Benlysta User Reviews & Ratings (Page 3)

• Doc...
• Taken for 2 to 5 years
• July 3, 2024

For Lupus "I've had SLE for 33 years. After I reached my mid-60s, the flares became worse and I was barely getting out of bed to use my bedside commode. I began seeing a new rheumatologist. He tried methotrexate, plaquenil, Ivig infusions, about everything. He put me on Actemra and I had an allergic reaction. Then he put me on Benlysta. I thought, 'Here we go again!' But it worked! I've been taking the subcutaneous injections for a little over 2 years. My life has done a 180. I'm up, active, happy, and have as much energy as a 70-year-old, wheelchair-bound woman can have. The injections sting a little, but I inject the medication very slowly with pauses in between pushing the plunger. It seems to help a lot. And it's a SMALL discomfort compared to the pain, fever, and profound fatigue that I would have without it."

• Den...
• Taken for 5 to 10 years
• May 25, 2024

For Lupus "Since taking this medication, I have not had any flare-ups nor rashes. My fingertips are no longer subject to pain from cold water (I am now able to wash veggies in cold water without pain). Hair loss has been minimized. Chest no longer hurts with deep breaths. Episodes of fatigue issues are almost nonexistent. With the exception of the weekly injection (and additional medication), I am now able to live a mostly normal life."

• Ros...
• Taken for 6 months to 1 year
• February 24, 2025

For Lupus Erythematosus "I’ve had no side effects until this last one. I’ve been having monthly infusions for a year. It really helped limit my flares, and I felt better than I had in a long time. I have SLE lupus and tumid lupus. Thursday, after my infusion, I started breaking out with rashes and welts. I used my steroid cream to calm it down, but then I felt nauseous and like I was getting sick and extremely fatigued. Today is a little better. I hope it’s nothing. I don’t want to stop the infusions."

• Dan...
• June 8, 2015

For Lupus "Infusion #2, and my joint pain and swelling went down almost immediately. I think I have finally, FINALLY found the answer for me!"

• PaG...
• June 29, 2014

For Lupus "I have had incredible results, but at week three I came down hard, the good effect did not last the entire four weeks."

• Gr8...
• Taken for 1 to 2 years
• October 26, 2013

For Lupus "This medication has been a lifesaver for me. Even though I do have some very minor side effects, I wouldn't dare think of changing it!"

• ilt...
• Taken for 2 to 5 years
• April 25, 2023

For Lupus "Benlysta has been a lifesaver for me. It did take some time for the medication to start working, but after a year of being on it, I felt better than I had in years."

• Smi...
• Taken for 1 to 2 years
• May 17, 2018

For Lupus "I’ve been back on Benlysta for the past 2 years this go around. Lately, I don’t feel the treatment is working anymore. I experienced increased shortness of breath, leg pain, and headaches."

• Dma...
• Taken for less than 1 month
• April 9, 2018

For Lupus "Exhaustion, bone pain, spine pain, ocular migraines, vertigo, potassium depletion, chest pain, heart problems, bone damage, memory problems, nystagmus, can't sleep due to pain, fevers, GI problems."

• Nad...
• Taken for 1 to 2 years
• March 16, 2024

For Lupus "I love it. Benlysta has changed my life for the better."

• Arc...
• Taken for 1 to 2 years
• January 31, 2025

For Lupus "Had been taking Enbrel, then Humira with little to no results. Switched to Benlysta. It was life-changing!"

• RKG...
• Taken for 1 to 2 years
• March 25, 2025

For Lupus "I have only one issue, a stuffy nose. I receive Benlysta every month with no other issues."

• Dug...
• Taken for 1 to 2 years
• October 3, 2024

For Lupus "Drug seems to make me tired. I don’t have any energy, a lot of leg pains, just don’t feel like doing anything, kind of depressing actually."