Benlysta for Lupus User Reviews (Page 3)
Benlysta has an average rating of 7.9 out of 10 from a total of 57 reviews for the treatment of Lupus. 68% of reviewers reported a positive experience, while 7% reported a negative experience.
Reviews for Benlysta
- Doc...
- Taken for 2 to 5 years
- July 3, 2024
"I've had SLE for 33 years. After I reached my mid-60s, the flares became worse and I was barely getting out of bed to use my bedside commode. I began seeing a new rheumatologist. He tried methotrexate, plaquenil, Ivig infusions, about everything. He put me on Actemra and I had an allergic reaction. Then he put me on Benlysta. I thought, 'Here we go again!' But it worked! I've been taking the subcutaneous injections for a little over 2 years. My life has done a 180. I'm up, active, happy, and have as much energy as a 70-year-old, wheelchair-bound woman can have. The injections sting a little, but I inject the medication very slowly with pauses in between pushing the plunger. It seems to help a lot. And it's a SMALL discomfort compared to the pain, fever, and profound fatigue that I would have without it."
- DaniBev
- June 8, 2015
"infusion #2 and my joint pain and swelling went down almost immediately. I think I have finally FINALLY found the answer for me!"
Frequently asked questions
- What is the difference between Benlysta and Saphnelo?
- What's the difference between Lupkynis and Benlysta?
- Does Benlysta cause weight gain?
- How long does it take for Benlysta injections to work?
- PaGaPo
- June 29, 2014
"I have had incredible results, but at week three I come down hard, the good effect did not last the entire 4 weeks."
- Gr8to...
- Taken for 1 to 2 years
- October 26, 2013
"This medication has been a life saver for me. Even though I do have some very minor side effects, I wouldn't dare think of changing it!!!"
Are you taking this medicine?
- iltd
- Taken for 2 to 5 years
- April 25, 2023
"Benlysta has been a life saver for me. It did take some time for the medication to start working but after a year of being on it, I felt better than I had in years."
- Dmano
- Taken for less than 1 month
- April 9, 2018
"Exhaustion, bone pain , spine pain, ocular migraines, vertigo, potassium depletion, chest pain, heart problems, bone damage, memory problems, nastagmus, can't sleep due to pain, fevers, GI problems."
More FAQ
- Where do you inject Benlysta?
- How does Benlysta help lupus?
- Can Benlysta cause an allergic reaction?
- How long does a Benlysta infusion take?
- Smile...
- Taken for 1 to 2 years
- May 17, 2018
"I’ve been back on Benlysta for past 2 years this go around. Lately I don’t feel the treatment is working anymore. I experienced increased shortness of breath , leg pain and headaches."
- Nadia
- Taken for 1 to 2 years
- March 16, 2024
"I love it. Benlysta has changed my life for the better."
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
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"Since taking this medication, I have not had any flare-ups nor rashes. My fingertips are no longer subject to pain from cold water (I am now able to wash veggies in cold water without pain). Hair loss has been minimized. Chest no longer hurts with deep breaths. Episodes of fatigue issues are almost nonexistent. With the exception of the weekly injection (and additional medication), I am now able to live a mostly normal life."