

• Sam...
• Taken for 1 to 2 years
• December 14, 2024

"Daratumumab has worked really well with slowing the progression of my disease; my light chains are within normal range now. As time goes on and I continue treatments, I am experiencing more muscle and joint pain, and it seems my hips tire after just a trip around the grocery store."

• Jac...
• Taken for 6 months to 1 year
• June 6, 2023

For Multiple Myeloma "Good, except side effects are greater than explained: fluid retention days after infusion are greater; nausea is greater; fatigue is greater. I usually sleep 6-10 hours straight after infusion (even now with monthly injections). I have fever and aches (back especially) after infusion, despite pre-meds. It keeps my M-Spike low and my disease progression slow. This is my fourth chemo/CD-38 drug used. I now have to undergo IG-IV infusions as my immune system is shot. I'm still alive, but the side effects are starting to take a toll on me. The prices are ridiculous! People cannot believe injections via a turkey baster syringe into the abdomen. It is not an exaggeration. Cancer is a weird disease."

• str...
• Taken for 6 months to 1 year
• June 24, 2018

For Multiple Myeloma "Worthless. This drug does nothing. I assume the drug company sells to hospitals. We will see how long this stays here. It simply does zero. Don't let the doc sell you on this for this hospital. It is all just for the big bucks."

• Ban...
• Taken for less than 1 month
• April 25, 2019

Daratumumab for Multiple Myeloma "3 days after the first infusion of Darzalex, I was hospitalized for aseptic meningitis. Why is this adverse side effect not mentioned in patient education literature?"

• Wil...
• Taken for 1 to 6 months
• December 1, 2023

Daratumumab for Multiple Myeloma "I'm getting my 9th infusion next week. Biggest problem so far is fatigue and once a week night sweats."

• pam...
• November 14, 2023

For Multiple Myeloma "Has worked very well for me. I have taken it for over 4 years and have been in complete remission for that time. I still feel very well. I have no side effects. It is quite amazing."

• pam...
• November 14, 2023

For Multiple Myeloma "Has worked very well for me. Taken it for over 4 years. In complete remission for that time, still very well. Have no side effects. Quite amazing."

• Nan...
• August 21, 2024

Daratumumab for Multiple Myeloma "I've been getting Darzalex injections for over a year, and my myeloma is staying in check. I feel very thankful and blessed. I have a few mild side effects, but nothing major."

• Mar...
• Taken for less than 1 month
• October 22, 2022

For Multiple Myeloma "Started once a week in October. Had flu-like symptoms, severe back pain. Getting shooting pain all over. Hope this helps control multiple myeloma. Will need to wait and see."

• Anonymous
• Taken for 1 to 6 months
• January 4, 2024

For Multiple Myeloma "Worked very well, minimal side effects and significantly reduced myeloma levels from 5000 plus to under 100. Suffered minor feet tingling"