Brivaracetam for Epilepsy User Reviews (Page 2)

• Sucid...
• Taken for 1 to 2 years
• April 12, 2020

Briviact (brivaracetam) "I've been taken this med since March of 2019 and i get really irritated easily and itchy skin feeling aggressive sometimes but I guess it's working. I take 3 different types of meds for my seizures though. Thank you"

• Sally...
• Taken for 2 to 5 years
• September 19, 2021

Briviact (brivaracetam) "Briviact which has bad side effects, has messed up my 35 yrs old son. He's not the person he was 3 yrs ago. I told Dr I wanted his meds changed. Dr. stopped this, then put him on Keppra which has the same side effects. After a week I told Dr to put him back on Depakene (Valproic Acid) which is generic brand. He had took this years ago with no side effects. I had been telling the Dr that my son was having doing weird stuff. He said you have to deal with it.....Really?? He acted like he didn't even care? Its been 3 weeks he is still not himself...Is anybody else having this problem. This is a night mare for me & my husband."

• Anony...
• Taken for 6 months to 1 year
• May 17, 2023

Briviact (brivaracetam) "I was on Keppra for 5 years, 2017 to 2022. Switched to Briviact in 2022 and have now been on it for 1 year. I had all side effects while on both medications but Briviact has been the worst. I had my first anxiety attack/panic attack and all side effects have increased significantly since being on Briviact. I have been seizure free for the past 3 years and I just want to come off of the medication but my neuro won't let me. My neuro is keeping me on the medication and is asking for me to seek psychiatric help to the side effects I'm experiencing."

• Ned
• Taken for 2 to 5 years
• July 9, 2021

Briviact (brivaracetam) "I have been on brivact for nearly 3 and half years, alongside vimpat. These two together so far have worked well for me in relation to side effects, and seizure control. I continue to have seizures but my mood is much better, I’m less angry, emotional and aggressive. However, since starting brivact I suffered from severe rash on my legs, feet, hands and arm. It toned down once my body started to adjust to the medication change. I am currently having my dosage increased and the rash once again has flared up. The neurologist had discussed with me potentially changing from tablet form to liquid form, as I may be allergic to the coating of the medication. I also have very blurry vision, memory loss, sometimes confusion and other side effects, but overall it has been the best one far as I have tried approx 10 different types of epilepsy medication that either have changed my personality or given me serious side effects ."

• Rasta...
• Taken for 1 to 6 months
• July 14, 2021

Briviact (brivaracetam) "Briviact seems to prevent my seizures but makes me sort feel so negative about life. It's more or less a new version of Keppra regardless of what the hype is from big pharma. Essentially it seems to influence the same srv2 protein and they do not understand how it prevents seizures nor changes your mood so brace for condescending conversations with your doctors who likely won't understand why you don't want to take a medicine that might be helping your epilepsy. I left my last MD because she wanted me to stay on Keppra now I'm with this new doctor who apparently put me on a nearly identical med and gives me grief for not wanting to be on a medicine that makes me feel apathetic about living."

• Drum...
• Taken for 1 to 2 years
• September 24, 2021

Briviact (brivaracetam) "I am a 45 year old man that, for some strange reason, came down with epilepsy about ten years ago. I have mainly temporal lobe epilepsy but have had a few generalize. I am a band teacher that was doing way too much and told everyone yes for everything so I think that it was stress and lack of sleep that made this start. I have been on many different meds but started Briviact along with Trileptal a few years back. My doctor told me that I was intractable and began to do some testing to begin to see if I was a candidate for surgery. I was very scared and did not want that portion of my brain messed with. I told him let's try some other meds and this this when Briviact came in. After not driving a vehicle for two years the combination of breviact and trileptal worked. We are not even talking surgery anymore. I will say that I do experience anxiety, sleepiness, double vision (occasionally)irritability (this is a big one) numbness and an uneasy feeling."

• pablo...
• Taken for 1 to 6 months
• October 26, 2022

Briviact (brivaracetam) "I had a fit in my sleep 2 years ago, after spending 3 weeks in my workshop, breathing in diesel fumes from a leaking heater, no history of epilepsy in my family , However I'm no doctor, so what do i know ? Apparently I have "temporal lobe epilepsy " I was initially given Keppra , had terrible side effects , (but no more fits) However I did get lots of DejaVu. But the mood swings and suicidal thoughts started to get worse, So now I'm on Briviact, and again no seizures, However I'm getting extremely tired, depressed, angry etc etc and have started falling asleep ,then waking up with no idea where or who I am! I'm not sure if thats the epilepsy or a drug side effect."

• Mary
• Taken for 1 to 6 months
• December 6, 2021

Briviact (brivaracetam) "Briviact is my 13th med. Keppra caused more side effects. Briviact is finally working. I'm going past 25 weeks without a T/C. I had laser ablation on my front temporal lobe & it didn't work. I do feel more lethargic & I'm hoping my skin problems aren't coming back but I'm taking 100mg 2x's a day so maybe I can take less but I'm scared to change anything. I do believe in gut health. I've had mono at age 1 & my naturopathic was the only one to test my thyroid, hormones, cortisol levels correctly. She told me that I have active EBV (epstein barr virus) & it's cousin virus called HHV-6 which actually causes seizures because it attacks the nervous system so with her treatment, I've been able to calm down the virus & I've been able to get off both of my high blood pressure meds. I almost had to get on a 3rd HBP when I was on (brand name) Keppra XR at 1500mg a day. I had low sodium levels as well. I need more time to know how this will affect my health over time & I could follow a keto but no"

• Joann
• Taken for less than 1 month
• May 12, 2020

Briviact (brivaracetam) "I took Keppra. That along with other meds controlled 10 seizures a day for 2 years. Now I'm on 4 seizure meds and facing brain surgery if the seizures don't stop. I just started taking Briviact and am hopeful to be seizure free for years again. So far so good but there have already been mood swings. It has only been almost a week."

• Yogesh...
• Taken for less than 1 month
• December 28, 2022

"Such an amazing tablet. I have been facing epilepsy problem for last 12 years. It happened once a night in every month. I was taken lots of treatment and brain scan surgery, but there was no effect. I even took allopathic treatment also but after that continues faced this problem. Now I am starting this one tablet everyday at after dinner. And I see this problem is totally stopped and I sleep properly. I have no side effect. Really thanks to founder."

• Win
• Taken for 2 to 5 years
• July 24, 2021

"Was afraid it wouldn't work, but it worked really well for a while. Just developing resistance to it now. It is similar to Keppra and that med was horrible for me. Briviact has caused none of the issues Keppra did and helped control the seizures more."

• Anony...
• Taken for 2 to 5 years
• October 24, 2019

"I started taking Briviact in 2017. I was so fatigued it took 3 hours before I could get out of bed after a dose.I had memory loss, dizziness, dark thoughts & depression. It was hard work but side effects calmed after a long 6 months. I was over the moon I was seizure free for 2.5 years, then unfortunately I had one this May & Another in August. This is almost the same frequency as without meds for me. So at the moment coming off it is being discussed. It doesn't matter how many seizures you have, they still rule your life! I am pushing for a VNS, tho I feel how many I have, & NHS funding is being held against me."

• Happy...
• Taken for 1 to 2 years
• July 9, 2024

Briviact (brivaracetam) "I am a caregiver to my husband who has tried Keppra (didn't work) and had a lot of seizures. He has Partial Complex Temporal Lobe epilepsy for 9 years; he was an ex-boxer. Then he was on Oxtellar ER – wow, that one put him in the hospital with grand mals due to depleted sodium levels. Two years ago, he was put on Briviact 100mg x 2 daily, which works great, and Vimpat 200mg x 2 daily. He is on Medicare extra help to pay for them as they are quite expensive. Now he finally has them under control. The addition of Briviact did the trick. Yes, he is depressed, angry, has insomnia, and is scared of his own shadow with anxiety, but no seizures and I do not have to worry about him falling!"

• Poppi
• Taken for 6 months to 1 year
• January 27, 2022

Briviact (brivaracetam) "I was diagnosed later in life at the age of 57 I had my second seizure and was placed on Levetiraceram, but after 4 years I started to get focal seizures on a weekly basis but didn’t lose consciousness just lost my vision or hallucinated. Being moved on to Briviact stop the FS but fatigue has been a problem now for over 7 months, but that’s better than getting the FS’s. The only other problem in weight gain I put on about 10-12lbs and have to watch what I eat now, so much for being skinny and fit and loved playing ice hockey. Not anymore."

• Andy
• Taken for 2 to 5 years
• March 20, 2024

"I started having seizures in my sleep in my late teens/early twenties. I was finally treated with various seizure meds. Had a seizure in the bathroom at work at 56 years old, my first seizure while awake. Coworkers found me and I was hospitalized briefly. I was then put on Keppra (Levetiracetam) and managed for a while until I had a status seizure requiring ICU and a hospital stay. Increased Keppra from 500mg to 750mg. Broke out in a rash of small, flat blisters in my mouth, I was informed that I was good to notice that because it is a deadly allergic reaction to Keppra. Neurologist then switched me to Briviact 100mg twice daily and 0.5mg clonazepam at night. I have been seizure-free for 2 years. My only complaint is that it's so expensive...but it works...sighs."

• Sheila
• September 2, 2019

Briviact (brivaracetam) "Great for my seizures. The packaging is horrible. It has triple times over the top child safety cap. Can’t open it always have to have my neighbor open the six bottles. Impossible."

• Kingkol
• Taken for 1 to 2 years
• June 20, 2023

Briviact (brivaracetam) "There are very few side effects and I generally tend to get the most common. The reason I don’t rate this highter is I don’t have full seizure control."

• Confu...
• Taken for less than 1 month
• May 17, 2020

Briviact (brivaracetam) "I just switch back to Briviact and I keep having burning as well as vein pain in my eyes !"

• Claire
• Taken for 1 to 2 years
• April 20, 2022

"I have been on brivaracetam for a year and I feel awful jerking, dizziness and aching all the time"