Carbamazepine for Dystonia User Reviews
Brand names: Tegretol, Tegretol XR, Carbatrol, Epitol, Equetro
Carbamazepine has an average rating of 7.0 out of 10 from a total of 4 reviews for the off-label treatment of Dystonia. 75% of reviewers reported a positive experience, while 25% reported a negative experience.
- Pano
- Taken for 5 to 10 years
- March 25, 2018
"I have paroxysmal kinesigenic dystonia. I have been on this medicine for 9 years. When my dystonia was at its worst (middle & high school), I took 400 mg daily. Over time, it became not as bad, and now I take my pills when I feel like I need it. Usually 400 mg once a week. This medicine has helped me SO much, and I would not have been able to live without it!"
- rie__
- May 16, 2016
"Doesn't totally cut my Paroxysmal Dystonia, but drops it from a 7/10 to a 3/10. If i increase the dose (800mg XR daily) the side effects are too hard to handle. Generally leaves me feeling a little sluggish/slow, and have found it difficult to lose weight on Tegretol."
- Anonymous
- November 15, 2019
"I was having spasms 24/7 they were horrendous, I commenced on Carbamazepine & within 10 days they were gone, couldn't believe it."
- DCG
- October 16, 2010
Carbatrol (carbamazepine) "I have been taking Carbatrol 200mg for 13 years and I can only pin point me being tired from the medicine. When I take it like prescribed I do not have any episodes."
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Tegretol, Carbatrol, Epitol, Equetro, Carnexiv
Tegretol (carbamazepine) "Found it ineffective for facial spasms. Patients must get liver function tests while they are on this medicine. I believe other dystonia sufferers have had some relief with this but I was not one of them."