I have been taking flecainide 50mg x2 daily for Afib. along with metoprolol and aspirin. Have been taking it now for a little over three years. Have not had any further outbreaks of Afib! However I really would rather not take this drug, if at all possible. I have read that it does not help anyone live longer. My cardiologist has told me it I stopped taking it, my heart would race out of control. Yet when I have missed a dose, I actually felt better! I have also had occaisonal outbreaks of PVC's since taking it. One which landed me in the hospital in June. I had wondered if the flecainide somehow could have caused them. My doctor thinks it's stress. I have wondered how long you can take this drug before it kills you. How long has everyone here been taking it?
For how long, has anybody taken Flecainide?
Question posted by Kenny1948 on 26 Sep 2012
Last updated on 18 November 2023 by whort5901
The information on this page reflects personal experiences shared by our community members. It is not reviewed for medical accuracy and should not replace professional medical advice.
9 Answers
I've been on it for more than a year, 100mg BID, but was getting Atrial Fibrillation (AFib) breakthroughs about 2-4 times per month that would last 6-18 hours, always starting when I was asleep at night. Cardiologist told me to hit another 100mg pill when I got AFib. Worked well until it didn't. Was over in Ireland and had a 6-day episode non-stop, which is just on the borderline of "persistent AFib". That scared me and family, so came back and went to electrophysiologist (EP) and was signed up to get a pulmonary vein isolation ablation. However, my regular cardiologist had put me on 150mg BID when I got back to States. No AFib for last 29 days, which is a record over my 18 months of experience with the disease. Postponed ablation... if this medicine keeps controlling it, will stay on it until I die, without hesitation. Add to my quality of life. Will follow-up if anything changes.
Also, I am not a candidate for ablation.
Oh. My. Gosh. Your statement about how you feel better when you miss a dose blew my mind, because I to have noticed I feel better if I miss a dose. I have been on flecainide for over 10 years for a fib and lately I’ve been wondering if additional problems I’m having or related to my heart meds.
I have been on this drug for 40 years. It is considered to be one of the safest of medication options. It is often paired with Metoprolol, atenolol, or Cardizem to control various heart arrhythmias. Some people use it as a pill in a pocket and only use it when they have an AFIB episode if they do not want to take it on a daily basis. There is now a clinical trial using this medication to be delivered using a nasal spray. It is all about quality not necessary quantity of life. The metro actually is the beta blocker that keeps the heart rate slower. I have had AFIB for over 40 years, with two ablations, PVC/PAC are very common as the condition changes. Particularly as we age. I have been on various medications over the years and the Flecainide was the best option for me as I had little side effects. I would seek an opinion of a ElectroPhysiologist at this this point if you are concerned about the PVC's - it could be your condition is changing.
AFIB does not get better on it's own. Check out STOPAfib.org. Great site with tons of information and resources. Hope this helps.
I have been taking it since 2002 after an ablation which came up with 2 Afib and 1 SVT... Dr didn't know what to do so he gave me Flecainide and said to try it out... I took it daily, still had attacks...
finally decided to wait for an attack and then take it and that worked... immediately. I only take it after an attack... I have gone as long as 9 mos w/o an attack but the older I get, the more I have.
I'm 83 now and still take it when needed. Last year I went to heart Dr to see if anything new was being used... he said Flecainide wasn't for Afib! I left his office. Before taking it, I had to go to the hospital and they would stop and restart my heart... expensive! Flecainide was the best answer.
I have supraventricular tachycardies sinde the age of 13. In 1985 I started with Tambocor 2+1/2 tablets with 100mg Flecainide a day and can live normally since with a few tachycardies (about 1 per month) which are over with in 1/2 to 4 hours after increasing the dose to 3-4 tablets within 24h. It is I take this medicament all days since 28 years. Now being 67 years old, I have more often to take 3 tablets a day. My cardiologist wanted to let me take only 2 Tambocor + 1/4 of B-blocker. However I prefer the 'old' version, because the B-blocker does not allow me energetic tasks, such as cleaning, mounting stairs and being a musician. Most important before taking this medicament is not to be a person at risk for infarctus.
As I said, I have had no other outbreaks of Afib since my first one three years ago. I have never seen an electrphysiologist. My Cardiologist was sure my Afib was caused by blockage. So this last time I was in the hospital, he ordered a Heart Cath. Result showed my arteries are clear! So back to square one. He now says it is stress. No I don't trust him. He was giving me flecainide even though he thought I had blockage. Something the drug company itself says is a not good to do.
Then he also works for one of the HCA hospitals that was cited for ordering unnecessary hearth catheterizations. He is one of the doctors mentioned in the investigation. Need I say more.
I simply wanted to know how many people have taken this drug, over a long period. As all I read about it is bad,
I recommend going to The Cleveland Clinic. They are #1 in the country for hearts.
I would guess the cardiologist would tell you what I will, you can stop taking it when your a fib is cured. If you doubt your cardiologist see another for a second opinion, but if you trust him do as he says.
When it is cured? How does one know that. I have only had one episode and that was three years ago. I don't know if I still have it. Ive been taking the drugs for three years, and have no idea if they are necessary.
Its not going to get cured, and the meds are why you only had one episode. Talk to your doctor about your concerns.
Hi Kenny1948, I have been on Flecainide 100mg x twice daily for around 20 years with no bad effects and I'm nearly 76.
I have Wolff-Parkinson-White Syndrome with Supraventricular Tachycardia. Flecainide controls it so well that I refused ablation therapy to potentially cure it.
We are all different with our complaints and treatments so I can only wish you well and to be guided by your medics; but certainly try to reduce stress in your life.
Best wishes.
Bry, I am glad to hear that you have been taking Flecainide for so long. I am 35 and been taking for a yr now. I had an ablation which was unsuccessful. So I may be looking at many yrs on this drug, which controls my symptoms fairly well. I was concerned about being on anything for such a long course in regard to my other organs.
Hello Bry1937! I am a candidate for ablation and kind of hesitant to undergo that procedure,hope you dont mind asking why you didnt do it? I am just 35y/o and I am really scared to do it. Hope you could also help me out to decide. Thanks!
I take flavonoids and matoperal , has any one had a problem with sex and if so what do we do about it?
Related topics
atrial fibrillation, aspirin, flecainide, metoprolol
Further information
Similar questions
Search for questions
Still looking for answers? Try searching for what you seek or ask your own question.