I have read other reviews saying that gabapentin has been a lifesaver for a lot of ppl with this horrible ailment. I have a script at 300 mg , I have taken 2 so far and my legs are still going crazy and I am going insane, should I take a higher dosage for it to be more effective? I work at 5 am every morning so this drives me nuts!! I need my rest bc I work nights too. Anyone have any advice ? Thank you in advance!!!
Gabapentin - Restless leg syndrome driving me up crazy!! Help please!?
Question posted by Bigwheat on 6 March 2013
Last updated on 27 October 2018
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12 Answers
I've been taking pramipexole (generic for Meripex) 0.25 mg for years at night. I take 2 tablets a few hours before bedtime or when my legs start dancing, say while reading or watching TV. When I had an MRI, I took just one and it kept my legs still. It works great!!! Get off the gabapentin. Have heard it's bad stuff. I've been on it for mild neuropathy and it's not helping. I need to get off it.
I've had RL for many years, was on Klonopin for 20 yrs, was wonderful. Now put on requip, neurontin and finally have gone to see neurologist. She upped my neurontin to 600 mg at night, 300 in a.m. and I am sleeping great. Going to have sleep study and a skin biopsy this month. There is help. Wish I had gone to neurologist yrs ago. Son also has RL, father had also. Being weaned off Klonopin.
I began to suffer rls a few years back. I managed to conquer it in a rather unusual way. First off, let me tell you that I believe in the body's ability to heal itself and I do not agree with taking medications unless it is necessary to save one's life. So, that being said, I got a hold of a used stationary bicycle and put it in my bedroom. I pedaled my tail end off while watching the nightly news before bedtime. I think it wore my legs out to the point of no rls, and I lost a few pounds as a side effect! I no longer need to do that, btw. So, in conclusion, might I suggest some exercise before bedtime? Can't hurt, might help. Happy ZZZZZ's to you all.
I am 40yrs old, found out i have Restless Leg after college (in 1995-1996). For RLS, I take Pramipexole (Mirapex). I use to take .75mg, now I take 1.5mg. Part of the reason I do this (I believe it's 1.5mg) is because you can cut the pill in 1/2. It has a score down the middle. If i do that, it saves me more money per pill. Just a thought.
I am 77 and have had rls for 25 yrs. Got so bad that finally went on meds about 5 yrs ago. Tried Gabapentin, mirapex, requip, etc. Only thing that works is norco (5-325 dose). Discovered this accidentally when I had dental work done. Had to beg dr for this and it is not supposed to work for rls but works for me. Have been taking it for over a year. I am not worried about becoming addicted because I only take one before bed. Only have rls at night.
Hi 55barbara,
I'm amazed that norco helped your rls, that's great though!
Hope your doc keeps you on it, especially since norco is the only thing that works for you.
Good luck,
Lara
What is Norcp
My sister n law was given a patch that she wears for restless leg syndrome. Her's was awful. The patches have helped alot. She changes the patch every two days, I think. I don't know the name of the medicine patch, but, I will find out for you. Try and let ya know tomorrow. You need to get this taken care of so you can get some sleep. Till then, take care. I know it's hard. because before she got the patch, she was awake most of the night. My brother has started getting that restless syndrome in his arms. Use to be his legs. Anyone else had it in their arms. He said he shakes them, beats them against wall and whatever else he thinks might help. Usually it just takes most of the night for it to stop.
Hi bhouse.
Did you know that there's a new patch for losing weight? Yeah, there is. You just put it over your mouth.
Love,
Anna
LOL, Pickles! I guess a big bandage would help, also!
It probably would work Suzan. So would electric tape.
Hi bhouse,
I had no idea that there was a patch for RLS and I think that the RLS that has moved to your brother's arms is very strange. I have never heard of that but the way my mind works, if I find out about something there is a good chance that it will start happening to me as well. The power of the human mind is amazing. What he does with his arms is what I do to my legs when it gets bad. I have beaten my legs with a hammer , will do 500 squats and run around my neighborhood in the middle of the night to try to burn my legs out. When it gets bad, I would kill for a stationary bike to just go to town on because it really does make me crazy when I can't make it stop. This gabapentin seems to be helping a bit but I still wake up in the middle of the night when the RLS kicks in. I will ask my doc about that patch you mentioned.
Thanks for the info and have a good one!
Bigwheat
Hi Bigwheat. How are you today?
Well, cowboy, I believe that's a good idea, along with trying out some other meds? I take 2400 mg of Gabapentin, but that's me. We're talking about you.
I found a little info. Maybe it'll help, maybe not. Whose nose?
Some other meds that could be used for restless leg syndrome are:
Ropinirole and pramipexole.
Gabapentin, which I find an excellent med
Then there's the opiods, You probably know we can become addicted to, but is there a med we take that isn't? I'm certainly not encouraging opiods at all. Only you and your Dr. can make that decision. These meds are: codeine; oxycodone.
And the combination medicine oxycodone and acetaminophen (Percocet, Roxicet),
And the combination medicine hydrocodone and acetaminophen (Lortab, Norco,Vicodin)..
Muscle relaxants and sleep medications helps you sleep better at night. Commonly used sedatives for RLS include clonazepam (Klonopin), triazolam (Halcion), eszopiclone (Lunesta), ramelteon (Rozerem), temazepam (Restoril), zaleplon (Sonata) and zolpidem (Ambien).
Some medications may worsen symptoms of RLS. These include most antidepressants and some anti-nausea drugs. Your doctor may recommend that you avoid these medications if possible. However, should you need to take these medications, restless legs can still be controlled by adding drugs that manage the condition.
Well, bigwheat, that's what I found out from researching. When I was in the psych ward the nurse told me to lay in bed and push my feet against the wall. After about a minute, I said "This isn't helping at all." I told my doc and he prescribed something that stopped it, but it's been 6 years ago, and I wasn't in mental shape to remember. If I were in your shoes, which I'm not, I'd say it's safe to increase Gabapentin, if you haven't already talked to your Dr. since this post.
Hey, Everything in this response doesn't take the place of your Dr.
Take care, bigwheat, and if I can be any Unhelp, let me know.
God bless you,
Anna
Hi Anna,
I posted a comment but it is "pending approval" , in case they don't put it up, thank you so much for sharing your knowledge and experience! If I could be any help to you, just let me know. I have been through the same stuff you mentioned in your comment.
Have a great day!
Bigwheat
Your welcome, cowboy. Our censors have a difficult position on drugs.com. They certainly don't mean anything personally. I've probably had some censored, too. I don't know As long as the two of us chat again, like we are now, I'm happy with that. I look forward to running into you again. I'm sure your going to be good at this. Take care, Buckwheat. God bless you. Love, Anna
Buckwheat, cowboy, haha, I like you, I can tell you are a trip. There must be certain keywords that they dont want on here. I didnt say anything bad at all, oh well, I'll get over it. Just was telling you about my experiences that were very similar to yours and agreed with your comments on vicoden.
Hope you are having a good one,
Buckwheat!! :)
Hi Cowboy. We can have private conversations now. Click on my face and it will take you to me. Then it will tell you that were friends and we can send private messages. Click on ask answer private question. A window will open and you can type away. I want to know what your experiences are. If you post it on this conversation, maybe if you word it a different way, it'll go through. I, too, believe certain words are censored. It really doesn't matter. Just tell me what you can and want. I'd like that.
Thank you for writing me.
God bless you,
Anna
Hi BigWheat,
I agree with Kimstuff, Mirapex is supposedly the best for RLS.
See if you can get an RX. It's worth a try!
Lara
I beg pardon, I should have written that Mirapex is the best for SEVERE cases of RLS.
Lara
Thank you Lara! It is pretty severe so I will definitely check that out!
Have a great day!
Bigwheat
Hi Big Wheat, let us know how it turns out, what your doc prescribes, too?
Best wishes and great ZZZZZZ's to you!
Lara
Hi Lara,
I have been taking the Gabapentin and it seems to help but I have to remember to take it every day. When a RLS spell kicks in , I take a few of the 300mg and it seems to be helping now. When I see my doc on the 19th , I am going to talk to her about the Mirapex.
Thanks Lara and have a great day!
Bigwheat
Hi BigWheat,
You are really supposed to take Gabapentin every day, as directed by your doc, UNLESS your doc has told you to take it only when you have RLS.
Is that the case, or are you supposed to take it daily? If it's daily, keep the bottle of Gab by your coffee pot, (if you drink coffee every morning) so you remember to take it. You could keep it by your TV remote if you watch the news every night, you get my point, I'm sure.
Hope you are feeling better soon, RLS is a bothersome thing indeed!
Lara
Actually I have been on mirapex for several years and it will eventually start making your RLS worse due to augmentation. I can no longer take it and Requip doesn't work for me so I am now on Gabapentin.
My RLS was so bad I had to stop the car 3 times to get out and walk around on a 18 mile trip, I have to stand to watch TV, my arms are also affected.
I have found very good relief using clonazepam/klonopin 1.0-1.5mg about half an hour before bedtime. About nine months ago I started having some nights where I would start waking up and my Dr. added Mirapex for me also. WOW! Taken two to three hours before bedtime, they have been an amazing combination for me. Clonazepam in also used for seizures and since the RLS is caused by the nerves firing, it has really worked well for a lot of folks. Let me know how things go for you. Oh, I also was just recently diagnosed (a month ago) with Fibromyalgia and they have me taking 600mg three times per day. Haven't noticed any conflict with my other meds and my Dr. thinks they are helpping each other for me. Good Luck!
I am glad you have found a good combination of meds to help with your medical issues. I am prescribed Xanax , have been for over 10 years so it just doesn't work for me like that anymore. I had taken 3 mgs of xanax and 600 mgs of Gabapentin and right when I got into bed, my brain starts going a thousand miles an hour, which is a problem for me, I cant relax at all because I think of all the stuff I have to do. I have an extremely full plate with very hard issues to deal with. When my mind kicks in, that's it, then my legs go to town. I was in so much agony, I beat my legs with a hammer like a meat tenderizer , did about 500 squats and ran around my neighborhood around midnight until my legs were so worn out I could finally go to sleep. Had 3 hours left to sleep to be at work at 5am. That is the hard part, "aint nobody got time for that! " Haha! Thank you for your help!
I am glad you have found a good combination of meds to help with your medical issues. I am prescribed Xanax , have been for over 10 years so it just doesn't work for me like that anymore. I had taken 3 mgs of xanax and 600 mgs of Gabapentin and right when I got into bed, my brain starts going a thousand miles an hour, which is a problem for me, I cant relax at all because I think of all the stuff I have to do. I have an extremely full plate with very hard issues to deal with. When my mind kicks in, that's it, then my legs go to town. I was in so much agony, I beat my legs with a hammer like a meat tenderizer , did about 500 squats and ran around my neighborhood around midnight until my legs were so worn out I could finally go to sleep. Had 3 hours left to sleep to be at work at 5am. That is the hard part, "aint nobody got time for that! " Haha! Thank you for your help!
I had similar problems with my mind racing... Clonazepam seemed to help with that as well, aspecially with the Mirapex added.
especially... :)-
Bigwheat,
Gabapentin usually takes 3-4 weeks to build up in your system. Plus they always start out patients on the 300mg units & work up to a higher dosage if the dosage you are on right now is not working.
The max. Dosage on this medication is 2700 mg a day so you Definitely have room for adjustments.
But since you have Just started taking this please be patient I believe you will see benefits.
Take care, kathy
Thank you Kathy!
Bigwheat,
You are very welcome I hope that it works for you.
Take care, Kathy
I take Mirapex, only 0.75mg and it works 99.9% of the time. It's been a miracle drug for my severe RLS!!!
Thank you !! I will look into that when I go back to my dr. Appreciate the info!
You're welcome, hope you find something that works for you... I know how terrible rls is to live with.
Is that like requip. When I took 1mg it felt like I couldn't get any air I used my mdi and it seemed to help so I took 1/2 tablet that didn't happen but afraid maybe my throat my close when asleep. I was Gaba and cymbalta for 3 yrs and stopped 4mo ago cause I felt like zombie.My rheum Dr told me to start up again with Gaba 300 been on it 3 weeks still getting rls so I take 1/2 reequip but im afraid I might go into anaphalatic shock if I have allergy to it.Have apt with Rheum Dr 26 this month I might see if I can get one sooner
I don't agree, sorry
I don't agree, sorry
You need to take it as directed. Gabapentin doesn't work immediately, you have to give it some time to build up in your system before you begin feeling the full benefit from this medication, which can take anywhere from a week to a few weeks. I understand that it's frustrating at the moment, but you need to give it some time and a chance. Do you happen to have another medication for sleep? Have you tried anything over the counter for sleep? If you have Benadryl, you can try that, as it's the main ingredient of a few over the counter sleep medications, just take a couple capsules and see how that works if you have some on hand. I really hope you find some relief, both immediate and with time. And I also hope that you take the gabapentin as directed and give it some time to build up in your system and start working. Please give it a chance beyond just one night or just a few days or a week. I think once you get to about a month or so of taking it, you should definitely know for sure if it helps with your RLS.
Thank you for that info. I have taken 9 mgs of melatonin, 3 mgs of Xanax, and now 1200 mgs of GABA. I know, that's not responsible but I already had the Xanax and melatonin in me when it started. The 600 more mgs of GABA definitely helped. I am going to take this as prescribed from now on. Thank you for your knowledge !
You're welcome. I really hope that it helps you over time!
DON'T take Benadryl to help you sleep! It actually makes it worse. Antihistamines are made to block out the bad stuff that causes allergies but it also blocks what little dopamine you have, which is actually the cause of the RLS! My doctor (I had to travel from Alabama to Baltimore to see him) is an world renowned expert on RLS. He prescribed Gabapentin... you have to adjust the dosage according to how severe your RLS is. But it has worked for me.
Do NOT take Benadryl; one of the side effects of Benadryl is restless legs.
Related topics
anxiety, insomnia, restless legs syndrome, gabapentin
Further information
- Gabapentin uses and safety info
- Gabapentin prescribing info & package insert (for Health Professionals)
- Side effects of Gabapentin (detailed)
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