Anakinra for Schnitzler Syndrome User Reviews
Brand names: Kineret
Anakinra has an average rating of 10.0 out of 10 from a total of 3 reviews for the off-label treatment of Schnitzler Syndrome. 100% of reviewers reported a positive experience, while 0% reported a negative experience.
- Anonymous
- September 3, 2011
Kineret (anakinra) "Kineret works great for my Schnitzler's Syndrome. It can hurt when injected but if I warm it up to room temperature by letting it sit out for a while or hold the syringe in my hand to warm it up, it hurts A LOT less."
- mashp...
- Taken for 10 years or more
- July 29, 2022
"I have been taking anakinra for 20 years. I can not say enough good things about the drug. Before I got the drug I some times could not get out of bed to go to work. The pain in my legs and the fatigue were over powering. After I got my first anakinra shot the symptoms went away within two days."
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Kineret (anakinra) "I've been on Kineret (anakinra) for several years for Schnitzler Syndrome. No other medication gave me relief, except high dose steroids, but I was pain and hives free within a couple of days of starting Kineret and back digging in the garden and walking kilometres when I had spent the previous 7 years mainly in bed. It was on the PBS list but now my hospital pays for it on my behalf. No injection site problems or side effects."