I have been suffering from PMR for 4 years now. I was initially on prednisolone and have ended up on methotrexate (20mg weekly) via about 15 months of self injecting with tocilizumab. My ESR levels dropped to normal while taking tocilizumab but have risen again to 40 since the trial of tocilizumab stopped.
I think I have been very lightly affected compared with other sufferers as after about 2 years I was able to start running and can now run 21km albeit a lot slower than before.
My question to you is whether anyone out there has actually fully recovered from PMR as there don't seem to be any replies from people who have done so. I would love to think that one day I will no longer suffer from this disease. Thanks.