Copaxone for Multiple Sclerosis User Reviews (Page 3)

• Bourg
• December 28, 2015

"I've had MS for almost 8 years and been on copaxone the whole time. I'm still on copaxone and will continue to use copaxone as long as I can . Going tomorrow to get 3 MRI's and, an xray . The MRI's are with and, without contrast . Cause without contrast they wouldn't see new lesions. MS gets my right side numb face, nose, tongue, throat right side only . Two weeks ago I experienced my first MS hug . Horrible feeling. I get spasms all over and it affects my bladder as well . I hope it goes well for me tomorrow. The MRI's don't bother me - its waiting on the results ."

• Monic...
• May 21, 2016

"I wrote a review on 12/2015 unfortunately I had to stop using copaxone because I got bad reactions. The last one was body shaking like if I had a machine connected to my body for one hour my buttocks muscle shaking so much. I got very scared and stopped medication. It's been 2 months and I don't think I will go back to it. I am just trying to eat healthy I cut all lacteos and red meat. "

• deetr...
• Taken for less than 1 month
• March 16, 2016

"so far doing good. Got a diagnosis of MS 2016, Jan. I was numb from the waist down. Took for a month for the numbness to recede. I am very unbalance. I am hoping as months pass that will disappear. My energy has not return for me yet. Maybe it will. I am praying so. No reactions except itching on the back of my arms. that is all. I do all 7 sites."

• Dixie...
• November 11, 2010

"I was diagnosed with multiple sclerosis 2 years ago and this is the 1st medicine I've tried and hopefully the only! I've only had 1 relapse since I've been on it and only side effects I've had (other than the after shot reaction which I've had 2 times, and isn't as bad as it sounds if you know it can happen) are redness, swelling and itching at injection site and weight loss (which I'm not complaining about). Sure everyone's response will be different, just like MS is different for everyone, but I'm very happy with this therapy and got over the fear of needles quickly. Actually I feel empowered when I take my injection."

• cpk
• Taken for 5 to 10 years
• July 28, 2015

"I was diagnosed with MS 10 years ago by MRI after many falls due to foot drop, around 2005. I took copaxone from 2009 - 2011, 20 mg per day. It didn't help, it didn't hurt. I stopped because my insurance wouldn't cover it anymore. I've had regular symptoms over the last 10 (or even 30) years, they have gotten progressively worse the last 2 years. I got back on Copaxone about 4 months ago, 40 mg 3 times a week. I don't think it is helping. My site reactions are worse than they were with 20 mg daily shots. I have gotten to the point where I can barely walk without pain, weakness, and shin splints from the muscle weakness in my legs and inability to walk and balance properly. I take Copaxone ONLY because I'm afraid not to. Good luck."

• Anonymous
• October 2, 2009

"I have been using Copaxone for almost ten years. In that time I have had maybe two flareups. I self inject. Found the auto inject hurt more. Skin irritation lasts less than half an hour. The only long term side effect is a loss of fat cells under the skin which cause slight indentations. I chose Copaxone after many hours of research and have never been sorry. I intend to continue using this drug until someone convinces me there is something better."

• Monique
• Taken for 10 years or more
• September 7, 2021

"I used this amazing drug for 17 years before it stopped working! I went to an infusion and now another injectable (no names). I am secondary progressive and walked unaided for almost 40 years. Now I am wishing I could turn the clock back."

• Liana_h
• Taken for 1 to 6 months
• August 28, 2012

"I'm 17 and I've been on this medicine for 6 months now and I'm super pleased with it. I choose it because I didn't want flu-like symptoms. At first I was nervous about getting skin reactions but I haven't had anything at all! It was quite painful for the first couple of weeks and using heat and cold packs helped it but now I don't need to use them. I totally recommend this but it's a bit too soon for me to know if it's reducing attacks."

• Fifty...
• July 15, 2017

"Hey all! I was diagnosed with MS 25 years ago. I was on no meds for 15 yrs, Copaxone 20mg for 5 yrs then switched to Gilenya for 6 yrs. Then 2 weeks hospitalized with viral encephalitis!! Do not go on immune suppressing MS drugs!! I agree with others about the Wahl protocol... eat to feed your brain. Also include cardo, strength training and stretching weekly. I am starting Copaxone 40 mg. Should be no problem. "

• Ironm...
• Taken for 10 years or more
• January 15, 2019

"Transitioned from Avonex when it stopped providing benefits. While Copaxone has not fully stopped disease progression, it has slowed progression to a crawl. In fact any progression of the MS has been difficult to discern except over long periods of time, looking back!"

• PoolBum
• July 26, 2010

"I was diagnosed with MS 10 years ago and started on Copaxone within a month. I chose Copaxone because it's a subcutaneous (tiny needle) rather than in the muscle injection and no flu like symptoms. During these 10 years, I have had only one flare-up. When I first started on the drug I had painful site reactions that lasted about an hour. After a couple of months these got less severe and soon became very mild and currently I have no injection site discomfort. I don't have much body fat and I suspect I was accidentally injecting into muscle tissue, which I understand can cause burning pain. Teva's Shared Solutions is a great and caring resource. Thanks Teva!"

• Ms...
• Taken for 10 years or more
• September 10, 2016

"Have been on Copaxone 20mg everyday for 14 yrs. Only one major flare up in 2011 that left me numb from waist down, had to learn to walk again. But only missed 5 days not taking Copaxone. Am okay with a shot everyday. Am now walking with a walker, no flare ups since 2012."

• dryh2o
• Taken for 1 to 6 months
• January 4, 2013

"I was diagnosed July 2012. Finally! I could no longer walk, my legs had gotten so weak. Was in a wheelchair already. PPMS is not fun. I have noticed that my legs are stronger, but still not able to walk. And my MS has not gotten any worse. Don't have and have never had "flare ups" but at the rate I was going downhill before Copaxone, this is great. I don't like the shots, but I know they are worth it."

• dawndee
• Taken for less than 1 month
• October 5, 2013

"I have been on Copaxone for a week, side effects, gives me severe stomach pain, back and side pain and vomiting. I'm going to try and get through it this weekend. If symptoms persist, it will go in the trash and I will have my doc give me something new."

• Glenn...
• May 9, 2016

"Have been on copaxone 20, avonex, and tysabri.Avonex caused bigiminy, tysabri was stopped because I had the virus and could have a brain infection. Copaxone has kept me free of relapses for 12yrs. I recently started copaxone 40 and have had 2 massive injection site reactions and am currently off treatment. I hope I can start back on copaxone 20, in 6wks. I am a lucky person, I am weak and tired, at 67 doing ok. I do not recommend copaxone 40,but do not want geneticists."

• Have...
• March 28, 2013

"Been on this medicine for almost one month not quite sure if its working 100% yet but I feel quite well. Hands still have tingly feeling, but I'm able to work and walk good just have to keep faith! It does burn as being injected other than that I just pray it works well."

• Spool
• Taken for 2 to 5 years
• June 23, 2016

"Was on Copaxone for 3 years. Horrid reaction after many injections as it seemed I was often hitting a vein. Huge welts from injections that took weeks to subside. Last straw was the killing of flesh on left arm. Surgeon said damage looked like a chemical burn from the inside out. Two surgeries to repair and have 8 inch scar as permanent reminder. This was back in 2003."

• TRUST...
• May 8, 2009

"My doctor let me choose which medicine I wanted to be on. After many hours of research I chose Copaxone. I absolutely love it. I self inject. I do not use the auto-inject. Less pain that way. I love it so much. Very easy to do - the only area I can't reach is behind the arms and my kids do those ones. Only site reactions. I feel great and look forward to many flare-free years."

• Anonymous
• July 18, 2012

"I started Copaxone 2 years ago and I am doing fantastic! I never miss a day and aside from a small bump at the injection site that lasts for a few hours, I have not experienced any negative side effects. I had my latest MRI 2 weeks ago and according to my neurologist, everything looks great."

• Diana
• Taken for 1 to 2 years
• June 16, 2015

"Diagnosed March 2014, and have been on Copaxone (3x weekly) since May 2014. Two MRI's since (Oct '14 and June '15) have shown no change. Had one exacerbation in April. Overall I am pleased. I do have site reactions, red itchy lumps, but worth it to have little to no progression. Early in treatment I had hair loss for 3 months, but that did stop. Plan to continue this treatment."

• Dreads
• March 17, 2017

"I was diagnosed relapsing-remitting Multiple Sclerosis MS April 2016. August 2016 and February 2017 the MRI showed minimal activity. My neurologist advised me to start using Copaxone, 3 times a week - 40 mg. I've been injecting myself without the auto injector and so far so good. I only inject in my belly and legs (in the evening). When injecting in my belly I experience a burning/itchy feeling. This fades away after an hour. It's an awkward feeling but not a big deal. When injecting my legs I experience stiffness of my leg muscle. After a few hours it is gone. The stiffness is a nuisance but not a big deal. Next morning, no more itchy sensations or muscle stiffness. All gone. Because I am only using it for 2 weeks I don't know if it helps but so far I am very happy"

• PJams
• Taken for 10 years or more
• February 5, 2017

"I was diagnosed with RRMS in 1993. Tried Avonex, worst side effects body pain, pounding headache instantly. Stopped drug after 6 wks. In 1999 had relapse. Double vision, numb on left side, slurred speech, dizziness, fatigue, unable to walk without falling, my mind felt odd. Doctor at DUKE university suggested Copaxone 20mg. Started in 1999. Now on 40mg 3 times a week. Had relapse may 2016. I have itching, welts, injection pain, lumps and permanent indentations."

• Linny
• January 24, 2017

"I started taking Copaxone in mid-August 2016. The first 3-4 months, I didn't notice any real difference. After the first few weeks, I didn't have any more site reactions. For the last two months, I'm experiencing terrible joint pain. Leg cramps in the middle of the night, my hips are stiff; my shoulders hurt. just a little while ago, my hand was shaking sooo bad. It's scared me. So here's the thing - I'm not experiencing any of the other MS symptoms that I had before taking Copaxone. Gone are those electrical shock sensations, I'm not really more numb, the weird feeling that runs down my spine. It seems like I've traded one set of symptoms for another. Before copaxone, I enjoyed exercising. Now not so much. :("

• caz
• August 9, 2008

"I have R/R MS, and after having more than 2 relapses in 1 year, I was put on Copaxone. 3.5 years on I realise that this drug really suits me. The only problem with this medication is my poor memory, at least once per month I totally forget to administer my injection. This causes no exacerbations, and I feel so good on it. I had suffered for quite a few years before using this preparation, and it seems like a God send."

• Tabpolo
• Taken for 10 years or more
• June 1, 2019

"Diagnoses in 2006, started on Rebif which early killed me. Crashing Blood sugar levels. Got on Copaxone, first 20 mg every day, then 40 mg 3x/week. Besides the minor effects of tingling, fatigue, slowing down, no major issues. MRIs show minor progression. Nov 2018 my insurance notified me it would no longer cover the cost. I’ve been working with my doctor to find the next med, tried Tecfidera, stopped after 3 weeks the side effects were so horrible. I want back on Copaxone."