Cyclosporine for Eczema User Reviews

• Ano...
• Taken for 1 to 2 years
• July 19, 2019

"Cyclosporine gave me my life back. After years of struggling with severe eczema and allergies, which affected my social life, family life, and even my career. Once finding the right dose, I felt like a 'normal person,' and my quality of life increased massively. Although the fact that this is a harsh drug and the side effects do scare me, I can now live a normal life. I have a lot to owe my dermatologist for prescribing me this drug. (UK)"

• Anonymous
• Taken for 2 to 5 years
• November 12, 2020

"Been on cyclosporine for 2 1/2 years now, it’s literally saved my life from severe eczema from jellyfish sting reactions to my body. Started at 300 mg a day, then 350 mg, now at 200 mg, and hopefully in 6 more months I get weaned off slowly. I know the side effects, but to have my life back is worth it. Eczema is pure hell mentally and physically."

• Zoe...
• December 28, 2016

"I have suffered with eczema since being 17, and it was manageable. Since having my second child 14 months ago, it's started as a 50-pence piece size on the back of my neck and has now spread all over my neck, ears, and face flares up. I was put on steroids for 10 every two months before I saw the dermatologist, and she put me on Neoral 200 mg a day. It clears for the first 6 weeks, and then it's back with a vengeance big time, and I am still taking the medication. It no longer works for me now. I have gone back to steroids today because the flare-up is so bad I can't even leave the house."

• Bro...
• August 23, 2019

"After suffering for years with eczema, I started light therapy 3 times a week as well as 200 mg cyclosporine. All was getting better for about 4 months, then it came back with a vengeance. My dermatologist thought it was best to up the dose to 300 mg. No better. So then he started me on mycophenolate 200 mg in the morning and the same at night, as well as 100 mg cyclosporine in the morning and 200 mg at night. Still no better, so he added another 200 mg mycophenolate at lunchtime. Then, oh boy, did I flare up. All my legs and arms were covered. Oh, did I mention I was using tubes and tubes of Elephrat ointment as well? After 6 months of this, I ended up in the ER with superficial blood clots and cellulitis in the arms. 12 days in the hospital as the IV antibiotics were not working. Home again. Then 3 months later, back again for a deep infection in the inner thigh that they had to operate on. Another week in the hospital. I have stopped all meds now."

• Gui...
• Taken for 6 months to 1 year
• March 2, 2022

"Works a dream. Was on it for 1 year, and I had my life back. Pros - cleared eczema - zero itching - I could swim in water without flares - barely had to use moisturizers - minor eczema flares. Cons - caused high blood pressure (gradual over time) - dark urine (caused by constrictions of vessels in kidneys) - hand tremor and headaches (tremor got worse in the last couple weeks of the drug) - tiredness (still able to go to the gym, etc.) - Bloods monthly to make sure liver and kidneys are okay - Gave me gallstones - ended in A&E and required surgery - Raised liver stats. Related to gallstones, NOT A LONG-TERM SOLUTION - Had to stop abruptly, which caused a serious rebound of eczema for about two months. I had to try this before I was prescribed Dupixent. From what I read, Dupixent looks to be safer, but it is expensive. This is great for the short term, but long term it's mentally hard when you are told to stop it. It works so well."

• MIL...
• Taken for 6 months to 1 year
• May 14, 2022

"I have been taking cyclosporine for 6 months, it has been increased to 150 twice a day. My skin is very good, only one small patch on my face now. No more itching, no more feeling embarrassed, and no more feeling like I have no life. Although I have had 2 bad chest infections in the last 3 months. Don't think they will let me stay on it much longer, though."