I've been on Humira for about 4 months now with remarkable success. I have no pain or swelling. I've been sick more than usual this winter, but I'm not sure that's due to the drug The only problem is severe hair loss
Has anyone had hair loss while taking Humira?
Question posted by thjones on 4 Feb 2011
Last updated on 6 March 2021 by Ajlamb
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19 Answers
Have been on Humira for 9 months. The hair loss began after first couple months and is now quite extreme. Showering is a challenge with the constant deluge of hair and water. I ended up cutting my long hair about three inches just to get past the psychological aspects of watching long strands fall everywhere. I have tried Biotin and omegas but see no difference in it. I read Rosemary oil/water on roots stimulates blood flow to the scalp. Not sure if it will be helpful or not.
I do not use Humira but my Son did. He was diagnosed with Crones at about 14 or 15 he is now 27 and in remission. He was first treated with infusion at Stanford Childrens Hospital and can't tell what the drug was. He was then put on Humira for quite a few years maybe 8 years. If i could show you a picture before being diagnosed. he had a full head of hair and long. He now has decided to just shave his head because he has lost most of his hair. We not know if it was from the infusion or Humira? But he as I said is in remission and no longer use Humira so for him he figuressmall price to pay. I'm almost 70 and have all my hair, so we really don't know but suspect it was the drug treatments he got.
I started Humira one year ago and about 3-4 months later felt my hair was thinning. My hairdresser didn't think so ,so I waited. Now I can see such a difference in my hair from before then. When I searched for whether Humira caused it all the sources say Methotrexate causes the hair follicles to die. I have been on Methotrexate about 7 years and only started noticing this after I started the Humira. I have to believe it is the Humira.
I started Humira 5-1-2019. By the end of August 2019 I started having hair loss. My last dose was
10-6-19. It is now February 2020 and I hair NO hair at all on my body. I haven't seen any signs of hair growth and hope that one day it comes back. Hair loss was the only side effect I had and Humira. It was a miracle drug for my pain.
I was on Humira and yes, I had hair loss. It’s been about 1 year since I stopped Humira, and I still have patches where my hair is gone. It’s all designated on the back of my head. I had beautiful long full hair. I would brush my hair and it would come out in clumps. Washing my hair, it would run down my legs. I was using Humira for Psoriasis. I have zero confidence in being a woman! I can’t even wear my hair down. I have to fix it so that it is somehow gathered with a clip in the back. It’s an awful feeling! I lost my husband to suicide, and he killed him self in front of me, and I guess the stress of everything brought on Psoriasis. I was never told the Humira would cause hair loss. There’s not much of myself that I feel confident in. Especially when trying to go out with friends and I have my hair loss issue to deal with. Any suggestions for hair growth is greatly appreciated!
I have been on Humira for 8 years for RA. And doing great!
Yes, I have had hair loss, but just my legs and underarms. No need to shave anymore.
I have very thick and curly hair on my head, so no issues there. Interesting, before Humira
I always had straight hair. Not sure what happened, but I like it.
I have been taking Humira for a couple of months. I have very noticeable hair loss. When I run my hand through my hair I shed a bit. Hairloss is not something that runs in our family. I will also say that I have already felt an improvement in my RA.
I see that a few people have said that the hair grows back after time. I am wondering if this is true for everyone?
I've been injecting Humira for 5 years for RA. I lost at least 50% of my hair which was completely straight. It has grown back but now is curly & still going curlier. I've had it chemically straightened which was great but doesn't last for long. I struggle to manage my hair with / fused wrists & artificial finger joints so it's hard work managing curly hair after 50 plus years of straight hair. Has anyone else experienced this phenomena? Can only be linked to Humira use which has given me my life back but horrible unruly curly hair. Lol
I am currently on Xeljan have had severe hair loss, was going to try Simponi or Humira . I have had severe hair loss from Methotrexate also, I have tried most of the IV drugs, injectables, and numerous pills. I was diagnosed at 22, and was on the oral gold experimental treatments then-I am now 53. Hair loss does generally stop with discontinuing the drug, and grows back then cycles like every 3 years or so with a heavier shedding, but you have to discontinue the drug... I could feel the Xeljan working but the itching and hair loss was too much. Good luck -you know your body if you think it's the med and your doctor says it isn't keep asking questions--doctors are not always right!
I have been on Humira for 7 months for RA, and since ~ 2 months after I started the injections I began to see hair loss. It was slow at first; however, as time went by, it became worse and worse. Now my hair is so thin and I shed hair nearly everywhere I go--when I cook (yuck!), chairs I sit on, clothes, sheets, etc. That doesn't even include the drains when I take a shower. I'm calling my doctor and changing meds, because I've seen no effects from this Humira that make it worth losing all my hair. Not just on my head, either, everywhere I grow hair I lose it. Haven't had to shave in almost a year... weird.
I've been Humira for over a year. It helps a lot w/the pain. I have also experienced some hair loss. I have also been sick for the past 3 months, taken 6 different antibiotics. Now I have to stop the shots because I just can't seem to kick the upper respitory infection.
Methotrexate causes hair loss and you were problem on that first prior to humira I was only on it for a couple of months and my hair was coming out. Been on humira for 1 1/2 years and the hair has grown back
I have been on pred for 35 years and have had hair loss all those years and now after only 2 months on Humira I have experienced "much" more hair loss. Very devastating to say the least.
I've been taking Humira for four years plus Methotrexate. YES, I have had quite severe hair loss and thinning hair. Oddly though, I have (YUK!) excessive hair growth above my lip and lower chin. My rheumatologist does not know if the Methotrexate or Humira is causing the hair loss. My RA came on just overnight, and I lost full use of my wrists, fingers, could not turn my neck, walk..and the PAIN... unbelievable!! Humira gave me my LIFE back, but I do have "flares" now and then... especially during the winter months and during times of stress. I found I need regular naps due to the fatigue that sometimes hits me, but I've only had ONE hospital stay last year due to someone who served my hubby and me contaminated water and food. He only vomited and had diarrhea for a day. We were both put on Flagyl, but I grew worse and had to be admitted and put on two IV drugs for about four days.
I had NEVER had diarrhea before in my entire life!! I think I could not fight it off due to the Humira. This taught me to be very careful, and we mainly eat at home where I have pure water, clean food and a VERY clean kitchen. Back to hair LOSS, before I took Humira and Methotrexate, I had very long blonde hair (natural blonde), but it was always naturally fine. It definitely IS thinning and falling out, but new hair DOES grow back in. I kid my husband that I shed as badly as due all my cats! :-))
I'm commenting on my own answer: I stopped the Methotrexate about five months ago... just to see if my RA became worse. It did NOT, so now I just take the Humira. My hair loss is gradually slowing down and each night I take a shower, I see less and less of it in the tub! :-)) Plus... it's GROWING! So I would say the Methotrexate caused the hair loss. BUT, several months ago, I began experiencing a NEW problem... CONSTANT thirst!! :-(( I have to carry water with me EVERYWHERE and drink several gallons per day. I've had test after test for Diabetes... all negative. I'm wondering if the Humira could cause this?
I was also on Humira and methotrexate at the same time also. When I started having severe hair loss, my rheumatologist took me off methotrexate. Amazingly, all my hair started growing back.
I have been on Humira for about 3 months and I am doing very well with it too. I started on it after I had a bowel obstruction due to my Crohn's disease. The only side effect I am experiencing is hair loss as well. Like extreme hair loss. I did check the side effects and hair loss is one of the more "serious/uncommon" side effects. I am waiting for my doctor to get back to me. It is frustrating because there is finally a drug that is working and now the side effects may cause me to have to switch to another drug which would be Remicade. And I really do not want to have to change to that. Good luck with your hair loss! I hope there is an answer to this or something that can be done to lessen this side effect.
Yes - the hair loss has been extreme. I'm not willing to give up the benefits so I'm just dealing with the hair loss. It seems that my doctor has a few patients that have experienced hair loss with humira.
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Further information
- Humira uses and safety info
- Humira prescribing info & package insert (for Health Professionals)
- Side effects of Humira (detailed)
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