Cinacalcet User Reviews & Ratings

• Anonymous
• Taken for 1 to 6 months
• May 18, 2012

Cinacalcet for Secondary Hyperparathyroidism "I'm a senior with a low fixed income. I am ever so grateful to the Sensipar assistance program. I have very high calcium levels, and this medicine has cut it in half. I used to get very disoriented, confused, overwhelmed, but now with this medicine, I feel close to normal. I have had a great experience with this medicine and have experienced no side effects."

• lic...
• Taken for 1 to 6 months
• December 15, 2017

Cinacalcet for Primary Hyperparathyroidism "I feel as though I was drugged, sleepy all day. That's all I would do: sleep, throw up, nausea all day. The lowest dose is 30. That's what they have us on, the clinic dose. It's some kind of clinical trial that we are on at a renal clinic. I dislike that medication. The medication has too, too many side effects. Too many people choose surgery over taking an increased dose. It works, but with all those side effects, we are watching that we stay away from foods high in phosphate."

• Hal...
• Taken for 2 to 5 years
• December 21, 2014

Cinacalcet for Secondary Hyperparathyroidism "Sensipar has worked well for me. Five-plus-year dialysis patient. Unfortunately, being forced from private insurance to Medicare Part D with a supplementary Part D private supplemental plan. The cost of Sensipar and its cumulative dollar cost, along with all my other medications, places me into the Part D donut hole almost immediately. The manufacturer’s patient support plan (which was wonderful when I had private insurance) stops when I transfer to Medicare Part D. There appears to be nothing for Medicare Part D patients from manufacturers. I don't understand why, but these are just the facts. The bottom line is that while Sensipar works effectively, it is classified as Tier 3 and is priced prohibitively."

• Ann...
• Taken for less than 1 month
• December 26, 2012

Cinacalcet for Secondary Hyperparathyroidism "I have severe bone pain in my legs and frequent bowel movements up to fifteen times per day. Parathyroid scan showed nothing abnormal. After taking Sensipar only three days, I saw marked improvement. After 28-day trial, pain in the legs is 80% improved (I am a multiply operated spine patient, so did not expect 100%). Bowel movements are more normal and once per day, as they should be. This shows that with just one month of treatment, I do have parathyroid disease that was not picked up on scans. Now I can pursue treatment through surgery."

• Anonymous
• September 14, 2009

Cinacalcet for Secondary Hyperparathyroidism "I experienced severe leg cramps almost immediately upon taking this medication and whatever else it may have been doing for me. I could not tolerate the cramps, which even interfered with my ability to sleep, walk, drive, or climb stairs."

• TFR...
• June 8, 2011

For Secondary Hyperparathyroidism "I've been on cinacalcet for five years, two while on dialysis (I was on dialysis for five and a half years) and three post-kidney transplant. While it does reduce my blood calcium levels, my biggest complaint is tiredness, especially right after I take it, which is with food at dinner. I was once at 90 mg a day, now down to 60 mg, and hoping to reduce to 30 mg because of the terrible tiredness. By the way, post-transplant I've been able to eat high levels of calcium and phosphorus (dairy, nuts, sardines, etc.) and that has enabled me to be able to lower the amount of cinacalcet I take by signaling to the parathyroid that I have adequate amounts of calcium in my blood."

• 327...
• September 10, 2009

Cinacalcet for Secondary Hyperparathyroidism "Seems to lower CA, but the side effects are somewhat hard to deal with. Leg cramps and twitching seem to be the worst of it. But there is only surgery as the other option."

• Mar...
• Taken for 1 to 6 months
• June 29, 2018

Cinacalcet for Secondary Hyperparathyroidism "Pain in legs, knees, and shoulders. Also, too expensive. I ceased use of this drug."

• Spi...
• July 22, 2010

Cinacalcet for Secondary Hyperparathyroidism "I took this drug and had no side effects. On the other hand, it didn't reduce my blood calcium levels."

• Rob...
• September 3, 2015

Cinacalcet for Secondary Hyperparathyroidism "Abnormal dreams and bothersome while taking Sensipar. I have difficulty sleeping. Bad dreams stop and return to normal if I skip the dose."