Budesonide for Crohn's Disease User Reviews

• Mr ...
• Taken for 6 months to 1 year
• January 10, 2019

Budesonide "Took Entocort as initial treatment for Crohn's in terminal ileum in 2004. I was only on it for 3 months (tapering 9mg to 6mg to 3mg), and it worked well. Then, I was on Pentasa for 11 years, tapering slowly to zero. Crohn's symptoms came back wicked in Jan 2018, lost 43 lbs, and now have a 15cm stricture. Took Entocort again for 7 months this time (2 mos @ 9mg, 2 mos @ 6mg, 3 mos @ 3mg), and again, it helped get the worst symptoms under control. Now living with the stricture, on 1g of Pentasa daily. I'd say Entocort worked well for me, with minimal side effects. Some emotional lability, but that could be from any chronic illness. It's a useful drug for symptomatic treatment of mild to moderate Crohn's, and much safer than prednisone. I would be comfortable using a minimal dosage (3mg daily) for long-term maintenance, with calcium supplementation and periodic bone-density scans."

• Reb...
• October 12, 2016

"I was diagnosed with Crohn's disease. I have been taking this drug for about a month and feel like a new person. No flares. No diarrhea. No stomach pain. My doctor said this can be used as a daily drug because of the reduction of use until it reaches the liver, and unlike other steroids, the side effects are minimal to none. I would recommend this to anyone suffering from mild to moderate Crohn's."

• vic...
• Taken for 1 to 6 months
• March 7, 2025

"I've been bruising easily, having stomach pain, getting sick easily, having a general ill feeling, flushing, and I have gotten moon face. It has helped the blood in my stool, the mucus in my stool, and my loose bowels. It has helped my stomach pain a lot but not completely."

• phi...
• Taken for less than 1 month
• September 18, 2017

Budesonide "Budesonide helped well with my flare, but on the 3rd day I developed breathing issues. The 4th day is terrible, and I am going to stop taking it because I have COPD and heart issues. Unfortunately, I have similar problems with prednisone. I've had Crohn's disease for 50 years."

• MKS...
• Taken for less than 1 month
• December 9, 2022

"I have been taking budesonide for 1 week so far, and symptoms are beginning to subside. However, gluten-free also relieved my symptoms of arthritis and joint pain. Gluten is the cause of all my health problems and causes all inflammation. Go gluten-free for three to five weeks and see how good you feel. I wish I would have been told this sooner instead of suffering."

• Ham...
• Taken for 1 to 6 months
• October 27, 2024

"I was prescribed 3 months of Budesonide. I had C. diff for over a year and couldn’t get rid of it, so I finally had a fecal transplant, which took care of the C. diff. But I was left with a bad flare of Crohn's, I couldn’t even leave the house. So now, I am down to one tablet of Budesonide and finish in about a week. It has worked for the most part, only 1 Crohn's flare-up that lasted 5 days, and another only 2. No side effects except my hair is falling out! I have waist-length hair that I’ve been growing for years. I’m told that after I stop Budesonide, within a couple of months, the hair starts to grow again. I keep telling myself I can get a wig, but I can’t get a new intestinal system, but this really bothers me. Many years ago, I had a number of respiratory arrests, and I was on high doses of prednisone for over a year, and the same thing happened. I had to cut my hair to about an inch. My hair did grow back, but it’s still disturbing nonetheless."

• Don...
• Taken for 1 to 6 months
• March 12, 2023

"Was started on a very low dose of 9 mg for 28 days, then down to 6 mg for 28 days, and then down to 3 mg for another 28 days. Didn't notice any change in the first month, other than helping joint pain and swelling. Stomach pain continued and was still finding it difficult to eat anything solid. Unfortunately, by the second month, I'm feeling very agitated and have anxiety, unable to sleep much either, so I'm going to ask my doctor to wean me off them. The side effects are outweighing any benefit I'm receiving."

• Dik...
• Taken for 6 months to 1 year
• January 22, 2023

"I've been taking 3 budesonide capsules a day since April 2022 for a month or so. After that, I am still taking the meds, but 2 capsules a day now. It decreases the amount of the thing that could be found in my stool (not sure what it is actually called!). Pretty sure the normal maximum amount would be 49? And before the pills, it was over 200 for me. After budesonide, it decreased to ~45 over a month or so. At the latest analysis check, it was 90, but I think that's because I didn't follow a proper diet. I personally did not have any side effects. That might be because I have a mild stage of Crohn's. I got diagnosed when I was 15."

• Bil...
• Taken for 1 to 6 months
• June 4, 2020

"I’m currently on 9 mg of budesonide daily for Crohn's disease. 3 3 mg capsules in the morning. Doesn’t seem to control the diarrhea issues as well as prednisone did, but the side effects are far less and different. Headaches and a tingly pins-and-needles sensation on my back."

• Bre...
• Taken for less than 1 month
• March 25, 2020

"Budesonide worked so well on my Crohn's by day 5, but the side effect of the sore throat it gave me was not worth it. Each day after day 5, the sore throat got worse and worse, and each day, I felt like I had the flu. (I didn't have the flu or COVID-19.) My breath tasted like dog poop in my mouth. Within a day of going off the Budesonide, my sore throat was almost gone, by day 2, it was gone. I tried this twice, and both times, the same result. It was nice to be symptom-free for a few days. For my Crohn's issues, I'd give this drug an 8."

• Liv...
• Taken for 1 to 6 months
• June 22, 2020

"I've been taking 3 capsules of 3 mg a day for 5 weeks to help manage my Crohn's before taking a biological shot. So far, I haven't noticed any difference, and it doesn't seem to be helping. The side effects are starting to get bad. I'm getting dizzy all the time and have started to get nauseous and even started throwing up. I get daily headaches too (calling my doctor soon to get off of it)."

• Loa...
• July 31, 2016

"After taking it for a week, I have diarrhea and cramps. I take one in the morning before breakfast, one before lunch, and one before dinner. I better take prednisone. Wondering how many days it takes to take effect. Before that, I had a three-week flare, now, 8 days it flares, and it is expensive too."

• Cor...
• Taken for 1 to 6 months
• March 31, 2021

"Budesonide was not able to control my Crohn's flare, and I had to move on to more powerful drugs. I noticed a slight improvement after 2 weeks, but it was never able to get me out of the flare. On a positive note, my only side effect was dry mouth. I'd say it's worth trying if you can get insurance to cover it since the side effects are minimal, and it works well for some people."

• Bir...
• Taken for 1 to 6 months
• November 10, 2020

"I have been on this medication for about 4 weeks now. I take 3 capsules of 3 mg a day. I started feeling a little better after about a week and a half. I have not had any side effects, which is great! It has only helped very little, though. I have a little less inflammation and no colon spasms, but I am still in pain. I will take it for one more month and see how it goes."

• Anonymous
• August 17, 2011

Budesonide "I've had Crohn's disease for 47 years. Entocort works great for calming acute symptoms in just a few days. I'm able to live a normal, pain-free life with it. I just wish it wasn't so expensive."

• tea...
• April 10, 2010

Budesonide "Entocort is used as a bridge therapy to settle severe flares. It brings almost complete relief within 2-3 days, but it's just temporary as you can't stay on this drug for long periods of time."

• lad...
• January 12, 2014

Budesonide "Stopped my Crohn's disease flare-up very quickly and rather effectively."

• Two...
• Taken for 2 to 5 years
• March 16, 2023

"Has helped with Crohn's symptoms: 80%. Have extreme bruising on arms and legs. Nagging cough and trouble keeping blood pressure normal (on 3 BP medications)."

• Bun...
• Taken for 1 to 6 months
• May 30, 2018

Budesonide "Entocort did nothing for me. No side effects, but no help at all. Really the most pointless pill I have ever taken."