... diarrhea. Have had chronic IBS for years and my gastro said it may take a long time for my system to recover. Meantime, my weight just keeps dropping (weighed 144 at surgery - 128 now), and I avoid all foods with fat. I am afraid to eat at times actually. Anyone relate to this nightmare?
Been taking Colestipol since gallbladder removal 11/03/11, and still have massive problems with?
Question posted by scoobysnackn on 14 Dec 2011
Last updated on 26 February 2021
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8 Answers
I was told that the eruptions were due to the gallbladder being removed and I was one of the lucky ones who would have these eruptions because it was no longer there to do what the gallbladder does for digestion
I was told that colestipol would do what the gallbladder did for digestion but that was not true
It just has a side effect of constipation???
I also have had 4 bowel obsstructions so my doctor took me off of anything with constipation for a side effect. Miserable
My Gall Bladder was removed a year or so ago and I have this problem as well. The colestipol pills did not work for me. It was hopeless as I couldn't manage work or take appointments as I felt I had to stay near the bathroom. After trying the pills my Dr. Gave me cholestyramine powder that you mix in water and drink. At first I took this 3 times a day. Now I take it only one time a day and I am 100% regular. I can do everything again. I golf alot and without this I wouldn't have a quality of life. You all need to try this. I hope it helps as I know how you feel.
I just had my gallbladder removed and I stay in the toliet .Dr wants to put me on colestipol I have read some reviews that say u gain weight is that true cause I just worked really hard to lose 40 lbs and don't want to gain it back help ..
I maybe commenting on an older post. I had my gallbladder out about 6 years ago. My doctor did not tell me that a normal side effect is chronic diarrhea. It has only gotten worse over the years. I've tried every diet I did gluten free religiously and nothing really makes a difference. I have episodes of uncontrollable diarrhea up to four times a day almost everyday. My new gastroenterologist put me on colestipol about a month ago. I was so Overjoyed just to hear about something new to try. I had seen two other gastro guys that never mentioned this medicine. It controlled the diarrhea almost immediately. What a relief! BUT, now it is my energy level that is going down the toilet. And I'm having trouble sleeping. So my anxiety level is higher. And in the last 4 days the new drug doesn't seem to be working my diarrhea is back. I think it might be the beer.
I too have these problems and more. Does anyone e have the episodes of gas up in your chest and you feel like you are going to die. It feels like the pain you get after surgery and it gets in your shoulders and chest
Hello, I know this question was posted a long time ago I have only just found this support group so hoping you are feeling better and hopefully have things sorted out . I also have severe IBS and anxiety for over 30yrs now and still find it difficult to understand that they can't find a cure. I had my gallbladder removed 6yrs ago and have bile and acid reflux terrible nausea and pain no end to it. I sincerely hope that you are feeling better.
I had gall bladder surgery back in 1984 & have suffered with diarrhea problems since. I have been on digestive enzymes that I buy from health food or vitamin stores & take one with every meal and this regimen has made a difference in my life. I no longer feel bloated or gassy after ANY meal and if I eat something extra rich I just take an extra capsule and all is well in the world. Recently I started on colestipol at the suggestion of my doctor & I hate it. I have been on it for several weeks now and it has given me insomnia (which I already suffer from because of menopause, but made it WORSE!), anxiety & extreme drowsiness or fatigue. Yes, it has controlled my diarrhea problems but at what expense?I am going back to my digestive enzymes & get some sense of normalcy in my life again!
Can you please share the name of the digestive enzyme you take?? I'd be most appreciative! Sorry for your heartache with the Colestipol also.
I am taking Source Natural Essential Enzymes. They are on sale right now on Vitacost.com for $13+ when I normally buy them for about $25 a bottle. Free shipping for orders over $49. :-)
Thank you so much!!!
I was just prescribed Colestipol. Please share name & dosage of Digestive enzymes. I already have severe back issues and osteoporosis. I also read that it causes insomnia, anxiety & fatigue. Thanks.
I have been on colestipol for a year and have the same problem. Have tried many different sleeping pills. Work for about a week. It works great for my digestive problems. But I can't sleep. Tried taking it during the day, but got very bad intergestion. It took 5 gastroenterologist to find out my problem. Had my gallbladder out years ago. Lived with diarrhea for about 10 years. Not fun and painful! Now I don't have diarrhea but, I can't sleep and sleep Dr don't help. What are you taking now that is helping you?
Pat
Many thanks! On my way to get digestive enzymes now!
Hi and yes I've been going through the same challenges... Even fruit and veggies cause diarrhea is been sooooooo very frustrating
Yes, except I couldn't take colestipol--I threw it up within minutes of taking it. Your surgery is actually fairly recent. It took me 3 months to get back to a regular diet, and still, if I eat too much fat (like my fave grilled cheese on buttered toast ), the IBS gets activated. And I understand being afraid to eat. Right now, with my condition, I only eat after I'm home for the day. I don't recommend this, its just the only way I can avoid wearing Depends during the day. Its a balancing act. Can you take a tiny amount of fat free or low fat food at a time, say 1/4 cup? I only ate chicken broth and spelt bread for a long time after gall bladder surgery. That seemed to work OK. These are a mishmash of experience and suggestions. I hope some of it is helpful. Best to you, Grace.
My story tracks yours except I have taken the Colestipol for 4 months. It's not helping at all. I wish I still had my gall bladder. Life is a great balancing act for sure. Depends and OTC items are with me at all times. Went to the bathroom 12 times today! I'm so tired of this.
Related topics
gallbladder disease, irritable bowel syndrome, diarrhea, colestipol, weight, surgery, chronic, gallbladder
Further information
- Colestipol uses and safety info
- Colestipol prescribing info & package insert (for Health Professionals)
- Side effects of Colestipol (detailed)
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