Entocort EC User Reviews & Ratings

• She...
• December 5, 2013

For Inflammatory Bowel Disease "I was prescribed this for Collagenous (microscopic) Colitis, and it worked immediately with the first dose. I take three 3mg capsules at once in the morning. I've been on it for 15 months straight with no side effects, but I do have to have a bone density scan once a year. I have tried weaning off the medicine, but my symptoms return so it looks like I'm on this for life. Entocort is my miracle. It helps me live a normal life."

• She...
• Taken for 1 to 2 years
• February 8, 2014

For Inflammatory Bowel Disease "Microscopic Colitis: I have already given a review on this medication but I wanted to add important information. The one thing I found is the generic Budesonide (bright pink capsule) does not work well as the brand Entocort EC (gray and pink). I take whatever the pharmacy has available. This last refill was generic and while on it, all my symptoms returned. Saw my gastro and told him about it and he said he had one other patient that stated generic didn't work for them. He prescribed brand only and it works like a charm. If you find you aren't doing well on the generic, ask for brand. See if it makes a difference. It did for me."

• Not...
• Taken for 1 to 6 months
• February 7, 2021

For Inflammatory Bowel Disease "Was prescribed Entocort after a colon biopsy positive for microscopic colitis (and a high calprotectin level in stool tests). I experienced improvement from Day 1 and was cured by the end of the 90-day course of therapy. This felt like a miracle after being misdiagnosed with IBS for 5 years and nothing helped."

• Anonymous
• September 12, 2010

For Crohn's Disease, Active "VERY good medication! I had uncontrolled Crohn's for many years (no medicine would work for me). My gastroenterologist decided to try this one and it was a life saver. I couldn't go out before (even for groceries!). It didn't take very long to get the full effects from it, and though the cost is higher than with the other medicines, I am more than willing to pay it to get my life back. I could only get relief from prednisone before this medicine came along but had terrible side effects from it. Highly recommended for anyone looking for some relief for Crohn's. Good luck to all with this debilitating disease."

• mer...
• March 31, 2010

For Inflammatory Bowel Disease "I have been suffering with severe diarrhea due to Lymphocytic Colitis for 2 years. I have taken many different prescriptions for it with no help. Entocort was prescribed to me 10 days ago, and I feel terrific! The diarrhea and cramping have stopped. I really feel great. For the first 4 days, I did have a moderate headache, but that has gone. The only side effect I have now is some mild ache on my face. For me, Entocort has given me my life back."

• bob...
• May 20, 2009

For Crohn's Disease, Active "This has been a miracle medication for me. The cost is a bit high, but the benefits outweigh the cost. I receive the same benefits as I do from Prednisone, however, with none of the side effects. It works very fast for me. I really think people who have to use prednisone should reconsider and try this medication for moderate flares. I have had Crohn's disease for 33 years, this is the only medication (except prednisone) that has worked ever so well."

• Anonymous
• December 1, 2011

For Inflammatory Bowel Disease "This medicine changed my life. I have taken it for 2 years, but now I have no health insurance and can't afford it. I have severe cramping and constant diarrhea. Food is repulsive to me, and I am losing weight like crazy. I sure do miss it."

• Sal...
• Taken for 1 to 6 months
• January 14, 2020

For Inflammatory Bowel Disease "I have microscopic colitis and was prescribed 9 mg for 30 days, 6 mg for 30 days, 3 mg for 30 days. I took this for 30 days with no relief, was also taking Imodium and cholestyramine, still with no relief. Got prescribed Lotolil, 2 pills up to 4 times a day, still no relief. So unfortunately, it has not worked for me."

• Anonymous
• July 17, 2011

For Inflammatory Bowel Disease "I've been taking Entocort for almost 3 months now. My symptoms of inflammatory bowel disease are almost nonexistent. However, since taking this medicine (almost from the beginning), I now have psoriasis all over my body, including pustular psoriasis on my hands and feet, which is very painful. I believe this medicine is causing the psoriasis, I've never had this condition before."

• hum...
• September 21, 2010

For Crohn's Disease, Active "This medication worked great the first time I was diagnosed with Crohn's. No side effects that I noticed, and it started working very quickly. Several months later, I had another flare and tried it again, and it did not work for me. It was certainly worth a try to avoid the harmful side effects of other medications. I took this medicine along with Pentasa, which I use every day and still like."

• 10y...
• September 22, 2009

For Inflammatory Bowel Disease "Reidcaro - Be careful. Less than 2 weeks' time is not enough time to judge the results. Don't expect a cure for IBD. Look at yourself as managing it. Realizing this at the start may avoid a letdown each time you change medicines."

• rei...
• June 21, 2009

For Inflammatory Bowel Disease "I have only been taking this medicine for a week. I am being treated for inflammatory bowel disease, and nothing else has worked. So far, I think I am on the way to being cured. I am keeping my fingers crossed. After two weeks, I have to report back to my physician as to my experience with this medicine."

• Mr ...
• Taken for 6 months to 1 year
• January 10, 2019

For Crohn's Disease "Took Entocort as initial treatment for Crohn's in terminal ileum in 2004. I was only on it for 3 months (tapering 9mg to 6mg to 3mg), and it worked well. Then, I was on Pentasa for 11 years, tapering slowly to zero. Crohn's symptoms came back wicked in Jan 2018, lost 43 lbs, and now have a 15cm stricture. Took Entocort again for 7 months this time (2 mos @ 9mg, 2 mos @ 6mg, 3 mos @ 3mg), and again, it helped get the worst symptoms under control. Now living with the stricture, on 1g of Pentasa daily. I'd say Entocort worked well for me, with minimal side effects. Some emotional lability, but that could be from any chronic illness. It's a useful drug for symptomatic treatment of mild to moderate Crohn's, and much safer than prednisone. I would be comfortable using a minimal dosage (3mg daily) for long-term maintenance, with calcium supplementation and periodic bone-density scans."

• Don...
• Taken for 1 to 2 years
• November 19, 2020

For Inflammatory Bowel Disease "I was diagnosed 1 and 1/2 years ago with lymphocytic colitis. I have had 3 flare-ups and have been on Entocort for each one. Great drug for me, unfortunately, my sugars have elevated because I have type 2 diabetes. I stop the drug at the end of December, very anxious to see what will happen. Lost 34 lbs since the beginning of this horrible disease, and my symptoms return every 3 months after I stop taking Entocort."

• Jo-...
• Taken for 10 years or more
• November 18, 2021

For Inflammatory Bowel Disease "I've had stomach and intestinal issues for many, many years and have sporadically been using Entocort over 10 years. I'm sensitive to most medication and don't take it daily as it has side effects (i.e. vision & bone density issues). There have times when the gastroenterologist prescribed it everyday for about 4 weeks, tapering off after that time frame. Although, I wish I didn't have to take this steroid, it is the only medication which helps, even if for short periods. I'm amazed there is no cure for these debilitating intestinal diseases."

• phi...
• Taken for less than 1 month
• September 18, 2017

For Crohn's Disease "Budesonide helped well with my flare, but on the 3rd day I developed breathing issues. The 4th day is terrible, and I am going to stop taking it because I have COPD and heart issues. Unfortunately, I have similar problems with prednisone. I've had Crohn's disease for 50 years."

• Anonymous
• September 15, 2009

For Eosinophilic Esophagitis "I have an unexplained food allergy that causes my esophagus (only esophagus) to close up completely with food in it. Cannot swallow saliva, as it builds up and makes me gag and choke as it goes down my windpipe when it builds up high enough. I was instructed to take 9 mg (3, 3 mg capsules) by removing the pellets from the capsules and eating them without water so they touch my esophagus directly. No side effects that I notice, and it makes me able to eat. A Godsend - a must-have for me."

• phe...
• March 1, 2010

For Eosinophilic Esophagitis "Entocort has been good to me and my eosinophilic esophagitis problem. It's not as effective as prednisone, but way easier to handle. I could usually last 3 to 4 weeks off of prednisone. I can only go about a week without Entocort. My side effects have been occasional dizziness, occasional indigestion/heartburn, and sometimes just feeling tired. After several years of prednisone, this is still much better and easier to handle. I take one 3 mg pill (3 times a day) and break it apart and pour it into my mouth and try to let the individual bits of medicine stay in my throat as long as I can. I've been doing well with this and I am happy with the results."

• Kim...
• Taken for 5 to 10 years
• May 15, 2018

For Crohn's Disease, Maintenance "I have been on it for 8 years. Have tried to wean off but always start to have Crohn’s symptoms again. I still have flares periodically on the medication but they are minimal. Happy it works for me."

• Mar...
• Taken for 1 to 6 months
• October 15, 2024

"Entocort is very difficult to get off. It will take several months, and any misstep will set you back with diarrhea to the beginning. I had heart medications to take and should never have started Entocort. The timing between pills was complex and conflicted with my heart pills. Moreover, the anti-diarrheal in Entocort is only strong for 4 hours, and the first half-hour it is starting up, while the last half-hour is winding down. It conflicted with my heart pills and vitamins for an hour before and 2 hours after. I would become bloated with gas. If you don't have conflicts, it may be working on the inflammation. None of this information is explained before starting. It should have been on a prep sheet sold with the medication with potential problems. If you have one basic problem and are willing to take it for life, it sounds like it works from other reviews. I had it under control with diet before the heart complication and hope to get there again."

• Anonymous
• August 17, 2011

For Crohn's Disease "I've had Crohn's disease for 47 years. Entocort works great for calming acute symptoms in just a few days. I'm able to live a normal, pain-free life with it. I just wish it wasn't so expensive."

• tea...
• April 10, 2010

For Crohn's Disease "Entocort is used as a bridge therapy to settle severe flares. It brings almost complete relief within 2-3 days, but it's just temporary as you can't stay on this drug for long periods of time."

• Dre...
• Taken for 1 to 6 months
• June 25, 2015

For Inflammatory Bowel Disease "Did not work. Severe psychological and physical side effects requiring hospitalization."

• lad...
• January 12, 2014

For Crohn's Disease "Stopped my Crohn's disease flare-up very quickly and rather effectively."

• REA...
• October 22, 2015

For Crohn's Disease, Maintenance "Been on it for 7 years. Works well for me, but I should find a better long-term solution. Almost no flare-ups. Minimal side effects since it's only a locally absorbed steroid."