Rituximab for Immune Thrombocytopenia User Reviews
Brand names: Rituxan, Ruxience, Truxima, Riabni
Rituximab has an average rating of 8.5 out of 10 from a total of 4 reviews for the off-label treatment of Immune Thrombocytopenia. 75% of reviewers reported a positive experience, while 0% reported a negative experience.
- Anonymous
- Taken for 1 to 2 years
- September 1, 2019
"Had three courses of Rituxin. 1st course of 4 weeks failed. 2nd course gave me 16 months of remission. 3rd course yielded no results, so went on to Promacta. Promacta did nothing for me. Now, I take Nplate injections, which work for me over a year now. I got ITP at 51 years old and am 55 now. I'm chronic, and will and have fallen to zero counts, and single digits several times when untreated. I also occasionally supplement with low doses of Dexamethizone."
- Jilly...
- Taken for 10 years or more
- April 6, 2024
"I have had ITP since 2006. After trying various meds, my Dr. suggested Rituxan. I was hesitant but finally agreed. I had 6 weekly infusions. I had a little trouble with the first infusion that had to be slowed down. The next 5 infusions went smoothly. I had a fungus on my big toenail. My doctor warned me it would get much worse. He was right; I had to have the toenail removed. But I got a 4.5-year remission. I was treated again and got a 3.5-year remission. Little to no side effects. I had it done again in 2016. At that time, I took a break. I didn't even monitor my counts. No bleeding until 2021. I had bleeding from my mouth and went to the hospital; platelets 2k. They stabilized me with dexamethasone and IVIG. Since it was COVID time, I did not follow up with my doctor. Now we are in 2024. I again had bleeding from my mouth and went to the hospital. Same treatment. Now 2.5 weeks after hospital release, my platelets are down to 17. So it looks like I will be using it again after dex."
Frequently asked questions
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- KJD
- Taken for 2 to 5 years
- February 24, 2024
"Tired, but it keeps my platelets up for about three years."
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Learn more about Immune Thrombocytopenia
Care guides
- Immune Thrombocytopenia
- Immune Thrombocytopenia in Children
- Purpura
- Thrombocytopenia
- Thrombotic Thrombocytopenic Purpura
Symptoms and treatments
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Other brands
Rituxan, Ruxience, Truxima, Riabni
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Other brands
Rituxan, Ruxience, Truxima, Riabni
"Treated for ITP with high dose dexamethasone short burst and then 120mg of prednisone daily for months...platelet counts varied from 9-60 thousand and the side effects of prednisone became unacceptable. Then received rituximab weekly for 4 weeks (4 doses) except for the first dose initial dose which caused intense itching (treated with benadyl and slowing the infusion rate) the treatment was relatively benign. Nineteen months later my platelets have stabilized at 141 thousand (low normal). This treatment is definitely worth a try with (at least for me) a much better side effect profile than steroids"