Creon side effects and minimum dosage?

I'm surprised you aren't diabetic with only 25% of your pancreas. Congratulations! We have an acquaintance with your diagnosis who's had a lot of problems, too. He's currently on Pancrease which you may want to look into.

I can tell you what has happened with my husband who had pancreatic cancer. Fast forward through chemo. radiation and surgery where he lost part of his pancreas, all of his gall bladder, and his inner plumbing was rearranged (The Whipple). About 8 months after surgery my hubby noticed a random pinkish, orange, oily discharge from his anus. His Dr. said he needed Creon for the enzymes to break down his food. His pancreas post-surgery is much larger than yours. He takes 24,000 IU of Creon, 2 capsules 2-3 x day. He doesn't have your side effects. He does have foul-smelling BMs since taking Creon... hey, they weren't so great before, but I'm not telling him that.

Here's where his use of Creon may help you. He only takes Creon with food and only the amount he thinks the food calls for to aid in it's digestion. Ex: If he eats beef BBQ, he'll consume 3-4 caps with the meal because it's a hard meal to digest. If he eats a light breakfast, he'll only take 1-2 caps. His actual prescription reads 2 caps 3 x day. Even though the instructions say Creon can be sprinkled on food, he never has tried this.
If my hubby has diarrhea, it means he's not taking enough Creon for the food he's eating. If he takes the full amount prescribed and gets constipated, it means he's taking too much Creon. Following these rules has helped him tremendously.

It takes his stomach far longer to empty before procedures that require it to be empty. I suspect that may happen to you, too. He has to fast long before the time he's told to for tests like colonoscopies and endoscopies. I'm not sure that any of his other problems relate to yours.

Since iron feeds cancer, his oncologist keeps him anemic so he wouldn't notice feeling a lack of energy. He tries to get things done but it's a very slowed down pace for him. Possibly Pancrease might be a good route to look into for yourself. I hope for your sake other people will come along and tell you their experiences.

I found someone who had luck with gaining weight on Creon at this link:
https://www.drugs.com/comments/pancrelipase/creon-for-chronic-pancreatitis.html

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