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Tocilizumab for Juvenile Idiopathic Arthritis User Reviews

Brand names: Actemra, Tyenne, Tofidence

Tocilizumab has an average rating of 6.4 out of 10 from a total of 5 reviews for the treatment of Juvenile Idiopathic Arthritis. 60% of reviewers reported a positive experience, while 40% reported a negative experience.

Tocilizumab rating summary

6.4/10 average rating

5 ratings from 5 user reviews.

Compare all 43 medications used in the treatment of Juvenile Idiopathic Arthritis.

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  • laura...
  • August 11, 2016

Actemra (tocilizumab) "Actemra is the best medicine! I was diagnosed with polyarticular JIA when I was 13 years old. Now I am 19 years old. I tried many medicines: methotrexate, sulfasalazine, leflunomide, enbrel, remicade. And my arthritis was always active... But after my first Actemra infusion I felt the difference. Now I get these infusions since May. And I don't feel any pain, stiffness or swelling. I remember that I have arthritis not because my joints hurt but just because I need to go to the hospital for IV infusions. Now I feel like a healthy person! And I feel like that just because Actemra! Oh, and I also want to say that I don't have any side effects! P.s. sorry, I can write with some mistakes because english is not my first language, I'm from Europe."

10 / 10
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27 Report
  • ALEXA...
  • Taken for 1 to 6 months
  • January 2, 2015

Actemra (tocilizumab) "I started on this after failing treatment with two other injectibles. At 4 weeks I felt great! Like I had nothing wrong with me. Now at three months I still feel better than before but I definitely begin having pain for a couple of days before my injection. This is better than any other medication I have been on for this."

9 / 10
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20 Report
  • OhTay
  • December 9, 2015

Actemra (tocilizumab) "Switched from Kineret which I was on for 9 years and it wore out, then switched to actemra & was on it for 3 months, it did nothing for me, very little relief, & 40% of my hair fell out, I'm only 20 years old & I've had JIA since 7yrs old, still trying to find a remission drug"

3 / 10
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12 Report

Frequently asked questions

  • Anonymous
  • Taken for 6 months to 1 year
  • April 26, 2014

Actemra (tocilizumab) "After many different medicines, this medicine worked the best! Happy with results."

9 / 10
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19 Report
  • Lou
  • Taken for 1 to 6 months
  • May 15, 2019

"Had tocilizumab intravenous monthly after 3rd month a had a grand mal seizure and diagnosed with epilepsy. I now have absence seizures, grand mal and focal seizures. I blame this medication"

1 / 10
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1 Report

Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.