Calcitriol User Reviews & Ratings
Brand names: Rocaltrol
Calcitriol has an average rating of 7.8 out of 10 from a total of 8 reviews on Drugs.com. 63% of reviewers reported a positive experience, while 0% reported a negative experience.
Condition | Avg. Rating | Reviews | Compare |
---|---|---|---|
Hypocalcemia | 4 reviews for Hypocalcemia | 51 medications | |
Hypoparathyroidism | 4 reviews for Hypoparathyroidism | 16 medications |
- She...
- January 3, 2013
For Hypoparathyroidism "I have surgically induced hypoparathyroidism. I was not monitored for many years. By the time I saw my ENT, my vitamin D level was 780. I really thought I was dying. My doctor said I had been suffering from vitamin D toxicity. She stopped the vitamin D and started me on calcitriol. It is a synthetic vitamin D and absorbs differently than vitamin D. It took a while for the toxicity to get better. I now take my meds differently: Prilosec 7 to 8 a.m., calcium/magnesium/zinc combo and calcitriol at noon, 5 p.m. heart medicines, 9 p.m. levothyroxine. This has worked so far great for me. Still occasional tetany. Overall better."
- Spa...
- Taken for 10 years or more
- August 20, 2017
Calcitriol for Hypocalcemia "I too take Rocaltrol, but the generic form, which is Calcitriol. I had thyroid cancer, and my parathyroid was messed up during the removal of the thyroid. Without this medication, my body would go numb, and I would have facial spasms. I will have to take this medication the rest of my life, but I'm thankful I can get it, and insurance does pay for it."
- hyp...
- November 3, 2009
For Hypocalcemia "I have been taking Calcitriol for just about 2 months. After 1 month, I felt great, my DR reduced my dosage from 0.50 to 0.25 mcgs. About a week later, I had slight symptoms, and at 1 1/2 weeks, I was headed to the ER, taking 4,500 mg of calcium every 6 hours. Since increasing the dosage of Calcitriol back to 0.50 mcgs, I have noticed some of the symptoms and definitely their severity going away, but it has been a slow process. My condition was a result of complications from a thyroidectomy due to papillary carcinoma (cancer), in which I believe my parathyroids (all) were put into shock and possibly destroyed."
- Anonymous
- Taken for 2 to 5 years
- June 7, 2012
For Hypoparathyroidism "I've been on Rocalcitrol for about 3 years for secondary hypoparathyroidism. After initial tetany, I take 0.24 mcg every other day and about 2000 mg calcium daily. Just found out that I'm not to take calcitriol with magnesium. I take multivitamins around lunchtime (calcitriol in the morning). I'm also taking levothyroxine daily, first thing in the morning. My serum calcium is low (7.8-8.3), Vit D is normal. I do have bony pains and aches, remain very active."
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Your review helps others make informed decisions.- Anonymous
- April 30, 2010
For Hypoparathyroidism "I have been taking calcitriol for 8 months now. We eventually built it up until I am taking 1.25 mcg a day with 1500 - 2000 mg of calcium. It has worked very well compared to when I started out with only 25 mcg a day. I still have minor tetany problems, but nothing an extra dose of calcium once in a while won't fix. The reason I didn't give it a 10 is because a lot of other medicines that different doctors gave me completely screwed me up. I see an endocrinologist for my thyroid and hypocalcemia...an ENT prescribed Prilosec for reflux, which messed me up, and I had to stop taking it. My GYN gave me a drug one dose one time before a uterine biopsy and plummeted my blood calcium levels for over a week..."
- Anonymous
- November 8, 2009
For Hypocalcemia "I have also been on calcitriol 0.5 mcg x 2 twice daily in addition to 5400 mg (total) calcium and 756 mg magnesium (total) daily. Still experiencing severe symptoms of hypocalcemia - tingling, chills, muscle spasm, lightheadedness, etc. Also, had papillary cancer with all thyroid removed - surgeon likely removed all parathyroids as 2 were found in pathology and no parathyroid hormone detected in subsequent lab tests."
- Shi...
- Taken for 10 years or more
- January 9, 2016
Calcitriol for Hypocalcemia "As a result of thyroid/parathyroid cancer, I have a hypocalcaemic and hypoparathyroid condition. Therefore, I must take Rocaltrol to maintain adequate calcium levels and to lower TSH levels to prevent the return of cancer. The supplier to my pharmacy no longer has any Rocaltrol in stock, and I am in desperate need. Can you help?"
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For Hypoparathyroidism "The article does not mention that calcitriol is not ordinary vitamin D. It is activated vitamin D. This is important in the treatment of pseudohypoparathyroidism, in which the parathyroid gland produces plenty of parathyroid hormone but lacks the relays containing instructions in how to utilize normal vitamin D with the parathyroid hormone to regulate calcium levels. [This is how my doctor explained this to me.]"