Skip to main content

Zanubrutinib for Waldenström Macroglobulinemia User Reviews

Brand names: Brukinsa

Zanubrutinib has an average rating of 8.8 out of 10 from a total of 6 reviews for the treatment of Waldenström Macroglobulinemia. 67% of reviewers reported a positive experience, while 0% reported a negative experience.

Zanubrutinib rating summary

8.8/10 average rating

6 ratings from 6 user reviews.

Compare all 4 medications used in the treatment of Waldenström Macroglobulinemia.

10
67%
9
0%
8
0%
7
17%
6
17%
5
0%
4
0%
3
0%
2
0%
1
0%
  • John...
  • Taken for 2 to 5 years
  • April 10, 2024

Brukinsa (zanubrutinib) "I have been using Brukinsa for over two years and I am now having difficulties with weight gain and lymphedema in my legs and feet to the point that I am having difficulties walking and getting in and out of a seat, especially in cars. I am looking for help with little success."

6 / 10
Was this helpful?YesNo
2 Report
  • S s c
  • Taken for 1 to 6 months
  • August 27, 2023

"I am 81 years old. I was experiencing weight loss, no energy, shortness of breath, and feeling constantly tired. I am on my fourth bottle of Brukinsa and my symptoms are gone. I am gaining weight again. No side effects other than bruising easily, which could be attributed to my age."

10 / 10
Was this helpful?YesNo
5 Report
  • Brian
  • Taken for 6 months to 1 year
  • March 6, 2024

Brukinsa (zanubrutinib) "My doctor changed from Imbruvica to Brukinsa approximately 8 months ago. My IgM did improve slightly, but a terrible skin rash appeared all over my body accompanied with uncontrollable itching. I blame Brukinsa for that. I now need advice about what to take for my Waldenstrom's condition with fewer side effects."

7 / 10
Was this helpful?YesNo
2 Report

Frequently asked questions

  • ssge
  • Taken for 1 to 6 months
  • December 20, 2022

"My IGM has gone from 2400 to 285 in 3 months after going from 4000 to 2400 doing R-chop for 4 months. I feel much much better than I have for the last 9 months. Some of my problems I'm blaming the R-chop. The only problems I'm having are fatigue and joint pains. This could be my 75 birthday and the R-chop but I really didn't have any real pain in my thumbs until I started on the zanubrutinib. And it seems to get much worse. My hands are very swollen overnight. I'm not able to hold a golf club."

10 / 10
Was this helpful?YesNo
7 Report
  • Ana...
  • April 19, 2024

Brukinsa (zanubrutinib) "I have been taking it for 3+ months and have no bad side effects. It is reducing my M-spikes and most of my blood values have moved back into normal ranges. I couldn't be more pleased!"

10 / 10
Was this helpful?YesNo
2 Report
  • Buddy
  • Taken for 1 to 2 years
  • May 10, 2024

Brukinsa (zanubrutinib) "Taking it for over a year and I feel great. No side effects except some occasional bruising. IGM numbers are definitely lower than they were to start and approaching normal."

10 / 10
Was this helpful?YesNo
1 Report

Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.

Learn more about Waldenström Macroglobulinemia

Symptoms and treatments