Haegarda User Reviews & Ratings

• HAE...
• Taken for 1 to 2 years
• May 7, 2019

For Hereditary Angioedema "I’ve been using Haegarda for about a year and a half and find it to be a very safe med with few incidental side effects (bruising at injection site, sometimes). It hurts a bit at injection, but much less than other sub Q HAE meds. Most importantly, it works better for me than any of the other preventative I’ve tried, and I’ve used them all (but Takhzyro,) including Danazol. That said, I believe the initial marketing claim about “95%” efficacy was a problem for patients because insurance companies can say that we should only be using rescue meds 5% of the time when on Haegarda. EEK! In my experience, I use rescue meds 7-9 times a month, down quite a bit from the time before Haegarda. I still have attacks, but the are less severe, mostly. I recently had a severe knee injury and my attacks became uglier while the injury was most acute. As HAE is inclined to do. Overall I like Haegarda and am not inclined to change preventatives any time soon."

• Anonymous
• Taken for 2 to 5 years
• November 23, 2024

For Hereditary Angioedema "Well, I’ve only had two swelling episodes in the last three years, and that’s amazing, but there are a lot of side effects for me that I don’t like and are bothersome, but not to the point where I need to go to the hospital. And I’ve never met anybody else that has this disease, other than me. And there are several other side effects. And administering it is very difficult, I can’t do it by myself. I wish there was something new that wasn’t as painful as administering it is and didn’t have the side effects that it does and it’s just as effective. But overall, I really like the medicine a lot. No more swelling or very little anyway. And I used to have a lot of attacks-several every month."