Zanubrutinib for Waldenström Macroglobulinemia User Reviews
Brand names: Brukinsa
Zanubrutinib has an average rating of 8.8 out of 10 from a total of 6 reviews for the treatment of Waldenström Macroglobulinemia. 67% of reviewers reported a positive experience, while 0% reported a negative experience.
- S s c
- Taken for 1 to 6 months
- August 27, 2023
"I am 81 years old. I was experiencing weight loss, no energy, shortness of breath, and feeling constantly tired. I am on my fourth bottle of Brukinsa and my symptoms are gone. I am gaining weight again. No side effects other than bruising easily, which could be attributed to my age."
- Brian
- Taken for 6 months to 1 year
- March 6, 2024
Brukinsa (zanubrutinib) "My doctor changed from Imbruvica to Brukinsa approximately 8 months ago. My IgM did improve slightly, but a terrible skin rash appeared all over my body accompanied with uncontrollable itching. I blame Brukinsa for that. I now need advice about what to take for my Waldenstrom's condition with fewer side effects."
Frequently asked questions
- ssge
- Taken for 1 to 6 months
- December 20, 2022
"My IGM has gone from 2400 to 285 in 3 months after going from 4000 to 2400 doing R-chop for 4 months. I feel much much better than I have for the last 9 months. Some of my problems I'm blaming the R-chop. The only problems I'm having are fatigue and joint pains. This could be my 75 birthday and the R-chop but I really didn't have any real pain in my thumbs until I started on the zanubrutinib. And it seems to get much worse. My hands are very swollen overnight. I'm not able to hold a golf club."
- Ana...
- April 19, 2024
Brukinsa (zanubrutinib) "I have been taking it for 3+ months and have no bad side effects. It is reducing my M-spikes and most of my blood values have moved back into normal ranges. I couldn't be more pleased!"
- Buddy
- Taken for 1 to 2 years
- May 10, 2024
Brukinsa (zanubrutinib) "Taking it for over a year and I feel great. No side effects except some occasional bruising. IGM numbers are definitely lower than they were to start and approaching normal."
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
Learn more about Waldenström Macroglobulinemia
Symptoms and treatments
More about zanubrutinib
- Check interactions
- Compare alternatives
- Reviews (20)
- Side effects
- Dosage information
- During pregnancy
- Drug class: BTK inhibitors
- Breastfeeding
- En español
Brukinsa (zanubrutinib) "I have been using Brukinsa for over two years and I am now having difficulties with weight gain and lymphedema in my legs and feet to the point that I am having difficulties walking and getting in and out of a seat, especially in cars. I am looking for help with little success."