Firdapse for Lambert-Eaton Myasthenic Syndrome User Reviews
Firdapse has an average rating of 1.0 out of 10 from a total of 3 reviews for the treatment of Lambert-Eaton Myasthenic Syndrome. 0% of reviewers reported a positive experience, while 100% reported a negative experience.
- Lois
- April 2, 2023
"Much worse side effects than 3,4-diaminopyridine. In addition, it dramatically exacerbated a kidney problem. Plus it does not last the 4 hours 3,4-diaminopyridine and or Ruzurgi lasted. The FDA did monumental damage to the LEMS patients, and the company which produced Firdapse should be sued and the FDA Approval stripped."
- Liz
- Taken for less than 1 month
- August 8, 2019
"Allergic. Definitely not the same as 3,4, DAP\Ruzurgi (which I am not allergic to)."
Frequently asked questions
- What is the difference between Ruzurgi and Firdapse?
- What is Firdapse (amifampridine) used to treat?
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"I took firdapse for about 9 months and I had so many side effects. I had a pain in my lower back that went from one hip to the other hip. When I got up in the morning, I could barely walk. It took until afternoon for it to go away, if it did then. I had pains in my thighs and upper arms. After I took the medication, it would take 2 hours for it to work and then it would only last an hour. My previous medicine it took 20 minutes for it to take effect and lasted for 4 hours. I would never recommend this medicine. There are other ones out there that are better. My insurance covered it while on it with help from a foundation but when I stopped using it, they no longer covered it."