Lamotrigine for Seizure Prevention User Reviews

• Marc
• Taken for less than 1 month
• January 6, 2020

Lamictal (lamotrigine) "My sister died today due to side effects from this drug. It is ruthless. She lost 2 layers of skin over 90% of her body as it caused Stevens-Johnson syndrome or toxic epidermal necrolysis. She was bandaged from head to toe and blood seeping through the bandages. Though claimed this outcome is rare. I encourage you to consider other options. My sister was healthy and today lost her life due to the side effects of this drug that should not be on the market. Think twice."

• Racha...
• April 12, 2016

Lamictal (lamotrigine) "I went through study after study as a kid without diagnosis. I found out 6 months after I had my 1st child at age 22 I had epilepsy. The pregnancy increased my symptoms and seizure to 3-5 times a day. The first med they put me on was lamictal and I stayed on this med for 8 yrs without any distracting symptoms. After I divorced I tried to go off them due to no insurance, I soon realized how well they did work. I ended up going back on them within two months because my seizure ended up coming back as soon as the med eased out of my system. It has now been a combined 12 yrs on this med and I don't intend on changing anytime soon. If you find something that works, it doesn't matter how many reviews you read until you see how your body reacts."

• genny
• November 26, 2013

Lamictal (lamotrigine) "I've been taking Lamictal for 3 years now. I haven't had a grand mal seizure since then. I was having seizures in my sleep and still think I do every once in a while but none during the day. I am lucky that I do feel a seizure coming on. The only problem is I'm very unbalanced and it's easy for me to trip. I also feel like I'm in a fog sometimes and my cognitive abilities like thinking clearly, number and word recall and multitasking is very affected. "

• Racha...
• April 8, 2010

Lamictal (lamotrigine) "I have been diagnosed with uncontrollable seizure disorder. I am 29 and have no prior seizure problems. They began when I was 27 for reasons my physicians cannot explain. I have no warning or recollection of them when they occur. In fact when I do have them, people around me tell me I just had a seizure and I never believe them. I don't have a warning such as a strange smell, taste, or feeling that a lot of people with seizure disorders experience. I was on Dilantin for 2 years and was still having seizures 3 to 4 times a month (which is a LOT). Recently (about 6 months ago) I was prescribed Lamictal (Lamotrigine) and have not had a seizure since. I recommend talking to your doctor about this medication. It really worked for me! Good luck."

• Anonymous
• Taken for 1 to 2 years
• May 12, 2014

Lamictal (lamotrigine) "I have been on this medication for little under a year. I will say that I have not had a seizure since I've started taking the medication. Unfortunately there are a lot of side effects with this medication, dizziness, vision problems and headaches. I think my dosage may be too high but my neurologist refuses to lower it because of its outcome thus far. I have tried to learn to deal with the side effects. I do not think that they will ever go away but I guess I can just be happy being seizure free. I was on Trileptal before and was having seizures every time I was stressed about something. Overall, the medication has given me back control!"

• enlow
• Taken for 2 to 5 years
• April 7, 2013

Lamictal (lamotrigine) "My grandson has silent seizures and has been on Lamictal for about 3 years. He is 16 years old. He started off on a 100mg a day. He was increased to 200mg daily. His seizures has stopped but he has lost a lot of weight. I discussed this with his doctor and he said it wasn't the medication. I had already done some research and saw that it could be a side effect. He told me to take him to his family doctor. When I took him to his family doctor she said it was the Lamictal. He also has terrible acne, has a hard time concentrating, has a hard time expressing himself and has severe constipation to the point he has bowel incontinence. He has had several problems with anger issues. These symptoms started when they upped his medication."

• Notth...
• December 12, 2014

Lamictal (lamotrigine) "I do like Lamictal as it kind of kept my seizures under control but the side effects on my body and the fact that I still had grand mal seizures more frequently than never I decided to try medical marijuana. I am very pleased to say the the high strains have kept my seizures away entirely."

• Joe
• April 20, 2020

Lamictal (lamotrigine) "Taking 200 mg Lamictal 2 x per day, after eliminating Dilantin which did not prevent several partial and one general seizure after a stroke, and caused sensitivity to noise and paranoia, enabled me to lead seizure free life with few impairments. After 19 years, now taking 25 mg Lamictal 1x or 2x per day maintenance dose, I established through trial and error that Lamictal causes a temporary stiffness or numbness around the mouth and eye of the left side of my face, the vision is impaired."

• Hered...
• January 24, 2020

Lamictal (lamotrigine) "Diagnosed with complex partial seizures in the right lobe of my brain. My mother had full epilepsy. I was 6 when diagnosed the diagnosis was determined after taking a 24 hour continuous EEG by me wearing a small backpack monitor and the needle sensors in my head with a protective covering cap. Prior to the medication, I would throw a temper tantrum if I didn't get a cookie when I wanted it. I would become violent and bite my parents and spit in their face when they would restrain me. The neurologist surgeon said by taking the medication for only two years I would grow up and not develop epilepsy. After taking meds from the very beginning I never had another violent temper tantrum. I took the meds for the two years never experienced any side effects. I am now 21 years old ."

• Errol...
• Taken for 10 years or more
• February 24, 2016

Lamictal (lamotrigine) "I have been on Lamictal now for 15 years. We started at around 600 mg/day,but gradually reduced this to 250 g/day,and then after a couple of small seizures this was upped to 300g and I now take200 g at night and 100g in the morning. My doctor says Lamictal dosage must be minimum 250 g day to be effective, with a maxi dosage possible of 1 200 g / day. We did try some Lamictal plus Keppra onthe way,but reverted tojust Lamictal and that was fine. I have had very few seizures since I started - maybe once every3 years - but recently got 2 when I went to Australia and had had a 30 hour trip. Stress and alcohol are linked to my attacks. I have very light epilepsy discovered at age 32. I am very happy with it"

• Rae...
• August 16, 2013

Lamictal (lamotrigine) "It will be 10 years in October that I've been taking Lamictal. I've been seizure FREE that long as well. I take 200mg at night and 200mg in the morning. I too experience memory loss and concentration. I feel as though my eyes don't move normally. Since my dosage was upped I find myself in slow motion. I also notice that I have a form of dyslexia. example: putting on my windshield wipers instead of my blinkers. another example is: when I'm speaking I might say into my sentence what I'm looking at. Talk about makes me feel stupid! I must add that I also take Zonagram which was causing me other side effects like depression and suicidal. After doctors lowered the Zonagram dose, depression and suicidal thoughts were gone but I gained weight."

• White...
• Taken for 1 to 2 years
• November 29, 2013

Lamictal (lamotrigine) "I can judge this medication being successful due to fewer holes in my drywall and fewer injuries. I can't usually remember my seizures so I base them on others input and injuries from thrashing. I take 250mg, which seems to have cut down incidents to almost zero - major gratitude there."

• Anonymous
• Taken for 5 to 10 years
• August 31, 2013

Lamictal (lamotrigine) "I have been on Lamictal for 7 years and have not had any seizures. My seizures were caused by scar tissue from having a brain tumor removed. I started on Dilantin but the side effects were so bad I couldn't work so my neurologist started me on Lamictal. I didn't lose weight but I am frequently dizzy and definitely have cognitive and memory issues. I find I have to focus on tasks and don't multi-task effectively anymore. I wouldn't give this medicine up because it controls my seizures. I'm fortunate that my medical plan covers brand name but I have to pay more."

• CanBx
• December 10, 2009

Lamictal (lamotrigine) "I've been taking Lamictal for 7 months for seizures. It was prescribed by the Neurologist. One month after I started taking Lamictal, I suffered a stroke with an epilepsy attack. From day one, I told my doctor about all the stomach ache from taking Lamictal. She did not stop or changed the medication and now after having a biopsy to the stomach, it was found to be caused by Lamictal. I try to tell the doctor but she refuses to accept that Lamictal was causing my stomach aches. Lamictal is the only medication I am taking."

• Anonymous
• Taken for 5 to 10 years
• November 12, 2014

Lamictal (lamotrigine) "I've been on Lamictal for 8 years and am seizure free with no side effects. The only problem I encountered was that I had a seizure the day after my daughter was born because my dosage post-pregnancy was too low. For those planning to have children, I'm happy to say my daughter had no birth defects. However, I chose not to breast feed her because the medicine would pass to her body. Overall, I'm incredibly happy."

• itsso...
• November 3, 2007

Lamictal (lamotrigine) "I participated in a clinical trial of Lamictal many years ago with no side effects and have taken it ever since. My only problem is that it is still generic according to the FDA, although a couple of websites say that generic forms are available. I have had no side effects at all from Lamictal and take it with Topamax. I have liver tests once a year now. Other people I know take it with other seizure medications and they tolerate it well, too."

• Zane...
• Taken for 1 to 2 years
• April 15, 2015

Lamictal (lamotrigine) "My neurologist decided to try lamictal with me because of the inefficiency of topamax. As I was weening off topamax, he put me on 300mg of lamictal XR. After a few weeks, I was solely on lamictal and no more topamax. Yet, the first two weeks I had two seizures, so my doctor decided to put me on 1000mg of Keppra. I've had a few more seizures on lamictal and it was very random. I believe that lamictal is not beneficial by itself, but combined with another drug, it seems to help out. Although it helps a little bit, the side effects are fatigue, weakness and low appetite. These side effects weren't as bad as topamax, but they weren't the best. In the end, I've been seizure free for the last six months on lamictal and keppra."

• Anonymous
• September 7, 2009

Lamictal (lamotrigine) "I have minor seizures and have only been taking this medication for 7 months. Everything seemed to be going well and then I started losing concentration at work. (I work at a 911 center). Any error that I make can be crucial. I thought I was just having moments of memory lapse and sometimes felt like my head was cloudy or moving slowly. It actually just occurred to me that it could be this medication."

• Mermo
• Taken for less than 1 month
• April 27, 2018

Lamictal (lamotrigine) "My daughter started this drug at night time with the lowest dose. 2 weeks later we added another dose in the morning. On the second day she started having more seizures (absense) in the morning where as before she had maybe 20 but with the medication it was in the hundreds. I told her dr and they wanted us to just double up the dose at night time. I wasn’t ok with that but kept her on the 1 chew pill at night. The next day she has a convulsion seizure which she had never had before. I don’t like this medication. I think it caused more seizures for my 6 year old little girl."

• imtia...
• December 31, 2016

Lamictal (lamotrigine) "Started in 2005 with a low dose 50 mg once daily in evening time with no regard to food. It has done a miracle in my case I am virtually 100 % seizure free. No noticeable side effects in my case except dreams in 1st week, as I remember when I started 11 years ago. In 2011 I stopped taking it as I thought I don't need it any more but I had a fit again very soon, so I started again immediately. In 2012, I tried to be over smart and reduced its dose to 25 mg 1 OD, but soon afterwards I had another episode though it was less intense and I controlled myself. Since then I never thought again to discontinue or reduced its dose, I take it each day every day religiously honestly without a break like my breakfast every morning."

• Anonymous
• August 12, 2010

Lamictal (lamotrigine) "I have been on Lamictal for seven years (300 mg morning and 200 mg in the evening). I had been on Topamax before but my neurologist switched because of side effects. After the switch, my amount of seizures increased dramatically to about 5 per month and I was having them without any warning. It was as if I was not on any medication! I have always been controlled with medicines. The neurologist refused to believe it was from the Lamictal and kept saying it was because my body had to adjust to the change in medicine. After about 6 months, a doctor at a different hospital put me on Keppra in addition to the Lamictal. I have only had one seizure since. "

• Chris...
• September 24, 2015

Lamictal (lamotrigine) "So my first seizure was when I was 13, I have tried many meds but this one seemed to work the best. BUT as the years have passed, my memory has been going a lot and it seems to be getting worse and worse. I took it upon myself to stop the medicine cold turkey (I'd been on for 5-6 years now so its NOT recommended).. and yet I haven't had any symptoms of a seizure and my memory is starting to come back. My sister was also on it but for depression, she almost lost her eye sight because she missed 1 day of taking it. So please be careful, and do your research on each drug that you are about to go on."

• Frust...
• March 15, 2010

Lamictal (lamotrigine) "I have been taking Lamictal for the past several months, with a maximum does of 500 mg/day (I was on 150/day, but that wasn't controlling my seizures). Unfortunately, the seizures have not stopped. I haven't missed a dose, yet they keep coming back. My seizures on Tegretol were so infrequent (1-2/year) and now they are much more frequent. Plus, it is giving me horrible acne on my face and chest. And strange itchiness on my skin now and again. Also, I cannot sleep well. Overall, I do not recommend this, but who knows, everyone is different."

• Gayn
• Taken for 1 to 2 years
• November 21, 2017

Lamictal (lamotrigine) "I've been on lamictal for 1 year for seizure prevention/mood swings. I gained weight, have a dry mouth and insomnia. I told my neurologist I wanted to come off seizure meds as I haven't had a seizure for 5 yrs, he said No because the next seizure I have may be fatal! Great bedside manner! Now I have live with side effects as I'm scared to come off lamictal."

• Horse
• Taken for 1 to 2 years
• March 17, 2020

"I take one Lamotrigine in the morning and one at night. I have had no side effects that I am aware of. I hope it is not doing any damage. I think my short term memory is not as good as it once was. I write down things I need to remember more than other times in my life, but many of my friends do too. However, I am now 75 years old and can still do all activities I need/want to."