Carbamazepine for Trigeminal Neuralgia User Reviews (Page 5)
Brand names: Tegretol, Tegretol XR, Carbatrol, Epitol, Equetro
Carbamazepine has an average rating of 7.1 out of 10 from a total of 116 reviews for the treatment of Trigeminal Neuralgia. 59% of reviewers reported a positive experience, while 16% reported a negative experience.
Reviews for Carbamazepine
- Hanny
- Taken for 10 years or more
- March 23, 2022
"My neuro said that it would help because I have MS. So I had a bad episode of TN and started Carbamazepine. Side effects which I try to separate side effects from MS seems to be hard. Because I have with MS gait problems, constipation, dizziness, blurred vision, foggy mind and drowsiness. The one side effect that does come extra with the medication is I have to watch my sodium level. The one thing that is bothersome is I tried changing to other medication and well it was not good. I started at 200mg and now I am at 800mg. I take it at 4 times a day. And don't know why I forget to take it at times. Which when I forget to many times I have a reaction. The benefit of taking carbamazepine I have had a lot of days with no pain."
- Freck...
- Taken for 5 to 10 years
- September 28, 2021
"I have been on Tegretol for almost 8 years after my initial diagnosis with TN. Well, not exactly...first I was on gabapentin and gained 30 pounds in 3 months. I asked for something else and was given this absolute miracle. I also take Topamax, Vicodin and Verapamil and went from being unable to speak or sleep to a normal life. I've been on 600 MG (200 3x a day) and was just increased by 100. I'm feeling hungry like a wolf for the first time on it. I would do anything to survive this, so it's not a criticism. It's just an observation. I still have flares when I am stressed and when there are big weather changes."
- final...
- Taken for less than 1 month
- May 6, 2024
"I am so happy, I have been battling facial pain for three years after an upper molar removal. The doctors and dentists were totally at a loss; they had no idea what was wrong with me. I saw all the specialists, and I would have paid anything to not be in pain; it was debilitating. I can't even describe it, let alone becoming a recluse at home. Finally, an ENT endoscopy appointment, the doctor mentioned something nerve-related, and I got into a neurologist and voila! I am on carbamazepine and so far, so good, although I do have the itchy rash on my head and feel very drowsy. I will try and stay on a low dose 2x a day until I have severe attacks in the winter time."
- Josie
- Taken for less than 1 month
- November 21, 2023
"Hi , I’m a 56 year old woman that was diagnosed with TN about 20 years ago. I was on oxicarbizine for the last 4 years. Here lately it just stopped being effective. So my primary care Doctor put me on 200 mg of carbamazepine for the pain . I’ve been on it for only 3 days and I had no pain today! I was so happy and well pleased with this medication! I pray it continues working for several years! I give this medication a 10 out of 10."
Are you taking this medicine?
- Coaster
- Taken for 1 to 2 years
- June 10, 2022
"Generic carbamazepine 200 mg x 3 times per day helped me survive TN, stay employed, and reared my children for more than a year. I had to be careful not to miss or delay a dose. Because of side effects (daytime sleepiness, mental sluggishness), my meds were transitioned to generic oxcarbazepine x 2 times per day. I think the oxcarbazepine works for a longer period of time and is more forgiving of a delayed dose, but has similar side effects. If I had to go back to carbazepine I would: great relief from TN pain."
- Hanny
- Taken for 10 years or more
- June 5, 2022
"When started worked then dosage needed to be increased because of more episodes. Start 400mg then 14 yrs later today at 1100mg. And still in pain today. Side effects ataxia. Going thru a MS exacerbation though now on prednisone taper."
- ANGEL...
- June 12, 2013
Tegretol (carbamazepine) "Stopped the pain of trigeminal neuralgia. Side effects like unsteadiness, fingers twitching, sore joints, seeing auras, reading difficulties, speaking difficulties."
- Katie...
- March 15, 2013
Tegretol (carbamazepine) "This is the only medication that has helped me! It's great!"
- hlt
- March 14, 2015
Tegretol (carbamazepine) "Worked for awhile okay. After 2 1/2 months I developed a reaction to it called "Stevens-Johnson Syndrome" which is a potentially deadly skin rash."
- JJJOO
- April 7, 2016
Tegretol (carbamazepine) "Excruciating pain in ear since June .Been on tegretol since. From 600mg to 1200 Then surgery. Still having pain. Still on 900mg"
- Anonymous
- July 11, 2010
Tegretol (carbamazepine) "Made me exhausted everyday (wanted to sleep 24-7) and had changes to menstrual cycle."
- Lexy
- November 9, 2015
Tegretol (carbamazepine) "800 mg of tegretol and still in pain"
- Anonymous
- July 4, 2009
Tegretol XR (carbamazepine) "I have constant pain in my neck, scalp, left thumb. Tegretol helped but compromised my bone marrow. Be sure to have to have CBC blood work regularly."
- painful
- February 1, 2012
Tegretol XR (carbamazepine) "Totally relieved trigeminal pain - pain was non-existent. However I also turned up allergic so treatment stopped."
- Anonymous
- August 16, 2010
Tegretol XR (carbamazepine) "This is working wonders for me. Started helping me a few days after taking it."
- Annie...
- Taken for less than 1 month
- November 13, 2016
"I have been diagnosed with TN and was put on epilepsy tabs I have took all now but still got pain in my head I'm getting really worried about it as I can't suffer any more what to do next"
- Carlau
- Taken for less than 1 month
- January 31, 2016
"Up to 800mg seems to work about once every 2nd day still in excruciating pain and it seems the medical fraternity don't give a damn."
- Debbie
- April 22, 2020
"My father took this drug and it developed into Alzheimer’s or so we thought it turned out to be the meds he was on"
- Jenster
- March 5, 2017
"Caused drowsiness but did depress SOME of the pain."
- Anonymous
- September 17, 2022
Tegretol (carbamazepine) "The amount seems to need to go up according to the pain. I am on 1000g a day and sometimes the pain still pops in now & then"
- Anonymous
- September 28, 2009
"After a week, started having anxiety attacks, which was disappointing because it was relieving the pain in my face."
- Spruce
- Taken for 1 to 2 years
- December 15, 2021
"Just about eliminated my atypical trigeminal neuralgia pain. I am on 1200mg/day. I felt slightly dizzy for a day or two when upping the dose but otherwise feel fine."
- Molly
- Taken for 1 to 2 years
- July 15, 2021
"Did not make a difference for me in the treatment of TN. And caused a significant increase in my liver enzymes."
- Tn su...
- Taken for 1 to 2 years
- December 31, 2021
"I have trigeminal neuralgia, and carbamazepine has saved my life!!"
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
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- Carbamazepine monograph
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Other brands
Carbatrol, Epitol, Equetro, Carnexiv
"I was diagnosed about 18 months ago with trigeminal neuralgia . My pain was in my left lower jaw and teeth. I told my dentist about it and he told me I can't find anything wrong with your teeth on that side. The pain worsened to the point where I was getting desperate. Then my wife googled jaw/ teeth pain and found the term trigeminal neuralgia. I contacted a neurologist who put me on Gabapentin and Carbamezapine. They worked after a week and a half or so. I weaned myself off of the Carbamezapine over time with no bad episodes until COVID!!! When COVID hit my teeth pain came back with a vengeance. I was put on carbamazepine again with a 6 day dose of steroids which finally brought me relief. However the carbamazepine made me very tipsy and I was unable to drive or walk in a straight line. I stopped the carbamazepine gradually and now just take 300mg Gabapentin twice daily with no pain and no headaches. So very thankful!!!!"