How do I get off Prolia, I am sure that it is causing bone pain?

So sorry to hear about all your problems. I also have a lot of medical problems, but other than the skin inflammation and bone pain, I can't attribute them to Prolia. Although the first 8 months after the Prolia, I did have sky high levels of my parathyroid. And during the first month or more following Prolia, I had a lot of medical problems, which finally went away. But the skin and bone pain have lasted 2 and a half years since the one injection of Prolia. Perhaps your medical problems may get better with time too. Again, I encourage you to contact FDA about your side effects caused by Prolia. Wish you the best.

My Doctor wanted me to take Prolia, I said no because I was afraid of the side effects, he told me I had no choice, that's when I found another Doctor, you do have the right to refuse, then I called and spoke with a nurse at Prolia, she said anyone who already had medical problems she would not advise to take it, there are others.

To SHEsevEN4, That really amazes me that the nurse at Prolia told you that. I have a lot of medical problems. Did she have anything else to say? I tried to friend you, in case you only want a private conversation about it. Thanks so much for this info.

To Rowe6520: Doctors would be more aware of the side effects if the FDA made the Proiia manufacturer to list all the side effects. This is achieved by people filing a Mediwatch with the FDA. It was told by someone else on this website that their hotline is 1-800-332-1088. Or you can file it online like I did by going to the FDA website. I’m still dealing with my horrible side effects 2 and a half years later after getting just one Prolia injection. If you need more help, please ask me. Wish you the best.

I got my first injection of prolia about 4 months ago approximately after one month of injection I started developing pain and stiffness on both side of my neck the pain got worse on the left side specially when I put my head down to sleep every morning I wake up with pain behind my head and ear during the night I can't move easily because of the pain behind my left ear. I went to see a neurologist and he suggested I get Botox shots for the muscle spasm in my neck and sent me to do am MRI of my brain . The MRI was normal and I finally got my first shot of Botox 3 days ago the effect takes about two weeks to take place . Meanwhile the pain in my jaw / behind my ear is not going away and I keep on taking Mobic and muscle relaxers. I am due for my next shot of prolia in June which I am gone cancel. My question is does anyone know how long these side effects last and when finally I will be pain free and have my life back ? I used to workout 3 to 4 times a week now because of all the pain killers I am always tired or in pain . Please help

First, give the Botox more time. And you may not get help with the first dose and may need a higher dose. Another procedure that could help you are nerve block and trigger point injections. In addition to my Botox injections, I also get these injections for my tight muscles in my neck and shoulders--not caused by Prolia. You should report your side effects to FDA, so that others are warned. Go on-line to report a "Medwatch" or call the FDA hotline at 1-800-332-1088. As far as how long the Prolia effects will last, it is anyone's guess. Hopefully, your side effects will go away long before mine which are still hurting me more than 2 and a half years later. I would definitely NOT get another Prolia injection. Wish you the best.

I have had my 5th Prolia injection (6 monthly).
It has taken me until now to realise how my life has deteriorated over the last years since the 1st injection- so much pain, weakness, lack of energy and motivation , depression - just feel helpless so
much of the time - terrible fatigue, and I repeat - so much pain - also stomach discomfort- diarrhoea or constipation. I feel I am being robbed of what we're meant to be the last few years of my useful life (age 76).
HELP !